Baby born deaf will get 'bionic ears' that could help him hear and talk

Miss-Delectable

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A BABY boy who was born profoundly deaf after his mother had one of the most common viral illnesses during pregnancy is set to get bionic ears.

A BABY boy who was born profoundly deaf after his mother had one of the most common viral illnesses during pregnancy is set to get bionic ears.

Calum Tomlinson is on the waiting list for surgery at Nottingham's Queen's Medical Centre to fit him with implants deep inside his ear which could help him talk like a hearing child.

Mum Gaye did not realise she had been ill during pregnancy because she had no symptoms of the virus, which is so common it infects about half of all adults in the UK.

NHS Choices says cytomegalo virus, also known as CMV, is one of the most common viral infections but most people have no symptoms and so are unaware of it.

At present, 11-month-old Calum is coping with his disability by learning sign language and can already communicate around 20 words including "mummy", "food" and "train".

Gaye was told a fortnight ago that Calum would be given surgery within six to eight weeks.

The 33-year-old, of Greenacre Avenue, Heanor, said: "The idea is that he will understand speech but it will require a lot of therapy, which we are getting every two weeks in Oxford."

Tracey Twomey, head of service for the Nottingham Cochlear Implant Programme, said the technology was "quite miraculous, really".

She said: "I think it's life-changing. Some 20 years ago, profoundly deaf children were given the most powerful hearing aids, which were little more than an aid to lip-reading.

"Deaf children can still use sign language but for those who have the implants early enough in life, they can use the electrical signal to give enough sensation to be able to pick up speech and learn to talk."

It is estimated that between one and four babies in every 200 are born with CMV and, of those, a tenth have symptoms.

Gaye said: "I didn't feel poorly during pregnancy, I didn't know anything was wrong."

For the first few weeks of Calum's life, Gaye believed he was a healthy baby.

She said: "When he was in his cot and I walked around he woke up so I didn't think that he couldn't hear me. I realise now he would have felt the vibrations."

After four weeks, tests at Derbyshire Children's Hospital revealed he was deaf.

Gaye said: "I held Calum in my arms during the test and, after 80 minutes of testing, the doctor told us Calum was severely to profoundly deaf. It was a big shock."

Calum's uncles, Mark Lomas and Simon Tomlinson, and family friend Richard Irwin, are taking on the Three Peaks Challenge on June 25.

They are raising money for the CMV Support Group and for Calum to have three years of hearing therapy totalling £13,500.

To donate, visit www. calum-reece.co.uk.
 
First hearing aids, second CI then now bionic ears? How many more do these people have in their minds?
 
notice, as usual - "disability" and "coping" and "talk like a hearing child"

to me, all words implying "wrongness" and "less than".....

:mad:
 
I hate peopel force deaf children to learn oral! They trying to bash our deaf pride!
 
It's just a pity that one would have to compare a deaf child to a hearing child.
 
notice, as usual - "disability" and "coping" and "talk like a hearing child"

to me, all words implying "wrongness" and "less than".....

How would you re-write it? As a grammar and language maven (for good or for evil...), I'm always interested in how things could be expressed differently.

I've noticed that the Brits use "coping" quite a bit more in normal conversation than Americans do. My sister-in-law will say "We're coping with this heat wave" (if temps get above 72 degrees....) or "I'm trying to cope with all the planning for the new baby" (my niece- her daughter - is expecting) and things like that, where Americans probably would not phrase it like that. It doesn't come across as negative to me, since I'm used to hearing it so much from her in various contexts.
 
Yep

notice, as usual - "disability" and "coping" and "talk like a hearing child"

to me, all words implying "wrongness" and "less than".....

:mad:

You are so right. Why do ppl have to attach what are percieved by the general population as negative adjectives? They already have labeled this child as needing something else to be "acceptable"..this breaks my heart'
Midnight♥♥♥ :cool2:
 
Frankly, the article disgusts me in many ways. Particularly since, CMV deafness follows a particular audiographical pattern, and the vast majority of CMV deafened individuals retain a great deal of usable residual hearing that allows for good speech perception with HAs. And this is despite their actual dB levels placing them anywhere between the severe to profound range of actual loss.

The key word in the article is "could". There is no guarantee that he will be better off with a CI, or even not worse off with a CI, than with an HA. There is no guarantee of increase in dB levels, or of his learning to speak with a CI. This is a case of experimentation and is a result of the overwhelming audist nature of hearing society.
 
A BABY boy who was born profoundly deaf after his mother had one of the most common viral illnesses during pregnancy is set to get bionic ears.

A BABY boy who was born profoundly deaf after his mother had one of the most common viral illnesses during pregnancy is set to get bionic ears.

Calum Tomlinson is on the waiting list for surgery at Nottingham's Queen's Medical Centre to fit him with implants deep inside his ear which could help him talk like a hearing child.

Mum Gaye did not realise she had been ill during pregnancy because she had no symptoms of the virus, which is so common it infects about half of all adults in the UK.

NHS Choices says cytomegalo virus, also known as CMV, is one of the most common viral infections but most people have no symptoms and so are unaware of it.

At present, 11-month-old Calum is coping with his disability by learning sign language and can already communicate around 20 words including "mummy", "food" and "train".

Gaye was told a fortnight ago that Calum would be given surgery within six to eight weeks.

The 33-year-old, of Greenacre Avenue, Heanor, said: "The idea is that he will understand speech but it will require a lot of therapy, which we are getting every two weeks in Oxford."

Tracey Twomey, head of service for the Nottingham Cochlear Implant Programme, said the technology was "quite miraculous, really".

She said: "I think it's life-changing. Some 20 years ago, profoundly deaf children were given the most powerful hearing aids, which were little more than an aid to lip-reading.

"Deaf children can still use sign language but for those who have the implants early enough in life, they can use the electrical signal to give enough sensation to be able to pick up speech and learn to talk."

It is estimated that between one and four babies in every 200 are born with CMV and, of those, a tenth have symptoms.

Gaye said: "I didn't feel poorly during pregnancy, I didn't know anything was wrong."

For the first few weeks of Calum's life, Gaye believed he was a healthy baby.

She said: "When he was in his cot and I walked around he woke up so I didn't think that he couldn't hear me. I realise now he would have felt the vibrations."

After four weeks, tests at Derbyshire Children's Hospital revealed he was deaf.

Gaye said: "I held Calum in my arms during the test and, after 80 minutes of testing, the doctor told us Calum was severely to profoundly deaf. It was a big shock."

Calum's uncles, Mark Lomas and Simon Tomlinson, and family friend Richard Irwin, are taking on the Three Peaks Challenge on June 25.

They are raising money for the CMV Support Group and for Calum to have three years of hearing therapy totalling £13,500.

To donate, visit www. calum-reece.co.uk.

cool. best of luck to them... but I won't be donating any money :aw:
 
Frankly, the article disgusts me in many ways. Particularly since, CMV deafness follows a particular audiographical pattern, and the vast majority of CMV deafened individuals retain a great deal of usable residual hearing that allows for good speech perception with HAs. And this is despite their actual dB levels placing them anywhere between the severe to profound range of actual loss.

The key word in the article is "could". There is no guarantee that he will be better off with a CI, or even not worse off with a CI, than with an HA. There is no guarantee of increase in dB levels, or of his learning to speak with a CI. This is a case of experimentation and is a result of the overwhelming audist nature of hearing society.

Would it be the same for those born deaf because of rubella? I used to be able to talk to my mother on the phone years ago. I could talk on phone only with people that I am very familiar with.
 
Calum's Mum

Hi

I am the Mother of the baby in the article. After finding these posts on the internet and had to respond and clear a few things up.

Firstly 'Bionic ears' are indeed just cochlear implants.

Secondly, Calum does not get any useful hearing from hearing aids. Even at a recent party when balloons burst next to him with his hearing aids on he still didn't respond. At a recent ABR (automated brain response) hearing test and going up to 115db not one response was recorded. When Calum was a few weeks old he briefly opened his eyes to his brothers ear piercing squeals, but with CMV the deafness can be progressive.

I fully appreciate and feel extremely proud of my child, and am aware that he will always be deaf. However, the only way to get him hearing anything is for him to have cochlear implants. I am an extremely dedicated Mum and have researched my decision extensively.

Regards,

Mrs Gaye Tomlinson
 
Hi

I am the Mother of the baby in the article. After finding these posts on the internet and had to respond and clear a few things up.

Firstly 'Bionic ears' are indeed just cochlear implants.

Secondly, Calum does not get any useful hearing from hearing aids. Even at a recent party when balloons burst next to him with his hearing aids on he still didn't respond. At a recent ABR (automated brain response) hearing test and going up to 115db not one response was recorded. When Calum was a few weeks old he briefly opened his eyes to his brothers ear piercing squeals, but with CMV the deafness can be progressive.

I fully appreciate and feel extremely proud of my child, and am aware that he will always be deaf. However, the only way to get him hearing anything is for him to have cochlear implants. I am an extremely dedicated Mum and have researched my decision extensively.

Regards,

Mrs Gaye Tomlinson

I have a problem with the article itself and the society perception of which hearing is a must.

That is all. Nothing personal against you or your decisions.
 
Would it be the same for those born deaf because of rubella? I used to be able to talk to my mother on the phone years ago. I could talk on phone only with people that I am very familiar with.

Yes, actually. CMV deafness and rubella deafness show very similar patterns.
 
Hi

I am the Mother of the baby in the article. After finding these posts on the internet and had to respond and clear a few things up.

Firstly 'Bionic ears' are indeed just cochlear implants.

Secondly, Calum does not get any useful hearing from hearing aids. Even at a recent party when balloons burst next to him with his hearing aids on he still didn't respond. At a recent ABR (automated brain response) hearing test and going up to 115db not one response was recorded. When Calum was a few weeks old he briefly opened his eyes to his brothers ear piercing squeals, but with CMV the deafness can be progressive.

I fully appreciate and feel extremely proud of my child, and am aware that he will always be deaf. However, the only way to get him hearing anything is for him to have cochlear implants. I am an extremely dedicated Mum and have researched my decision extensively.

Regards,

Mrs Gaye Tomlinson

He is an infant. It is impossible at this point to tell how much he would be able to use his residual hearing with HAs.
 
Yes, actually. CMV deafness and rubella deafness show very similar patterns.

That's of interest. I never could speak on the phone with my HA. I guess even at age 7, (when I tried to use the phone) the sound was too distorted for me to use it. I have congenital rubella syndrome btw.
 
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