Cochlear recalls Nucleus CI500

KristinaB said:
As I was not 9 when I lost all of my hearing I can not say. All I can say is, that as I was losing my hearing, I basically taught myself to read lips. Lotte does that. Have a look in her blog, search for "Take off the ears"
I have a hearing family and grew up in a hearing family. We did not know about anything for the hard of hearing or deaf except that I did have HA's from age 7-10 and not again until 38. Lotte had HAs from 1, CI from 2¼.
For me, it was sink or swim. Lotte swims... happily, not due to extreem choices.. She loves to swim..

All I am saying is, don't sell your child short. Never..
If she did not have any amplification, but sis have ASL or whatever sign is in your country, she will learn to adapt and go from there. Most children can learn to adapt. And with whom will she use sign?
Even those with multiple disabilities learn to adapt. I remember days when my HA batteries died, I removed them, put them into a cloth bag I was given and then put that into my lunch box until I could go home. Home at that time was 13 miles from school, so I couldn't run there. Life is a lot about adapting to your surroundings. And she did, she does, she will...
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:cool2:
 
Jiro said:
ah then you're saying your daughter with CI is like a hearing person?
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You get that conclusion from:

Jiro: "so you're telling me you prefer verbal communication over ASL with your own child...."
Cloggy: "Yes"
Jiro concludes: "then you're saying your daughter with CI is like a hearing person"

Impressive..... in a sad way..
Do you fabricate these conclusions yourself?
 
I will just say this and know that I may create a firestorm or not, but I will deal with it. Most here on AD know what I mean.

I do not think a HA or CI in the "end all and be all" of a child's or even anybody's being. If it helps, fine, but don't rule out life if it's not available for whatever reason. Find a way to live anyway you can. If there is no one around to sign with, then teach it to a friend as you learn or help that friend to learn. They will learn a whole new language and you will be able to speak and sign with that person. When I was younger, all my friends and I were each trying to copy things we each did. It can be the same with sign language in any language. I wish I had the opportunity to learn at a young age.
 
DeafCaroline said:
Since you're not using sign with your daughter, I would imagine it's very limited to her as a form of communication. From what I gather, you don't see much point in her learning it since she doesn't go to a deaf school, doesn't have deaf friends nor deaf relatives.Yes... and learning two languages at the same time is already a big task... Sign can come later.

You feel as long as there's a charged battery, there's no need. She hears well, she speaks well. What's the big fuss?Precisely

I keep thinking alot about my ASL teacher. He's young, deaf, and one of the most positive people I've come across. He strikes me as a really happy confident person who has a great sense of humour and has the ability to not just communicate with but touch people on a personal level, whether they know ASL or not. People that do not know ASl can do that as well..
I've never heard him speak a single word, not that he needs to anyway. It was his positivity and absolute ease with deafness that impressed me the most. I couldn't take my eyes off him in class, I was so fascinated and gratified to see that deafness is just another state of being, it's not something broken, it's not something sad, it's not something that needs to be suppressed as much as possible. It's just a way of life, that's all.How well does he do in a mainstream school?

The most beautiful thing of all was to see his self-confidence. Because deafness is not an issue for him, it's not an issue for anyone else. His ease and warmth overcomes language barriers. He doesn't need a battery to function.Sounds like a wonderful guy.. Would love to meet him... Lotte would love him as well.

While yes, having hearing is nice and being able to speak and hear people with a working CI is nice, it would be truly a wonderful thing if she can also gain that same confidence as a deaf person in a hearing world so she wouldn't need to run home for backup hearing. Not hearing in a mainstream school, with her hearing friends... How would that help her?
It would especially serve her well in life not to feel like she's the only deaf person she knows. One can never get over the sense of feeling estranged from society as a whole when they've no community of their own. Your daughter has a magnet on her head, believe me, she's already aware she's not the same as hearing people even if she can hear nearly as well with them....provided the battery's working. No community of her own?? She has a huge community...
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:cool2:
 
KristinaB said:
I will just say this and know that I may create a firestorm or not, but I will deal with it. Most here on AD know what I mean.

I do not think a HA or CI in the "end all and be all" of a child's or even anybody's being. If it helps, fine, but don't rule out life if it's not available for whatever reason. Find a way to live anyway you can. If there is no one around to sign with, then teach it to a friend as you learn or help that friend to learn. They will learn a whole new language and you will be able to speak and sign with that person. When I was younger, all my friends and I were each trying to copy things we each did. It can be the same with sign language in any language. I wish I had the opportunity to learn at a young age.
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I hear you..
And she will learn to sign.. in time..
 
Cloggy said:
You get that conclusion from:

Jiro: "so you're telling me you prefer verbal communication over ASL with your own child...."
Cloggy: "Yes"
Jiro concludes: "then you're saying your daughter with CI is like a hearing person?"

Impressive..... in a sad way..
Do you fabricate these conclusions yourself?
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that wasn't a conclusion. Did you conveniently disregard a question mark at the end of my sentence? See above for a correct and exact post.

Let's not fabricate my question into a conclusion. That's a dishonesty.
 
Cloggy said:
:cool2:
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well then.... I guess you got it all figured out. she can hear and talk like a hearing person. she can communicate with hearing people. case closed.

you have no questions nor are seeking for more information about deaf culture and sign language. so why bother stirring up drama with us?
 
Jiro said:
well then.... I guess you got it all figured out. she can hear and talk like a hearing person. she can communicate with hearing people. case closed.

you have no questions nor are seeking for more information about deaf culture and sign language. so why bother stirring up drama with us?
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Drama? There's drama? .. where?

Jiro said:
for what purpose?
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Probably to satisfy her curiosity.
 
Jiro said:
well then.... I guess you got it all figured out. she can hear and talk like a hearing person. she can communicate with hearing people. case closed.

you have no questions nor are seeking for more information about deaf culture and sign language. so why bother stirring up drama with us?
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Well said!!
 
Jiro said:
that wasn't a conclusion. Did you conveniently disregard a question mark at the end of my sentence? See above for a correct and exact post.

Let's not fabricate my question into a conclusion. That's a dishonesty.
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Of course it's a conclusion... and you want to have it confirmed so you need a questionmark...
 
Cloggy said:
Of course it's a conclusion... and you want to have it confirmed so you need a questionmark...
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the fact still remains that once there's a question mark, it isn't a conclusion nor statement. You can either deny it or confirm it... or correct me if I'm wrong therefore a question cannot be a conclusion nor a statement.
 
Cloggy said:
Drama? There's drama? .. where?

Probably to satisfy her curiosity.
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**Notice** This is a question... not a conclusion nor statement.

Do you have it all figured out for your daughter since she can hear and talk like a hearing person? Is there any other question you have for us deaf people since we have experience and some of us have CI/HA?
 
Jiro said:
well then.... I guess you got it all figured out. she can hear and talk like a hearing person. she can communicate with hearing people. case closed.

you have no questions nor are seeking for more information about deaf culture and sign language. so why bother stirring up drama with us?
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Exactly what we've been saying all along. Those 4 came here from CI Circle with no purpose towards the Deaf, no intent to ask questions of the Deaf, no interest in learning about us, don't bother participating in any threads except CI threads. Nothing from them has contributed to any value here. Drama? Yes, indeedy. You hit the nail on the head. it's no wonder 2 of those 4 are now banned. More coming?
 
Beach girl said:
Nothing works forever. So? Her CIs work for her right now; all she needed was a fresh battery. She knew where to go to get one, and she did it.
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Then why not have both ASL and speech? Why just one...which tends to be speech?
 
Seems like with many of these parents except for 2, ASL gets put on the back burner. I guess it is not as valued as much we value it hence all the arguments.
 
alleycat said:
exactly what we've been saying all along. Those 4 came here from ci circle with no purpose towards the deaf, no intent to ask questions of the deaf, no interest in learning about us, don't bother participating in any threads except ci threads. Nothing from them has contributed to any value here. Drama? Yes, indeedy. You hit the nail on the head. It's no wonder 2 of those 4 are now banned. More coming?
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lol!!!!
 
Cloggy said:
Well written....

But you were asking about Lotte.....

She has no problem walking around deaf until other people get up in the morning. She will play alone, including singing and talking to dolls, who talk back. When others get up, she wants to hear and will put her CI on.. In the evening she will happily give the CI to us to hang the at the storage space, and will go to sleep..

A couple of days ago she ran home from school... One battery had gone dead, and she feared that the other would soon give up, so she ran home to change batteries ASAP..
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That's a pretty powerful testimonial. I've seen people challenge you about whether or not you've asked Lotte if she wants to hear, likes to hear. Although I think they'd suspect any positive answer, insisting she was answering to please you. But her own actions give us her true answer, on her own initiative, she goes out of her way to ensure she has the tools she needs to hear. Because she really wants to.

I see the same with my daughter. We spent some afternoons at the pool with several Deaf families, and I figured that among people who were only signing, and in and out of the water, she would be willing to let me pack away her CIs. And, around these families many of us with kids who use CIs tend to really downplay the CIs, often slipping them off at playdates and parties. But she made such a fuss each time -- even though no one in our group around her would be speaking, she wanted to hear strangers, the sounds around her, insisted on wearing them. Definitely not out of any fear or lack of access -- like Lotte, she just really likes to hear.
 
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