Baby's reactions to their with cochlear implant

faire_jour said:
And the babies wear hearing aids before their CI's too.
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At 6 months? How does anyone know how much the baby is benifitting from the HAs at 6 months?
 
naisho said:
There's the issue people are having with your statements.

Others think more along the lines of while someone is deaf, hearing is a privilege (and personal decision) - not a right.
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My daughter had hearing and she lost it. She told me that she wanted to hear more. I believe it was my duty to give her the opportunity to get back some of what she lost, and give her the chance to have access to spoken language and sound.
 
faire_jour said:
And the babies wear hearing aids before their CI's too.
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Ask a deaf person who never wore their hearing aids but can hear something ... they will tell you it sound horrible. (my grandma sister told me this, She have the same genetic deaf as my sister and I do) -- therefore, I just don't think CI should rush. They may just hear static for awhile. so much for window of opportunity and taking a risk before 12 months.

HA should be is fine until surgery.
 
naisho said:
There's the issue people are having with your statements.

Others think more along the lines of while someone is deaf, hearing is a privilege (and personal decision) - not a right.
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Yea....
 
faire_jour said:
Through testing with an experienced audiologist.
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Audiologists are so biased..they determined that I could hear well enough with my HAs that I ddint need ASL...how wrong they were!
 
faire_jour said:
But research shows that the earlier they get it, the better they hear, so by telling them to wait, you are choosing to have them get less benefit. Just because you are uncomfortable with it, you are making them receive less benefit. Why should your comfort override their right to be allowed the opportunity to hear? It isn't your body, or your child, why should it be your decision?
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I assure you that most boys don't remember if they had circumcision when they were newborn. same thing for babies don't remember if they wore HAs before they got ci right before 12 months old. So they could not compare to hear the sounds between HAs and CIs.
 
shel90 said:
Audiologists are so biased..they determined that I could hear well enough with my HAs that I ddint need ASL...how wrong they were!
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They show the parents the aided audiogram and explain where speech lies in comparison to what the child can hear and the parents decide if they want the child to have access through hearing aids or if they believe that the aids are not affective enough for their child to access spoken language.

(But none of this applies if the parents do not care if the child can access spoken language, if it is not a priority for that family)
 
faire_jour said:
Through testing with an experienced audiologist.
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how?

i remember audiologist constantly asked me if i can hear because they thought i could hear which I did but i ignored it because i was so tired of taking tests over and over since i was a kid. I pretend not to hear anything in order to get over with the tests. then they gave me the hearing aids, then i told them to fix it while they were puzzled. i m sure that every babies would response differently that audiolgist could not tell the differences. Audiologists are not in babies hearing.
 
faire_jour said:
They show the parents the aided audiogram and explain where speech lies in comparison to what the child can hear and the parents decide if they want the child to have access through hearing aids or if they believe that the aids are not affective enough for their child to access spoken language.

(But none of this applies if the parents do not care if the child can access spoken language, if it is not a priority for that family)
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Ok..but in my experience and through with many other deaf people, that wasnt the case when it comes to audiologists.
 
Frisky Feline said:
how?

i remember audiologist constantly asked me if i can hear because they thought i could hear which I did but i ignored it because i was so tired of taking tests over and over since i was a kid. I pretend not to hear anything in order to get over with the tests. then they gave me the hearing aids, then i told them to fix it while they were puzzled. i m sure that every babies would response differently that audiolgist could not tell the differences.
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I'm not an audiologist but they play tones and watch for signs of the baby reacting. For an ABR, the child is asleep and they measure how the brain reacts to sound. The child doesn't react at all.
 
faire_jour said:
I'm not an audiologist but they play tones and watch for signs of the baby reacting. For an ABR, the child is asleep and they measure how the brain reacts to sound. The child doesn't react at all.
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Technology is not 100 percent reliable for babies (before 12 months old). We all know that technology is not always right. It definintely is a gambling for babies.

Some people can beat the polygraph testings to pass the test to get away with. It could happen to innocent babies when they could have hearing loss slightly in the first place.
 
Frisky Feline said:
Technology is not 100 percent reliable for babies (before 12 months old). We all know that technology is not always right. It definintely is a gambling for babies.

Some people can beat the polygraph testings to pass the test.
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(that's why they wouldn't let me use a digital BP monitor when I was a CNA-- for nursing home because they need to be heavily monitored--... they just didn't trust technology and I had to let hearing people take BP)
 
kokonut said:
No. That'd be inappropriate to try and compare my successful use of my hearing aids to other deaf/hh babies. Each baby is different in terms of amount of hearing loss and when intervention begins. I was outfitted with a hearing aid at age 2. I have a 70db loss in my right ear. I have no problem using the phone or field radios, and talking and/or listening to people while in a proper environment.
Kokonut Pundit: Adversity - a perspective from a deaf/hh person.
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I figure you were around that range. Mine is above 90 db loss in both ears.
 
Really? That may explain why he seems to pick up sounds better - he probably "remembered" what hearing was like?
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Yes, Off label implantation may work really well with babies who for whatever reason became deaf suddenly. I do think that's a BIG reason why there's been such a wide range of response to the implants. A baby who went deaf would have the memory of how to process sound and speech the way a hearing person would. Nothing wrong per se with implanting a kid who suddenly went deaf but then again......
I have to say that I still think it's VERY difficult to accurately tell how well a little baby can hear. Even with the BAER test, it can be VERY hard. I know of kids who scored as profound or severe on BAER but then scored as more hoh on audiotremy.
Every parent of a dhh kid (including profoundly deaf kids) will tell you that they will have times when they can hear vs. times when they can't.
 
A said:
I figure you were around that range. Mine is above 90 db loss in both ears.
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Mine is 110 to 120!!! :shock:

And I grew up without ASL! Stupid audiologists told my mom that I could function fine in the hearing world without sign language. :mad:
 
kokonut said:
No. That'd be inappropriate to try and compare my successful use of my hearing aids to other deaf/hh babies. Each baby is different in terms of amount of hearing loss and when intervention begins. I was outfitted with a hearing aid at age 2. I have a 70db loss in my right ear. I have no problem using the phone or field radios, and talking and/or listening to people while in a proper environment.
Kokonut Pundit: Adversity - a perspective from a deaf/hh person.
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I am under the impression that you are relieved that you did not have a CI. what if babies got the same scores as yours and doctors possibly ignore the testings or fda and go ahead to perform on innocent babies to get the huge foreign objects in their small skulls. How can the CI rates has been increasing steadily while doctors determines that babies are born deaf. :confused: They did not even give babies chances to try on their own hearings while they can be in speech therapy and take ASL and be interacting with the other kids who have the same group.
 
shel90 said:
Mine is 110 to 120!!! :shock:

And I grew up without ASL! Stupid audiologists told my mom that I could function fine in the hearing world without sign language. :mad:
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I always knew my hearing was pretty bad because growing up, I never could understand why I can't hardly hear anything without my hearing aids unless it is loud and close to my ears (like loud music with headphone.. even though it does sound kinda muffled in a way and not crispy sharp)
 
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