Does professionals have the right to tell parents what to do and what not to do?

rick48 said:
I sincerely doubt that you are "putting her through the surgery for nothing" and that you are carefully weighing the pros and cons. BTW even the ability to hear only environmental sounds has been enough of a reason for many.
Rick
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faire jour,

Just re-read my post and I should have been clearer. I believe you are indeed carefully weighing the pros and cons. I do not think that you would ever choose to do the suregery for no valid reason. Sorry, if it caused any confusion.
Rick
 
In addition, she will be having speech and listening times in her classroom everyday as well as twice a week private AVT therapy.
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Excellent!
fairejour...... I would REALLY push to get her implanted. I mean you could argue that hearing aids are NOT helping her at ALL. Also, he's basicly selling a false bill of goods. He's implying that ALL kids hear well enough to be hoh...Not quite. Just as with hearing aids the hearing gained varies tremendously.
 
Professionals don't or should not tell the parents what to do or what they should not do. That suck big time if they do. The Deaf child will go very unhappy when the parents have to put them through this ordeal such because the parents have to listen to the stupid audist professionals. Most professionals don't get it at all when they should be listening to the Deaf child's need to communicate by ASL or sign language. Geez!! :mad:
 
Specious grammar or specious judgment? Which came first, the chicken or the egg?
 
faire_jour said:
I think next time I will ask this question:

"Are you telling me that yopu are denying my child a medical procedure because she is a cultural and linguistic MINORITY? Isn't that illegal?"
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Exactly!!!
 
Bebonang said:
Professionals don't or should not tell the parents what to do or what they should not do. That suck big time if they do. The Deaf child will go very unhappy when the parents have to put them through this ordeal such because the parents have to listen to the stupid audist professionals. Most professionals don't get it at all when they should be listening to the Deaf child's need to communicate by ASL or sign language. Geez!! :mad:
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That's because these "medical" professionals think they know it all when they really do not. They only know and understand the mechanics of the body and how to correct any illnessness or defects. Of course, they see deafness as a defect. When it comes to educational placements or communication modes, they need to seriously back off cuz it is not in their field or area of expertise. Just like I wouldnt be going out and recommending certain medicine to parents to cure some illnessnes. That would be unethical of me. Same goes for them so they need to BACK OFF!
 
shel90 said:
Why are they doing this? It is your child. It is like the complete reverse of deaf people telling hearing parents not to implant their children because of Deaf pride. I guess these "professionals" are militants about being hearing and oral skills. :roll: what's wrong with a middle ground? There is NOTHINg wrong with exposing deaf children to both languages. :roll:
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At least my parents gave me a choice on CIs and I told them no.

Some kids do not have that choice. The parents are just as complicit as the professionals in removing that choice from their kids.
 
shel90 said:
That's because these "medical" professionals think they know it all when they really do not. They only know and understand the mechanics of the body and how to correct any illnessness or defects. Of course, they see deafness as a defect. When it comes to educational placements or communication modes, they need to seriously back off cuz it is not in their field or area of expertise. Just like I wouldnt be going out and recommending certain medicine to parents to cure some illnessnes. That would be unethical of me. Same goes for them so they need to BACK OFF!
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Bingo!!! They are stepping outside their scope of practice.
 
deafdyke said:
Excellent!
fairejour...... I would REALLY push to get her implanted. I mean you could argue that hearing aids are NOT helping her at ALL. Also, he's basicly selling a false bill of goods. He's implying that ALL kids hear well enough to be hoh...Not quite. Just as with hearing aids the hearing gained varies tremendously.
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When I brought that up, he told me that she should be doing better with her aids. That maybe "She is one of those kids who can't learn to speak", and that maybe she should just leave her alone. That because she was hearing so well with her aids, her speech should be better, IF she had the capacity to learn spoken languages.

That is the scary part for me. Do I mess with what is working to give her the possibilty of more???
 
That because she was hearing so well with her aids, her speech should be better, IF she had the capacity to learn spoken languages.
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HOLY FUCK...........NO WAY. Actually, hearing well does not equate with good speech. As a matter of fact, there is a disabilty called apraxia which means a kid can hear and understand, but for some reason they don't have the oral motor abilty to speak well. It's pretty common overall in the dhh community.
 
Apraxia:

Definition: Apraxia is a neurological disorder affecting the ability to control fine and gross motor movement and gestures. The disorder can also affect communication skills. Apraxia can range from mild to severe. People with apraxia often cannot perform controlled, purposeful movement, despite having the physical strength and intellectual thought and desire to do so. Apraxia is believed to stem from disorders in the parietal lobes of the brain.


What are the types and causes of apraxia?

There are two main types of speech apraxia: acquired apraxia of speech and developmental apraxia of speech. Acquired apraxia of speech can affect a person at any age, although it most typically occurs in adults. It is caused by damage to the parts of the brain that are involved in speaking, and involves the loss or impairment of existing speech abilities. The disorder may result from a stroke, head injury, tumor, or other illness affecting the brain. Acquired apraxia of speech may occur together with muscle weakness affecting speech production (dysarthria) or language difficulties caused by damage to the nervous system (aphasia).

Developmental apraxia of speech (DAS) occurs in children and is present from birth. It appears to affect more boys than girls. This speech disorder goes by several other names, including developmental verbal apraxia, developmental verbal dyspraxia, articulatory apraxia, and childhood apraxia of speech. DAS is different from what is known as a developmental delay of speech, in which a child follows the "typical" path of speech development but does so more slowly than normal.

The cause or causes of DAS are not yet known. Some scientists believe that DAS is a disorder related to a child's overall language development. Others believe it is a neurological disorder that affects the brain's ability to send the proper signals to move the muscles involved in speech. However, brain imaging and other studies have not found evidence of specific brain lesions or differences in brain structure in children with DAS. Children with DAS often have family members who have a history of communication disorders or learning disabilities. This observation and recent research findings suggest that genetic factors may play a role in the disorder.

Apraxia is not really proven to correlate with hearing impairment.

Childhood Apraxia of Speech

Above is a link with more information on apraxia.
 
Botte,
excellent link!
However, I've always been told that apraxia is seen quite a bit in the dhh community. It's the reason why kids often have trouble speaking, even if they can hear at hoh levels.
 
deafdyke said:
Botte,
excellent link!
However, I've always been told that apraxia is seen quite a bit in the dhh community. It's the reason why kids often have trouble speaking, even if they can hear at hoh levels.
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If you read medical literature, you will see that whoever always told you was apparently ill informed.
 
Agreed. There is no correlation between apraxia and hearing status. In fact, it is still a mystery as to why some can learn to speak at profound levels, and others have great difficulty at even a moderate level of loss, either aided or unaided. That, in and of itself, is the reason that we see wo much variance in the "success" rates of the CI.

The issue is not one of audiological foundation, but of neuroligical foundation.
 
faire_jour said:
When I brought that up, he told me that she should be doing better with her aids. That maybe "She is one of those kids who can't learn to speak", and that maybe she should just leave her alone. That because she was hearing so well with her aids, her speech should be better, IF she had the capacity to learn spoken languages.

That is the scary part for me. Do I mess with what is working to give her the possibilty of more???
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This is a decision that, as a parent, you must agonize over. I certainly would not presume to tell you what to do with your child. However, I can tell you that, as a parent, if my child were functioning well in a Bi-Bi atmosphere, was happy and well-adjusted, and progressing as expected academically, I would not rush into surgery. You have already discovered what your child's strengths are, and you seem to be using those strengths to her advantage. It works. Keep doing it.
 
Sorry for getting late into this debate but the one thing I have noticed that no one has mentioned is this: these professionals are being paid for their advice. And that is all they do, diagnose the problem/situation and give advice on how to solve it.

Now once you get the advice, it's you decision to continue to adhere to it, research some more, get a second opinion, or say, "Screw it! I ain't going back!"

Granted, I do agree with most of what everyone is saying here but I do just wanted to everyone know, they are getting paid for their advice. :)
 
Byrdie714 said:
Sorry for getting late into this debate but the one thing I have noticed that no one has mentioned is this: these professionals are being paid for their advice. And that is all they do, diagnose the problem/situation and give advice on how to solve it.

Now once you get the advice, it's you decision to continue to adhere to it, research some more, get a second opinion, or say, "Screw it! I ain't going back!"

Granted, I do agree with most of what everyone is saying here but I do just wanted to everyone know, they are getting paid for their advice. :)
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Getting paid for advice in areas where they are not trained nor have expertise in?

They can give advice on whether a child is a candidate for a CI or not but not what educational placement the child should be in. Also, what's with denying a child a CI because the parents want to keep her in a BiBi educational environment? I have to say that they money being spent is certainly wasted.
 
Byrdie714 said:
Sorry for getting late into this debate but the one thing I have noticed that no one has mentioned is this: these professionals are being paid for their advice. And that is all they do, diagnose the problem/situation and give advice on how to solve it.

Now once you get the advice, it's you decision to continue to adhere to it, research some more, get a second opinion, or say, "Screw it! I ain't going back!"

Granted, I do agree with most of what everyone is saying here but I do just wanted to everyone know, they are getting paid for their advice. :)
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And, a part of that advise they are being paid for is to refer to another when the issue falls outside their area of expertise.
 
shel90 said:
Getting paid for advice in areas where they are not trained nor have expertise in?

They can give advice on whether a child is a candidate for a CI or not but not what educational placement the child should be in. Also, what's with denying a child a CI because the parents want to keep her in a BiBi educational environment? I have to say that they money being spent is certainly wasted.
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And that is where the trouble comes in.

The parents need to realize that they are seeing a specialist in one area. And it is unfortuante that these so called "audiologists/CI doctors" are preying on the fears of the parents in terms of social-education well being of the child.

The parents need to wake up and say, " you are just the doctor in this specific area and nothing more."

But it is unfortunate that they been running amok.
 
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