Why - Why the Medical Society constantly pressure on the Parents?

Status
Not open for further replies.
The cochlear implant is one of the more intriguing technologies that the FDA regulates. It terms of its medical effectiveness, the device is truly revolutionary. Before this technology hearing impaired individuals were consigned to amplification devices that ameliorated only some of the symptoms of deafness, and did nothing towards the actual causes. This technology has the promise to actually cure hearing impairment and allow people to hear sounds and tones that were previously impossible to duplicate.

There you go. From a paper presented at Harvard University.

Speaking of that, when those CI consultants came to our school, they stated that the technology will eliminate deafness for many children.


To me, that is another way of saying "curing" deafness.
 
Speaking of that, when those CI consultants came to our school, they stated that the technology will eliminate deafness for many children.


To me, that is another way of saying "curing" deafness.

Yep, to eliminate deafness is to make it non-existent.
 
Great Statement Jillio!! :ty: for being brave enough to state the raw unvarnished truth!

re: Kalista question --

I think the medical community pressures parents because they can, simply, they prey on the vulnerability and guilt that society bestows on those ""out of the norm"" and promotes a one size fits all fix that too many find out too late - doesn't work.

YW, and :ty:, as well.
 
then by who? If it is just presented then it might just be an opinion.

Of course its an opinio, vallee. The opinion is the bolded portion in my origninal post. It very plainly says that CI has the potential to cure deafness. That has to be an opinion, because it sure as heck isn't fact. But the important thing is, it is the opinion of a "professional", and it was presented at a prestigious university, which means that opinion is given credibility through situation. So to say that the opinion doesn't exist is absurd.
 
I am extremely angry with pediatrics, audiologist, otolaryngology's, etc. They are hearing professionalism doctors. They are very oppressive to the deaf community due to smallest number of group. They voted with FDA and Consensus Development Conferences in June 1995 without consult or invite the Deaf people in that conference. They do not realize how dangerous are the Deaf children with cochlear implants when they become older. itself cochlear implants destroy their identities and very ambivalence in two cultures!!

We need to do something with FDA and they need to think more careful for the Deaf babies, they do not deserve to have their implants on their tiny heads. They did not ask for change their true identities. Their languages become more confuse into two worlds with hearing and Deaf people. :(

The medical society have been persuade to the parents. They have not search into two side of world in Deaf Community for who we are. We are ability to do anything expect hear and speak.

it is 2008. That was 13 years ago.

Every time I read a posting like this, I feel like it is a personal attack on my choice of Cochlear Implants. It is very damaging and hurtful to me. I have never had any doctor or audie pressure me into anything.
 
it is 2008. That was 13 years ago.

Every time I read a posting like this, I feel like it is a personal attack on my choice of Cochlear Implants. It is very damaging and hurtful to me. I have never had any doctor or audie pressure me into anything.

Kalista was talking about the way in which the medical community addresses hearing parents of deaf children, not adults making a decision regarding CI for themselves. Hearing parents of deaf children do not have the advantage of having experienced deafness first hand; a deaf adult making the decision for themselves has.

It may have been 13 years ago, but the practice of making policy decisions regarding services for the deaf without the deaf is still rampant.
 
it is 2008. That was 13 years ago.

Every time I read a posting like this, I feel like it is a personal attack on my choice of Cochlear Implants. It is very damaging and hurtful to me.

I understand how you feel, I feel the same way when they personal attacked me for the sign language I use (SEE) :hug:!!
 
Here we go again. :roll:
First of all...I hate it when people talk about deaf people and make a judgment that ALL deaf people feel this way. We (and i'm saying ALL deaf people) are not lemmings. We don't follow one rule. :D

Amen!!! :thumb:
 
Kalista was talking about the way in which the medical community addresses hearing parents of deaf children, not adults making a decision regarding CI for themselves. Hearing parents of deaf children do not have the advantage of having experienced deafness first hand; a deaf adult making the decision for themselves has.

It may have been 13 years ago, but the practice of making policy decisions regarding services for the deaf without the deaf is still rampant.

Yes that is correct. I do respect Adults's make the decision. I have no against their wishes.
 
it is 2008. That was 13 years ago.

Every time I read a posting like this, I feel like it is a personal attack on my choice of Cochlear Implants. It is very damaging and hurtful to me. I have never had any doctor or audie pressure me into anything.

I am sorry, you feel this way. I have no against you or other adults's make the decision. I do respect your wishes, I am talking about the hearing parents who make the decision for their babies like 6 months old to 13 years old.

Why do you feel that I was a personal attack your desicison? Did I mention adult's cochlear implants?
 
And you base that unsubstantiated statement upon what factual basis? How many hearing parents of cochlear implanted children have you ever had a conversation with? Please enlighten us all with your extensive knowledge and background regarding parents of children with cochlear implants.

BTW while you are at it please explain why deaf parents of deaf children are also choosing cochlear implants for their children? Are they also taking the "easy way out"?

Do you know what.... My son was interact with other teenager Deaf children who have cochlear implants at the organization few months ago. My son shocked because their pronounce aren't properly. He wonder why the parents put cochlear implants when they were babies. Cochlear implants do not help Deaf children learn how to speak like hearing people. CI would never never cure for the Deaf children to be normal hearing like YOU.

Sorry, if you feel this offense. I am sick of hearing parents do not look other side bright what we have achievement in our education and career. hello??? It is very frustrated many other hearing parents did not try very hard to approach into Deaf Community. Why why they look at doctors than Deaf people ??? Tell me why?
 
it is 2008. That was 13 years ago.

Every time I read a posting like this, I feel like it is a personal attack on my choice of Cochlear Implants. It is very damaging and hurtful to me. I have never had any doctor or audie pressure me into anything.

There has been threads made by parents of deaf kids with their experiences of how the medical community pressured them into implanting their children as soon as possilbe or time with language development will be lost and threads made by ADers in which they find articles about parents being pressured and then posting them here.

That is what Kalista is referring to and I can agree with her cuz some of the parents of my students have said the same thing.

With adults it is different cuz u chose to have one.
 
I am talking about the hearing parents who make the decision for their babies like 6 months old to 13 years old.


While I do agree that I do not like to see cochlear implants in babies but to 13 years old? why is that? it's better to have it done when they're younger it gives these deaf children an opportunity to hear the sounds when one cannot benefit from hearing aids. It's all about opened up of the different opportunities that are out there to gives a deaf child a chance to hear better.

I do not think that cochlear implants are for everyone yet I do believe that parents have the right to choose.
 
While I do agree that I do not like to see cochlear implants in babies but to 13 years old? why is that? it's better to have it done when they're younger it gives these deaf children an opportunity to hear the sounds when one cannot benefit from hearing aids. It's all about opened up of the different opportunities that are out there to gives a deaf child a chance to hear better.

I do not think that cochlear implants are for everyone yet I do believe that parents have the right to choose.

What different opportunities?

My concern is that the critera for the age to get implanted is being lowered and lowered.
 
I am sick of hearing parents do not look other side bright what we have achievement in our education and career. hello??? It is very frustrated many other hearing parents did not try very hard to approach into Deaf Community. Why why they look at doctors than Deaf people ??? Tell me why?


Some hearing parents did get the opportunity to meet other deaf adults/children and mix within along the deaf community to get advice, help and support and are aware of sign language and would like their deaf child with cochlear implant to learn it as they were given the opportunity to do so as it would benefit both themselves and their deaf child.

I've been reading hearing parents of the deaf children with cochlear implant's blogs, and my question to you is.... have you? (no offense here really) but I prefer you to look at this from both sides.

What I think is the biggest issue here some deaf people are still opposed to cochlear implants because it is seen as another way of denying a child’s deafness but that's not the case, it's all about giving a deaf child the ability to hear more when they cannot benefit well with hearing aids yet I absolutely see nothing wrong with that whatsoever.
 
Last edited:
My concern is that the critera for the age to get implanted is being lowered and lowered
Ditto.
I just think that it's too difficult to really tell how well a baby can make use of hearign with hearing aids. YES, there are cases where it's blatently obvious that CI is needed.......Like I have NO BEEF whatsoever with infant implantation for kids with auditory nereopathy. Those kids generally can't make use of HAs at all. Also, there's a special test that can confirm 100% whether or not a baby has it.
 
What different opportunities?

My concern is that the critera for the age to get implanted is being lowered and lowered.


I'm replying this to Kalista as she stated up to 13 years old. I suppose you did not read my first line on my post about babies.

different opportunities for deaf,hoh,ci - such as technology, different educational programs, oral/speech, sign languages, cued speech, etc.
 
Status
Not open for further replies.
Back
Top