Analytic thinker

I have said that I understand that and do see from your point of view on that issue but I still see the irrevelance of this to what was said to the OP with that assumption that her thread is another thread to bash CIs and that she is not really interested in getting information.

I did not mean to imply the thread was about bashing parents and I was only throwing in my 2 cents because of what I read in post #2. No offense meant to FF. :hmm:

I doubt you actually want the information, I see this as simply another thread to bash childhood implantation.

No offense, RD here. That's what quote as above I didn't say anything about bashing parents, yet I got insulted by it.
 
I did not mean to imply the thread was about bashing parents and I was only throwing in my 2 cents because of what I read in post #2. No offense meant to FF. :hmm:

No, you didnt imply that. Another person did.

You and others are tired of getting bashed for making the decision to implant your children and I understand that. The same time, many of us deaf people get tired of getting blamed or acussed of bashing parents whenever we form our opinions about CIs without actually bashing them. Like if someone said, "I dont agree with implanting children"...that person gets attacked as anti-CI or gets acussed of bashing parents. That gets tiresome as well.
 
No offense, RD here. That's what quote as above I didn't say anything about bashing parents, yet I got insulted by it.
Understood. Everyone is entitled to their opinion. Actually the research I posted is right along the lines of what you are asking for. It supports a parents decision by the now teenagers.

Peace!
 
Understood. Everyone is entitled to their opinion. Actually the research I posted is right along the lines of what you are asking for. It supports a parents decision by the now teenagers.

Peace!

Understood. And, my thread wasn't about to attack the parents of deaf babies who make decision. I was asking for anyone who have experiences and can provide links with neutral opinions. I know some deaf parents of deaf babies who recevies CIs as well who are my friends.

This is off the point, it is interesting to see how different between deaf parent of deaf children and hearing parent of deaf children who get CIs and how the kids bring up in the natural way too.
 
FF- I don't know how would it be like for adults who were implanted as babies, but you can watch them grow on certain blogs. But it seem after they are teenagers, the blogs stop for privacy reason. I would love to see more teen blogs but the parents may not want that. They may not want their self esteem to get hurt and I understand that. So, I'm just waiting til they are adults and decide to tell us how they feel about their life.

Now I just hope the parents give little personal information about their children as possible, like which school they go to and such. no need to put that in the blog.
 
from the mouths of teenagers and young adults

Hi! I've looked for an online perspective, too -- from deaf teens and young adults, both those who wear CIs and those who don't -- and I've found quite a bit out there!

I've found the blogs of several amazing young bloggers and vloggers via deafread.com, deafvillage.com (initially that one seemed more full of parents of youngsters but now there are quite a few representing themselves) -- Miss Kat's Mom pointed to cochlearimplantonline.com, which is chock full of early implanted kids just hitting college age. And here, too, of course! I do feel a little bit odd following the blog of a 16 year old -- I think there's at least one teenaged blogger on this forum who's probably saying, ooh, there's that creepy stalker lady who's on my blog! -- but I always try to make it clear in some way (just like here, by signing as Li-Li's Mom) that I'm a mom of a young deaf child just trying to get familiar with what my daughter will be experiencing, so I'm hoping they know I'm a just a creepy mom of a deaf child type lurker and not something much worse.

Li-Li's Mom

Facebook also offers lots of access to the daily interactions and the varied perspectives of young deaf kids, at least via the many, many groups and pages for deaf & hoh, CIs, what have you.

[just adding a disclaimer of sorts in case you think I might be relying on or advocating this narrow selection for actual decision-making :) ] Of course, like every other parent with a child who's gotten a CI or is considering it, I've got stacks and stacks of medical stats and studies and journals and data -- of the scores of parents of deaf kids I've encountered who have considered a CI, I've never meet a single person who has gone into it without doing extraordinary amounts of research. Today, I think parents have great access to research and data no matter what the issue is, from buying the right bicycle for a child to looking into just what that particular cold medicine does to a wee one -- so for surgery, I can't imagine anyone not investigating thoroughly and using their good judgment to winnow out the nonsense. But I also think you can't really get the full sense of what kids are doing and how they are interacting with the world by looking at device lifespans, audiology scores, vocabulary levels, or even points on a "rank your satisfaction with life in general" scale. I needed to read her own words or look a kid in the face and watch or listen to the way he expresses himself to get some degree of insight into whether or not she or he is happy and thriving or feels hurt, limited or shackled by educational and language choices or the technology available or not available to him. Videos and blogs and facebook aren't perfect for this, but you can really get a lot out of these sources, actually probably more than you might get in person with some teenagers :) .
 
Do babies with ci will need to update the new CI when they hit teen years or adult years? Won't it affect the cord from receiver/stimulator into the cochlea when babies become older? will the (cord) thingy pull back inside the head from the receiver/stimulator between cochlea once babies become older?
 
no, they are born with a full adult ear (the inside of the ear, not the outside). They probably need a bigger processor when they get older though.
 
no, they are born with a full adult ear (the inside of the ear, not the outside). They probably need a bigger processor when they get older though.

To follow up with this thought...

They do make the "wire" from the electrode to the receiver implant on skull with some slack. This is to accommodate the growth of the skull. Fortunately, infants have heads about 1/3 of their size fully grown. Thus, it is not a big deal.
 
I feel like, rather than sitting around complain about how much "hearing parents don't understand", the Deaf community needs to build bridges. Parents give their children CI's because they work! They see dozens of other deaf kids with them, at school, in playgroups, etc, and they see that they work, and they want the same benefit for their child. Most parents also read research and talk to professionals, and come to the conclusion that a CI is right for their family. There is nothing you can do about that, it's going to continue.

The change can happen in the next step. We need to show parent how ASL can benefit an implanted child. Don't tell them that all deaf children will fail without ASL, they know that isn't true. Don't say that CI's are fake and don't work, they see that they DO, with their own child. Parents need to be welcomed and to see that the Deaf community, and by extention, Deaf schools, are diverse and include people like their child.

Call them lazy, ignorant, unaccepting, "genocidal", or commiters of "hate crimes" and you are only hurting the deaf. You are ensuring that another deaf child goes without ASL and the Deaf community, and creating another mom like "cochlear implant online"

The deaf community can't build bridges as long as the hearing community continues to push them into the water.:cool2:
 
The deaf community can't build bridges as long as the hearing community continues to push them into the water.:cool2:

Yep..the hearing community really needs to back off sometimes.
 
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