Cochlear recalls Nucleus CI500

Daredevel7 said:
A sincere question for you all:

Do you simply don't want to hear it when a parent talks about the success of their deaf child while they are brought up orally/AVT/Cued/whatever that is not ASL based and they stand by their choice? Would you promote a AD ban of this type of talk? Seems like most people here think those parents are:

1) Delusional and are only damaging their child.
2) Forcing their audist/oral/whatever beliefs on us.
3) Trolling.

Based on responses to those type of posts, seems like they provide no nutritional brain food whatsoever. Ban those type of posts from AD or not?
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Success stories are great.. I have no problem with it. I asked a few questions and basically gotten no answers. I just felt a twing when.. Cloggy stated that his little girl ran home for a fresh pair of batteries. Yes, she knew where to go to get them.. but the reason behind it was out of fear of not being able to hear and missing out or whatnot.

He has a right to raise his child how he wants to. It is his child afterall.

He post in here, and responds to the others post so he will get feedback. Positive or negative.

This thread is about recall on a CI, Not about Cloggy's child in the first place.
 
DeafCaroline said:
It's not that we don't want to hear the successes of AVT - we get concerned when ASL (or other sign languages) is intentionally left out of a deaf child's upbringing. It's what we've been saying the whole time.
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I'm not sure if you know this, but FJ, CSign, Grendel (3 out of 4 parents who are currently ruffling feathers :), to my recollection ) all use ASL or some form of signing with their children, and there's still quite a bit of animosity towards them, especially when they talk about their child "listening", something about the CI, and AVT.

So I think it's quite obvious that it may not have to do with "ASL being intentionally left out". It could be because they talk about the success of AVT instead of ASL, talking about their child "listening", etc.

That is my point. The fact that they ruffle people's feathers because they talk about success of AVT/CI/oralism or whatever, even if they still include ASL. So I'm wondering if people simply don't want to hear it.
 
Daredevel7 said:
I'm not sure if you know this, but FJ, CSign, Grendel (3 out of 4 parents who are currently ruffling feathers :), to my recollection ) all use ASL or some form of signing with their children, and there's still quite a bit of animosity towards them, especially when they talk about their child "listening", something about the CI, and AVT.

So I think it's quite obvious that it may not have to do with "ASL being intentionally left out". It could be because they talk about the success of AVT instead of ASL, talking about their child "listening", etc.

That is my point. The fact that they ruffle people's feathers because they talk about success of AVT/CI/oralism or whatever, even if they still include ASL. So I'm wondering if people simply don't want to hear it.
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Hmm...I think it's more of a reaction to specific posts made by hearing parents of CI kids, not an overall reaction to parents talking about the success of their deaf kids' AVT.
 
DeafCaroline said:
Oh, is that where GrendelQ's statistics came from? ;)
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I didn't provide stats. If you do have stats that show my perception that there are more oral deaf/hoh than ASL deaf/hoh out there is off -- a perception I've formed from what I thought was knowledgeable discussion provided by Deaf ADers -- please provide. This would help me immensely. But in past threads, comparisons of # of deaf from various sources vs. # ASL users, variable as those numbers are, show that a minority of deaf/hoh use ASL as their primary language, whether native or late-acquired. Again, though, I'm very eager to see any stats or data on the subject.

I'm also looking into a placement breakdown, across mainstream, inclusion, self-conained, oral deaf, bi-bi, TC programs.
 
GrendelQ said:
I didn't provide stats. If you do have stats that show my perception that there are more oral deaf/hoh than ASL deaf/hoh out there is off -- a perception I've formed from what I thought was knowledgeable discussion provided by Deaf ADers -- please provide. This would help me immensely. But in past threads, comparisons of # of deaf from various sources vs. # ASL users, variable as those numbers are, show that a minority of deaf/hoh use ASL as their primary language, whether native or late-acquired. Again, though, I'm very eager to see any stats or data on the subject.

I'm also looking into a placement breakdown, across mainstream, inclusion, self-conained, oral deaf, bi-bi, TC programs.
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if you didn't have stats to provide, then why did you claim the vast majority of D/deaf recommend oral education and are pro HAs/Cis?
 
Daredevel7 said:
A sincere question for you all:

Do you simply don't want to hear it when a parent talks about the success of their deaf child while they are brought up orally/AVT/Cued/whatever that is not ASL based and they stand by their choice? Would you promote a AD ban of this type of talk? Seems like most people here think those parents are:

1) Delusional and are only damaging their child.
2) Forcing their audist/oral/whatever beliefs on us.
3) Trolling.

Based on responses to those type of posts, seems like they provide no nutritional brain food whatsoever. Ban those type of posts from AD or not?
Click to expand...

They can go to their ci forums. I am not there to post at all. Do you see any "Free Faire Jour" "Free Rick48" Grendel, Csign, Cloggy...... Nope. The only time you saw that was from Cloggy saying it once in a post.

That should show you something.
 
DeafCaroline said:
if you didn't have stats to provide, then why did you claim the vast majority of D/deaf recommend oral education and are pro HAs/Cis?
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Because that has been discussed by ADers many times on this board. I didn't realize there was even a question about whether or not the majority of those who are deaf/hoh use ASL. I've always read that an issue we are facing is that far too few use ASL and we need to promote the language among deaf/HoH.

So, let's question that. Does anyone have data that shows a language breakdown among adult deaf/hoh, indicating what language is primary?
 
And I've gotten angry PMs from these parents who accuse me of trolling after I post a deaf story about myself. I've shared stories and be told to go eat green brownies. I don't think there's a sincere interest from these parents in learning much from us. :)

Edit: you may be playing Devil's Advocate, DD, but you're not exactly being productive in doing so, hm? Fanning some flames, it would seem.
 
Babyblue said:
Yes, she knew where to go to get them.. but the reason behind it was out of fear of not being able to hear and missing out or whatnot.
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Which is not a precious thing to see at all. Children being "afraid" of not being able to hear, but that's only because they were raised in a specific manner where they are told that hearing is important and they do get that impression after having to attend AVT sessions on so many occasions.
 
AlleyCat said:
And I've gotten angry PMs from these parents who accuse me of trolling after I post a deaf story about myself. I've shared stories and be told to go eat green brownies. I don't think there's a sincere interest from these parents in learning much from us. :)

Edit: you may be playing Devil's Advocate, DD, but you're not exactly being productive in doing so, hm? Fanning some flames, it would seem.
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You're not the only one. I know of at least a few.

Several of these PM's have had these parents CUSSING innocent people out. I mean, really?
Oppressive much I'd say.
 
GrendelQ said:
Because that has been discussed by ADers many times on this board. I didn't realize there was even a question about whether or not the majority of those who are deaf/hoh use ASL. I've always read that an issue we are facing is that far too few use ASL and we need to promote the language among deaf/HoH.

So, let's question that. Does anyone have data that shows a language breakdown among adult deaf/hoh, indicating what language is primary?
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Again, how did you come to the conclusion that the vast majority of the deaf endorse oralism/mainstreaming and are pro HAs/CIs?
 
Banjo said:
Which is not a precious thing to see at all. Children being "afraid" of not being able to hear, but that's only because they were raised in a specific manner where they are told that hearing is important and they do get that impression after having to attend AVT sessions on so many occasions.
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The fear of not be able to hear.... hit home. I used to feel that way when I was a child. It is not a good feeling to have.. I felt good and still feel good to be able to hear. The difference between now and then. Is not I am not afraid to take out my hearing aids or if my battery dies, when I am out in the hearing world.
 
Babyblue said:
The fear of not be able to hear.... hit home. I used to feel that way when I was a child. It is not a good feeling to have.. I felt good and still feel good to be able to hear. The difference between now and then. Is not I am not afraid to take out my hearing aids or if my battery dies, when I am out in the hearing world.
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Ditto.
 
Even today I get "concerned" when I don't have fresh HA batteries on me. It's no big deal whatsoever at home or with family or friends, I can communicate with my SO and family in many ways, easily. But at work or classes? I feel an anxiety. So a CI battery dying must feel the same way.
 
AlleyCat said:
Even today I get "concerned" when I don't have fresh HA batteries on me. It's no big deal whatsoever at home or with family or friends, I can communicate with my SO and family in many ways, easily. But at work or classes? I feel an anxiety. So a CI battery dying must feel the same way.
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Many years of programming while you were a child, I bet.

The big reason I stopped using my hearing aids: My mom said that it broke and was sent into for repairs. I did not have any hearing aids on at the time. Nobody was telling me to check it for feedback, batteries, etc etc.. They all knew it was broken. I felt free.

The minute my mom went in to pick my hearing aids up and paid the repair bill - i told her "I am not going to use it anymore."

The part I appreciated the most: She sucked it up.
 
posts from hell said:
They can go to their ci forums. I am not there to post at all. Do you see any "Free Faire Jour" "Free Rick48" Grendel, Csign, Cloggy...... Nope. The only time you saw that was from Cloggy saying it once in a post.

That should show you something.
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Exactly.. isn't that pretty much saying:

"I don't want to hear it. Talk about it in the CI forums."

So...... should we ban this type of talk? Do the majority of people here NOT want to hear it at all on AD?
 
Daredevel7 said:
Exactly.. isn't that pretty much saying:

"I don't want to hear it. Talk about it in the CI forums."

So...... should we ban this type of talk? Do the majority of people here NOT want to hear it at all on AD?
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No. Want me to show you a thing or two?
 
AlleyCat said:
Hi FF, no, I learned ASL, English, and speech skills all at the same time. I am very glad to have learned both ASL and English right off the bat. I didn't know a lot of orals growing up, no.
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DeafCaroline said:
I am meeting them recently. About 3 weeks ago, was at a deaf get together and half of the people there went to an oral school and they all learned sign after graduation. At the deaf meet, everyone was signing and not talking except in some cases, with waiters. Also, the deaf school/org where I'm taking ASL, enrollment of oral students (from a different school for the deaf, oral only, no signing allowed) in their afterschool literacy program is on the rise. Quite telling, I think.
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Interesting. SImiliar as what my hub was going through it. He told me that he likes signing better even though he feels that he doesnt sign very well like me. He signs fine but in english sometimes. He does try to sign ASL rather than english to make sense to him dependin on what issue is all about.
 
AlleyCat said:
Even today I get "concerned" when I don't have fresh HA batteries on me. It's no big deal whatsoever at home or with family or friends, I can communicate with my SO and family in many ways, easily. But at work or classes? I feel an anxiety. So a CI battery dying must feel the same way.
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It's funny, I'm more anxious when I have hearing aids on for two reasons: hearing people thinking I can hear as well as I can speak which leads to misunderstandings and sometimes poor communication efforts on their part.

Second reason is because I don't always recognize what I hear or where it's coming from so it makes me wonder what Im missing out on and whether I should not be missing out.

Without hearing aids, people make more of an effort to enunciate and make sure I am facing them and they don't talk as much - phew! hearing people talk way too much.
 
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