Cochlear Implant Patients.

[Banjo]

Gee, talk about being holier than thou!

 

[LinuxGold]

This is like oil to water, they will NEVER get along.

 

[zebadee2010]

You are a nasty little boy aren't you? Anij is one of the nicest people here and was only trying to help you.

No offense but I usually consider people telling me that my life will never be normal again, and there are so many downsides to a CI, to be a person with a negative attitude towards something.

If I told you that you are going to die eventually, you would probably think I was some sort of evil creature.

I know there are parts that are true, I know I need to be careful and such but that doesn't take away the fact that CI will help.

Correct me If i'm wrong, but i don't see how anything she said was positive.

 

[Banjo]

Correct me If i'm wrong, but i don't see how anything she said was positive.

You are being negative, she isn't. She's being realistic, you aren't. Setting unrealistic expectations will do more harm than good.

 

[deafgal001]

What she wrote is realistic expectation. it is either negative or positive.

 

[zebadee2010]

You are being negative, she isn't. She's being realistic, you aren't. Setting unrealistic expectations will do more harm than good.

She is setting safe expectations, I am setting realistic expectations.
I know that I will have to adopt but telling me that me hearing will never be normal while it may be somewhat truthful, I consider it negative.
If all manufacturers went buy were safe designs, we wouldn't have cars today.
Cars can be designed safe but the user is what makes it unsafe.

CI's are designed to bring back hearing, particularly speech. But in the past few years they have extended this to music as well although very limited. I'm taking this technology and i'm going to push it to get as much out of it as I can.

And I do UNDERSTAND that I won't be able to hear with it off. that isn't my current concern. I just want to be able to communicate again.

 

[deafgal001]

all she mentioned that you have a long journey ahead of you. not every late deafened hear perfectly overnight with CI. CI is not your only solution for deafness either.

 

[jillio]

She is setting safe expectations, I am setting realistic expectations.
I know that I will have to adopt but telling me that me hearing will never be normal while it may be somewhat truthful, I consider it negative.
If all manufacturers went buy were safe designs, we wouldn't have cars today.
Cars can be designed safe but the user is what makes it unsafe.

CI's are designed to bring back hearing, particularly speech. But in the past few years they have extended this to music as well although very limited. I'm taking this technology and i'm going to push it to get as much out of it as I can.

And I do UNDERSTAND that I won't be able to hear with it off. that isn't my current concern. I just want to be able to communicate again.[/QUOTE]

And there are many options for that. You might want to consider refining your communication methods. You don't seem to be doing a great job as coming off as anything but judgemental and angry.

 

[zebadee2010]

all she mentioned that you have a long journey ahead of you. not every late deafened hear perfectly overnight with CI. CI is not your only solution for deafness either.

Actually it pretty much is, if i want to have a chance at pursuing my current career. While I can do numerous careers. I really love the one I have chosen. And loving what you do is a great key to success!

 

[deafgal001]

Actually it pretty much is, if i want to have a chance at pursuing my current career. While I can do numerous careers. I really love the one I have chosen. And loving what you do is a great key to success!

I wish you well and successful surgery. But keep a open mind that there are many doors out there for you.

 

[purplewowies]

The job i'm going to be working is a christian winter conference. I'll be doing the words on the screen for the song lyrics. I don't have to be able to distinguish different pitches and such just overall lyrics.

Also the cochlea damage is only to one ear, and for the person who asked I got it from hitting my head on concrete floor from a 3 1/2 foot drop. They say that my right ear is just fine, minus the hearing part.

I don't need a therapist or psychiatrist. I'll be just fine without one. I feel as though you don't have one of these and just look down upon them as I have found out many people are able to understand speech upon activation day.

Working hard is the only way to success, and I feel that this helps my chances a lot more than just taking it slowly! I also think that its dumb to say have a discussion with my audiologist because right now I cant hear!

As for the time being I think that i'll be fine without an alarm clock, I don't see why I couldn't wear it at night. And as for a visual alarm clock, or a visual smoke/fire detector. I don't see how either of these would help me while i'm asleep.

I've never been a sports person and now i'm out of high school so i don't really have any teams i could play for if i wanted too. I'm a nature person, I like taking pictures and playing xbox or messing on the computer.

And sure I'll be "deaf forever" when its off, but when its on i'll get to continue to see the world with sound. Its been so hard for me not being able to hear anything. I can barely walk because I can't hear anything. I'm putting all of this in God's hands. If he wants me to hear in time to work it will be so. If he doesn't that will also be so. He is the great Physician. He is the ultimate Doctor who can heal and do anything if He wants.

Is it likely that after a year my natural hearing will come back? No.

Does that mean its not possible? No.

So until then I'm going to stick with my God and let him guide me.
It must suck when all you have to do in life is try and put someone else down..

Wow, that was mean. Mean enough to inspire me to actually make a post here.

1. I don't think she was saying that you desperately NEED a psychiatrist or therapist, just that having one may help you figure out some things (feelings, stuff like that, even just support). Kids don't NEED schoolteachers to learn things, but a teacher can certainly help with learning by teaching and even just listening/conversing.

2. Paper and pen/whiteboard discussion with audiologist? Computer/word processor discussion? Heck, even a texting discussion, if possible and nothing else works.

3. I think you'd be better off with a tactile/visual alarm, because even if you intend to leave the CI on, Murphy's law will try its hardest to prevent that from happening. And a visual alarm clock/fire alarm works by flashing lights in your face, which should wake you up. I'm hearing and I won't wake up if a train's running through my room, but if you turn on my light, I'm up in a flash.

But you can go without it. That's your perogative.

4. It is next to impossible that your implanted ear will ever get sound back (due to the nature of the implant) unless some sort of new technology/science is created/discovered.

It must suck when all you have to do in life is try and put someone else down..

The message this came from felt like you were writing it to hurt the other person, because it came off as malicious and stuck-up. The message you quoted in that message had no such air. It was just a message offering facts and advice.

Whatever you do, I'd still learn ASL. Even if you never intend to need it (and even if you never do need it), it's still an awesome language and opens up your world to people you might have never talked to before the same way that any other language opens you up to new people and experiences.

 

[zebadee2010]

Well I wish you well. But keep a open mind that there are many doors out there for you.

Thanks, I just feel that ASL is completely impractical for what i'm doing. ASL has its uses and concerts isn't one of them. Not to say songs can't be expressed using ASL.

And CI is my only option because hearing aids didn't help at the audiologists. and I could hear absolutely nothing. I could just feel one of the tests.

 

[jillio]

Actually it pretty much is, if i want to have a chance at pursuing my current career. While I can do numerous careers. I really love the one I have chosen. And loving what you do is a great key to success!

Why can't you pursue the career you have chosen? There are very, very few careers that the deaf cannot pursue with accommodation. And accommodation is usually very simply achieved.

 

[deafgal001]

zebadee2010's passion is music. She can still do it. CI or not. This Jazz singer did: Mandy Harvey :: Jazz Vocalist

 

[zebadee2010]

And there are many options for that. You might want to consider refining your communication methods. You don't seem to be doing a great job as coming off as anything but judgemental and angry.

I'm not meaning to come off as angry and i'm not trying to be judgmental at all. But essentially I am angry. For someone born deaf or taking it on at an early age you probably weren't as angry but as for me it just happened two months ago, i'm still really frustrated.

 

[deafgal001]

I'm not meaning to come off as angry and i'm not trying to be judgmental at all. But essentially I am angry. For someone born deaf or taking it on at an early age you probably weren't as angry but as for me it just happened two months ago, i'm still really frustrated.

well, it's ok to be angry but don't come in here and pity us by saying "you missing alot" - to me that's judging lifestyle of other deaf people.

 

[zebadee2010]

Why can't you pursue the career you have chosen? There are very, very few careers that the deaf cannot pursue with accommodation. And accommodation is usually very simply achieved.

My current job is to listen to a singer singing (In real time) and change the words showing on screen before he finishes singing. I'm almost positive that this can't be done. And if it can it seems like i would be better to just not work than to have to pay someone to accommodate me.

People aren't going to want to hire me just to have to hire an accommodator. The job i described is currently (15-18yrs old) I was/ am in school to become an actual sound guy or light guy for concerts. Getting hired for one of these is even less likely if i can't manage things on my own.

 

[Bottesini]

I'm not meaning to come off as angry and i'm not trying to be judgmental at all. But essentially I am angry. For someone born deaf or taking it on at an early age you probably weren't as angry but as for me it just happened two months ago, i'm still really frustrated.

Part of the reason you should seek therapy as suggested by Anij.

As born deaf, I still have lots of frustration, but anyone late deafened has a huge adjustment to make.

And the way you are spreading your unrealistic hopes hostilely around here, you need to have a therapist lined up for when you get your CI>

Actually I thought you had to have it before you got the CI.

 

[jillio]

I'm not meaning to come off as angry and i'm not trying to be judgmental at all. But essentially I am angry. For someone born deaf or taking it on at an early age you probably weren't as angry but as for me it just happened two months ago, i'm still really frustrated.

Actually, I'm hearing. My son was born deaf. And anger is a natural process with acquired deafness. It is to be expected. You are facing a huge life change. I would just encourage you to work through that anger so that you can get on with the adjustment process. It will make your journey so much easier.

You might want to take a peek at the thread for late deafened in the culture forum. I started that thread as an informal form of support for those that have lost their hearing. As you said, your issues are very different from those that come up with someone who is born deaf. The members that post there have varying lengths of deafness and varying degrees, but they all understand what you are going through and can share some valuable experience with you. Stick around. People here can help you with that adjustment as long as you are open to just considering what they have to share.

 

[jillio]

My current job is to listen to a singer singing (In real time) and change the words showing on screen before he finishes singing. I'm almost positive that this can't be done. And if it can it seems like i would be better to just not work than to have to pay someone to accommodate me.

People aren't going to want to hire me just to have to hire an accommodator. The job i described is currently (15-18yrs old) I was/ am in school to become an actual sound guy or light guy for concerts. Getting hired for one of these is even less likely if i can't manage things on my own.

Light guy is a reasonable expectation. But even with a CI, the chances of being able to work as a sound man is slim. There are very few hearing people that have the ability to determine pitch and blend and hear harmonies. That kind of an ear is rare even for the hearing. I'm not trying to discourage you; just point out some realities for you to consider.