Wow, these stories all feel so familiar to me. I have known Sign for 20 years. I have had DEaf friends for almost that long. I have know for YEARS that I had a "hearing problem." The other day, I asked a (full) Deaf person about this stuff. He said, "You HOH." I decided to stop the denial of what I am. It's funny how the depression and anger has lifted!
I am HOH and proud
I am DEFGRL.
I'm HOH and was raised in the hearing world. I'm fifteen now and just found out about my hearing loss recently. But I was born with hearing loss. We just never caught it until now, because that was my first EVER hearing test. Luckily, my best friend is a CODA, (child of a deaf adult). Her parents and sister are deaf. So I can sign a little (very little). I'm learning slowly, and would like to be part of the deaf community someday.
It's hard for me during lunch at school, when my friends are talking, and it's jumping from one person to another, and there's just so much background noise. Since different people start talking, lipreading is hard. However, my hearing aids make it easier for me.
I just want to know what your experiences are like....such as talking to people in background noise, going to the movies, ordering food in the restaurant or dealing with customer service, talking on the phone, etc. (anything that hinders your ability to communicate/hear effectively)
I'm hard of hearing but I wear hearing aids and can pretty much hear what people say in favourable situations. I was raised in the hearing world and do not know too many deaf/hard-of-hearing people. I can lipread somewhat but I don't know sign language.
From my experiences, I find that it's extremely difficult for me to hear what other people say when there's a lot of background noise...I use an FM microphone device for one-on-one situations but group situations are pretty tough.
Do you have to deal with a lot of people who don't seem to understand what it's like to be hard of hearing? Do you sometimes get embarrassed or frustrated when you're not able to hear what other people say at times or when you're in a social situation (like a party or restaurant) and you can't follow the conversation...so you're basically out of the loop and not in tune with the conversation at all? I experience this constantly and I want to do something about it...maybe I need better hearing aids that helps to diminish the background noise (although they only work to a certain extent). Do you have any suggestions/tips to try to become more involved in social situations rather than being quiet the entire time?
Wow, I'm the OP for this thread and I had completely forgotten that I made this thread four years ago. But reading through all your posts for the past hour, it has made me relate to all of your experiences and has also lifted me, knowing that there are at least hundreds (maybe thousands) of people who share the same experiences that I have.
My advice is don't let the negative experiences and obstacles bring you down and stop you from achieving your dreams. Make people understand your situation; if they can't handle it, then that's their problem. I'm still 100% immersed in the hearing world and while I'm not completely satisfied with my life right now (I mean who isn't...everybody in the world's got issues, not just us HOH people), I'm glad that I've gotten this far, but I know that I still have a long way to go in my life.
I just recently graduated with a degree in Biomedical Engineering and my dream job would be to design medical devices that assist people with hearing loss. I'm hoping that I'll get something, if not now, then a few years down the road. I really want to help others who are in my exact or similar situation.
After reading all the post, I felt the need to do the same.
I am 100% deaf in my right ear and extremely HOH in my left. I grew up in the hearing world, I lost my hearing when I was 1yr. old. (thanks mom) . And we have been blessed with two beautiful children, one who is deaf/HOH and another who is fully hearing.
. And why family especially doesn't show more compassion I will never understand. (that goes for you to mom) Sometimes, I wish that just for one day all the hearing people in the world could be deaf/HOH so they could maybe gain some insight to what it is like for us.
You seem to be blaming your mother a lot here. If your son is Hoh, it seems more likely to be genetic than anything your mother did.
Remember that children are sponges and will absorb your attitude. You may want to let your resentment go, or in a few years you will see the same type thing coming right back at you from your son.
The past can't be changed. It's important to go forward and make a good life for yourself.
(Deaf from birth with deaf genes here.)
I just want to know what your experiences are like....such as talking to people in background noise, going to the movies, ordering food in the restaurant or dealing with customer service, talking on the phone, etc. (anything that hinders your ability to communicate/hear effectively)
I'm hard of hearing but I wear hearing aids and can pretty much hear what people say in favourable situations. I was raised in the hearing world and do not know too many deaf/hard-of-hearing people. I can lipread somewhat but I don't know sign language.
From my experiences, I find that it's extremely difficult for me to hear what other people say when there's a lot of background noise...I use an FM microphone device for one-on-one situations but group situations are pretty tough.
Do you have to deal with a lot of people who don't seem to understand what it's like to be hard of hearing? Do you sometimes get embarrassed or frustrated when you're not able to hear what other people say at times or when you're in a social situation (like a party or restaurant) and you can't follow the conversation...so you're basically out of the loop and not in tune with the conversation at all? I experience this constantly and I want to do something about it...maybe I need better hearing aids that helps to diminish the background noise (although they only work to a certain extent). Do you have any suggestions/tips to try to become more involved in social situations rather than being quiet the entire time?
I just want to know what your experiences are like....such as talking to people in background noise, going to the movies, ordering food in the restaurant or dealing with customer service, talking on the phone, etc. (anything that hinders your ability to communicate/hear effectively)
I'm hard of hearing but I wear hearing aids and can pretty much hear what people say in favourable situations. I was raised in the hearing world and do not know too many deaf/hard-of-hearing people. I can lipread somewhat but I don't know sign language.
From my experiences, I find that it's extremely difficult for me to hear what other people say when there's a lot of background noise...I use an FM microphone device for one-on-one situations but group situations are pretty tough.
Do you have to deal with a lot of people who don't seem to understand what it's like to be hard of hearing? Do you sometimes get embarrassed or frustrated when you're not able to hear what other people say at times or when you're in a social situation (like a party or restaurant) and you can't follow the conversation...so you're basically out of the loop and not in tune with the conversation at all? I experience this constantly and I want to do something about it...maybe I need better hearing aids that helps to diminish the background noise (although they only work to a certain extent). Do you have any suggestions/tips to try to become more involved in social situations rather than being quiet the entire time?
Mercy, first of all thank you for this section of the bulletin board. The next time I write to someone "I'm late deafened" (which Pek1, my first audiologist gave me that phraseology when I was 24, so who knows?) and they reply, "You're not Deaf!" I'm gonna puke. I *know* I'm not Deaf.
My loss has made a crescendo from simply failing the school hearing test in kindergarten to now, when I struggle just to get through the day without bursting into tears. Nowadays my main difficulties are businesses who advertise a TTY number and then either don't answer it or they've let it lapse, well-meaning friends who say over and over "You can hear me, right?", and other well-meaning people who notice my big ol' honkin' hearing aids and begin signing to me. (I know probably 20 signs and the alphabet, that's it.)
I use an ancient TTY on a landline for local calls and make voice calls for long distance since only my cell phone has long distance. But I can't hear the other end anymore so I'm breaking down and getting a portable TTY for the cell phone. I have an alerting alarm clock coming. I need a signaling system. In time, in time. Interestingly enough, Cdbicdb (hope I got that right), my ex-husband was my translator and my everything too, and then one day he kicked me out and I was dreadfully and irrevocably on my own. :Oops: Hope you all can understand it's sort of raw for me and I don't ever want anyone to have that happen to them ever. But I've bounced back and I'm 75% self reliant now.
Socially, I don't handle my situation well. I joke ... I say things like, "I'm sorry, you'll have to scream. These hearing aids are as old as I am!" and "Pretend I'm really old and say that again, slow and loud." If I diffuse the frustration with a smile, things go easier. As I mentioned, wonderful people see the hearing aids and start signing. And I'm not talking about "Sign you?" or "Deaf you?" which I recognize. I mean all-out full speed ahead signing. My friend taught me, "Sorry, no sign" or "Sorry, not Deaf", but then they get all embarrassed. Does anyone else who doesn't sign fluently get that? And goodness gracious, when do you get over the anger at the pity? I don't want to be pitied. I don't regret what has happened. I'm starting to look at it as a journey and another step on the path through my world. I want to believe there's a reason, you know?
I'll admit I'm scared. I didn't truly pay attention until my safety net was yanked away. Boy, the world is a vampire and it's got my attention now! I read everyone's posts gratefully and I will come visit often. Y'all are awesome.
I'm 16 years old, HOH, and being raised in a hearing world! I literally have no friends that are d/hh, and I have 2 hearing aids that are "supposed" to "correct" my hearing loss. However, I still have some issues, as HA aren't perfect, and then my parents get mad at me for not listening! I don't even want to think about all the things I miss in school, not in an educational manner, but in a social manner. Most of my hearing friends will just say "oh, nevermind" when I ask them to repeat what they say, which is SO annoying! I would love to have at least one friend who I can relate to who lives close to me!