Anyone here is considering about getting an CI?

No thanks... My CI is too damaged but can't do anything for me except for HA on left ear...

Good luck to everyone who considered to get CI.
 
Good Luck to everyone who consider to have CI.

I accept what I am and happy that's way I am. Why should I change it?
 
Yea, that is what I thought too. Er...I couldn't be sure if she was pulling our legs... :D So, if that is indeed the case, more power to them.
 
R2D2 said:
Difficult decision Doofusmama - don't rush into it or let anyone push you - it has to be the right choice for YOU. In fact if you do decide to go ahead with one it might be best to keep quiet about it until the day of surgery so that your mum doesn't pressure you too much or crow about it and it leaves you free to change your mind if you want to.

Also there is a chance you may not have the same response as your friend even though you are so similar.

Maybe you could go through an evaluation only and then think about it. It would give you an idea about how much you are likely to benefit from a CI.
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I gave alot of thoughts, I know its going to be benefit for me.. cuz I was born hearing till i was 18 months old, I had DTP vaccines that I got fever and loss part of my hearings, I still can hear almost hearing people.. till i was about 15.. my hearings loss more and became deaf.. but I still do familar with sounds and surroundings with my HAs.. till 7 years ago, the HAs caused me some great pain headaches and mirgraintes.. then 3 years ago, got new HAs.. still not working.. so thats why.. I know that CI will be great benefits.. but I am like on seesaw board.. CI on the other side.. my mom on the other side.. just dont want my mom take wrong idea that I am doing this for her sake.. No, I am doing this FOR my sake..

Oh one more thing, since I lost more of my hearings, I always have fears surrounds me like someone behind me or in the dark or "quiet" it always creep me out.. for example... right now, I am working with my dog and the training, I have to go dog park to over come his fears around the other dogs, but I am afraid because I cant hear other dogs bark or snarl or go after me or dog.. so if i hear.. so i can be prepare.. or know that its there..
:)
 
DoofusMama said:
I gave alot of thoughts, I know its going to be benefit for me.. cuz I was born hearing till i was 18 months old, I had DTP vaccines that I got fever and loss part of my hearings, I still can hear almost hearing people.. till i was about 15.. my hearings loss more and became deaf.. but I still do familar with sounds and surroundings with my HAs.. till 7 years ago, the HAs caused me some great pain headaches and mirgraintes.. then 3 years ago, got new HAs.. still not working.. so thats why.. I know that CI will be great benefits.. but I am like on seesaw board.. CI on the other side.. my mom on the other side.. just dont want my mom take wrong idea that I am doing this for her sake.. No, I am doing this FOR my sake..

Oh one more thing, since I lost more of my hearings, I always have fears surrounds me like someone behind me or in the dark or "quiet" it always creep me out.. for example... right now, I am working with my dog and the training, I have to go dog park to over come his fears around the other dogs, but I am afraid because I cant hear other dogs bark or snarl or go after me or dog.. so if i hear.. so i can be prepare.. or know that its there..
:)
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Wow, sounds like you are a better candidate than me!

Yes, absolutely this has to be for your sake not your mum's sake. It would be a shame though if you wanted to do it for yourself but the only reason stopping you was your mum. It might be an example of another way in which she was still dominating your life?

You never know, it might be a sobering lesson for her if you decided and got a CI for yourself only. A lesson that shows her you are the one in control of your life and that you don't care what she thinks?
 
R2D2 said:
Wow, sounds like you are a better candidate than me!

Yes, absolutely this has to be for your sake not your mum's sake. It would be a shame though if you wanted to do it for yourself but the only reason stopping you was your mum. It might be an example of another way in which she was still dominating your life?

You never know, it might be a sobering lesson for her if you decided and got a CI for yourself only. A lesson that shows her you are the one in control of your life and that you don't care what she thinks?
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Yeah I agree that she is...
although I have been there where my parent tries to find a solutions to help me hear and finally settled on hearing aids. though that was back in 70's there is no CI but my parents did take me to a research center where they experimented on finding a way to restore hearing. It is like a crude cochlear implant but no surgery is involved, just acupuncture needles connected by a wire to the bulky equipments. it worked, I heard sounds thru that and it is interesting but I was only a boy. It is real interesting. I have thru 3 other methods that involves natural and religion healing and doesn't work.
Now, my parent pretty much gave up and settled on HA which I had grown up till I got CI.

So I WAS against it but as soon I researched into it and realized what I was fed at NTID were just rubbish. I decided to go ahead and get it not because what my parent wanted but because what I wanted. I looked at myself and my past like what I enjoyed and what environments I has been in like hanging out with hearings more often than deaf. (right now it is sort of balanced). So I end up having CI. and my family was impressed. I don't regret it and I loved it.

I am sure her mother will "ahh she did it for herself, not me" I guess.
 
Eyeth said:
Fragmenter- IMO, that's a poor reason for undergoing the CI procedure. I would counsel you and others similiarly situated, to consider the CI as a means of getting a chance to hear better, and not to show solidarity with your family members, or out of a certain family member's sake and/or respect.
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I don't think it's a poor reason when coupled with other reasons.

However, by itself, it is indeed a weak reason :)

I just want my son to look up to his dad and see that it's nothing to be embarassed of because I don't plan to stop shaving my head after I get mine (if I ever do).
 
Profoundly deaf from birth - 28yo HA user. I was told a long time ago (1980's) CI's would not improve my hearing beyond what it is with HA's. Didnt consider it again until 2005 when an audiologist asked me if I'd considered one as they have improved a lot.

Although my right and left ears show very similar hearing loss, the tests they did on my speech comprehension showed it was the same with only my left ear as it is with both. (I knew this already but there's no telling docs or parents!). So I have nothing to lose with getting my right ear implanted, my life will be just the same if it doesnt work. Any improvement, no matter how slight, will be a positive in my daily struggle at work and at home.
 
Here is update: Remember some of you challenged me about SSDI cut client who recieved the CI? You all don't believe me? Okay, here is good news!!! Last week there was supreme court hearing on this case of a deaf man who recieved CI and his SSD got cut off because of this. The supreme judges found a old law that prohibits SSA from using "aided" devices as determination of disability, hence SSA lost BIG time! Now SSA is required to pay back checks to this guy plus some damages. So, don't worry about this anymore :) Thank god he got his brother as a very good attorney.
 
I will get one when I feel 100% ready. Probably in a year or so. I am not in rush to get it. :) I will have to work on getting the funds to help me out. Or I'll wait till I am back on medicaid and let them pay for it. I ain't pay 40 to 60 K for it! PFHHT!
 
diehardbiker65 said:
Here is update: Remember some of you challenged me about SSDI cut client who recieved the CI? You all don't believe me? Okay, here is good news!!! Last week there was supreme court hearing on this case of a deaf man who recieved CI and his SSD got cut off because of this. The supreme judges found a old law that prohibits SSA from using "aided" devices as determination of disability, hence SSA lost BIG time! Now SSA is required to pay back checks to this guy plus some damages. So, don't worry about this anymore Thank god he got his brother as a very good attorney.
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That is great news! I was worried for a while but glad to hear the guy won. :) Right we will ALWAYS be deaf even with CI on? stupid ssa.. ugh! :)



LakeTahoe said:
I will get one when I feel 100% ready. Probably in a year or so. I am not in rush to get it. :) I will have to work on getting the funds to help me out. Or I'll wait till I am back on medicaid and let them pay for it. I ain't pay 40 to 60 K for it! PFHHT!
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I hope you will find funds for that and get help for that? Good luck! :)
 
i decide not to get CI
cuz i love silence too much lol

felix good luck with the surgery smile HUGS
 
Gwyddbwyll said:
Profoundly deaf from birth - 28yo HA user. I was told a long time ago (1980's) CI's would not improve my hearing beyond what it is with HA's. Didnt consider it again until 2005 when an audiologist asked me if I'd considered one as they have improved a lot.

Although my right and left ears show very similar hearing loss, the tests they did on my speech comprehension showed it was the same with only my left ear as it is with both. (I knew this already but there's no telling docs or parents!). So I have nothing to lose with getting my right ear implanted, my life will be just the same if it doesnt work. Any improvement, no matter how slight, will be a positive in my daily struggle at work and at home.
Click to expand...

It sounds like you could benefit from a CI evaluation. Hearing aids decline in their ability to provide clear sound input at high levels of deafness and there is much more flexibility with a CI at those levels.
 
diehardbiker65 said:
Here is update: Remember some of you challenged me about SSDI cut client who recieved the CI? You all don't believe me? Okay, here is good news!!! Last week there was supreme court hearing on this case of a deaf man who recieved CI and his SSD got cut off because of this. The supreme judges found a old law that prohibits SSA from using "aided" devices as determination of disability, hence SSA lost BIG time! Now SSA is required to pay back checks to this guy plus some damages. So, don't worry about this anymore :) Thank god he got his brother as a very good attorney.
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That's great!
 
LuciaDisturbed said:
That's great!
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Buckdodgers need get CI in both ears and his parent will pay it then he can hear to type on keyboard to make sentence looks perfectly with spacebar but I bet his mom will help him too.
 
I did think abt to getting the ci before but right now, I dont know I will want it or not. Two reasons are:

1.) I dont talk that really good and I dont read the lips that really good, too.

2.) My doctor from Tenn who did process CI for me warned my mom that its very risk for me, I could be retard when I get CI. (It got me afraid)
 
Sweetheart said:
I did think abt to getting the ci before but right now, I dont know I will want it or not. Two reasons are:

1.) I dont talk that really good and I dont read the lips that really good, too.

2.) My doctor from Tenn who did process CI for me warned my mom that its very risk for me, I could be retard when I get CI. (It got me afraid)
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Yea, I'm afraid about IQ will decline after get CI but not always for people depends on their body system.
 
Sweetheart said:
I did think abt to getting the ci before but right now, I dont know I will want it or not. Two reasons are:

1.) I dont talk that really good and I dont read the lips that really good, too.

2.) My doctor from Tenn who did process CI for me warned my mom that its very risk for me, I could be retard when I get CI. (It got me afraid)
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As for the first item, speech can get better and reading lips is actually easier if you can hear sounds to go along with it.


As for the second... *Scratching my head!* Something sure doesn't sound right here. The last thing a CI will do is effect anybody's intelligence. A CI has no impact on the brain itself beyond transmitting information to the brain. The surgery doesn't touch the brain either. I only thing I can think of is that you have additional issues like high blood pressure or a stroke risk. If you are reasonable healthy, then the risks are very small as in any surgery done on anybody which is why you sign those waver forms...
 
sr171soars said:
As for the first item, speech can get better and reading lips is actually easier if you can hear sounds to go along with it.


As for the second... *Scratching my head!* Something sure doesn't sound right here. The last thing a CI will do is effect anybody's intelligence. A CI has no impact on the brain itself beyond transmitting information to the brain. The surgery doesn't touch the brain either. I only thing I can think of is that you have additional issues like high blood pressure or a stroke risk. If you are reasonable healthy, then the risks are very small as in any surgery done on anybody which is why you sign those waver forms...
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we have been through this before in other thread which I mentioned "facial retardation" not "mental retardation" :dunno:
 
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