Quick question.......did they do a complete analysis or did they just scan for the most common things? I know you're now " It is what it is"....and that's a really good attitude to have. I mean god after some of the parents I know who obess over why their kid is mildly hoh or have another mild health problem, your attitude is rather refreshing. However, I'm also remembering that you have said that the docs you've seen have said he doesn't seem to "match" a lot of things. That usually points to something really rare/genetic. Have you been to a really good university hospital or a really good Children's Hospital? I'm wondering if you have the type of kid who would befuddle the docs in Boston, or if you took him to Boston, they might say " Oh he has this!" I know for example, they've found that seven percent of kids with autism actually have micochondrial dysfunction, and when they're treated some of them make profound improvement.
I also know offhand of kids with multiple weird issues who turned out to have all kinds of weird genetic issues that were missed, due to the fact that they weren't screened or whatever....or they had a syndrome or something that wasn't detectable by ordinary chromosome analysis.