The Truth about Cochlear Implants

nozobo

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Got this from somebody's blog and decide to paste it in here... NO BASHING PLEASE!!! Feel free to discuss.. The person who put this in blog want to specifically quote this "It was meant to be informative, not negative propanganda."


The Truth about Cochlear Implants

I’m a graduate student at McDaniel College in the Deaf Education program. Today an audiologist came to our class and gave a presentation on cochlear implants and how CIs should have a place in Deaf Education. It was indeed a great presentation and I learned so much about CIs. I don’t know if I can type all what I learned in a single blog, but here goes.

First of all, CIs can be a great aid for deaf children who are good candidates for the implant. A successful implantation will improve a deaf (those with profound or severe hearing loss are better candidates than those with moderate or mild loss)’s DB to around 20 DB. A hearing child should have a DB of 0 to 15, a hearing adult up to 20, 25 DB. So, from profoundly deaf to having 20 DB is a huge boost in hearing.

But there’s much more to the implantation. There are so many other factors to consider. Parents (and teachers and everyone who works with the child) need to be on the look out for several possibly conflicting factors. If there are speech production changes or complaints of on/off again system, the cochlear implant needs to be adjusted, and fast. Any time missed in speech language acquisition is significant.

Headaches, dizziness, and eye/facial twitches are signs that a CI needs adjusting - the program might be too ’strong’ for the nerves. Whenever these symptoms are seen in children with CIs, they need to be sent to a hospital immediately so the CIs can be adjusted. Some children with CI might not want to eat — they might be experiencing a metallic taste in their neck/tongue from the CI implant. This would mean that the CI needs adjusting, as well. Sometimes, a CI attaches itself to the nerves in the ear area — these nerves are right next to the nerves for facial movements, the nerves for taste, etc. If the nerves are too close together, the CI might mess up the other nerves. So, not all children are good candidates for a CI. A doctor needs to look at the nerves and 1. check if they are alive and working well, and 2. check if they are not too intertwined with other nerves.

Now, if a child with CIs doesn’t experience any of the above, that’s good for the child. He/she is healthy. But he/she needs to always be careful to remain healthy. This means that a person with CI should probably not ride roller coasters with magnetic brakes (newer roller coasters usually have this, not those wooden ones). The magnetic force is too strong for the CI. More research needs to be done in this area, though, since some people with CIs have commented that they have no problem riding the newer coasters. Same thing goes for MRIs (except for the Nucleus 3 system). If there is a magnet section in a science museum, a child with CI should never go into that area. And also, have you ever touched one of these blue/black balls with swirling electricity… and when you touch it, your hair goes straight up? Children with CIs should never touch those, nor should they touch other kids who are touching the ball thing. Why? Because of the static — it can erase the program in the CI. Same thing goes for plastic playgrounds - their external CIs should be taken off before playing.

Hybrids are another interesting factor - people with pacemakers cannot ride these cars. Now, doctors caution people with CIs to not ride in hybrids until more research are done. However, it seems that some audiologists don’t know about this, so just check with your doctor/audiologist about this.

Did I type all these things to discourage CIs? No, that is not my intention. As the audiologist today explained, parents need to know the WHOLE story, what they will have to watch out for, how children need to be empowered to take care of their bodies and their CIs, so that the CI becomes an asset, not something that hurts a child.

Some parents try so hard to get a CI for their child even when they are not good candidates. This is really sad, because this hurts the child. For example, the audiologist today said that a woman tried to get a CI for her child in her state (I think, Arizona) but she couldn’t get a doctor to implant her child because he/she wasn’t a good candidate. She flew all the way to Maryland and found a doctor who would operate. This is a waste of money — if a child is not a good candidate, it is more likely that the CI will not work.

I hope this blog helps parents make more informed decisions and be sure of their child’s candidacy before letting their child go under the knife. I also hope that this article is informative for people with CIs. The audiologist said that she had just found out about the magnetic fields and hybrid car and roller coaster warnings just two weeks ago in a workshop.
 
Some parents try so hard to get a CI for their child even when they are not good candidates. This is really sad, because this hurts the child. For example, the audiologist today said that a woman tried to get a CI for her child in her state (I think, Arizona) but she couldn’t get a doctor to implant her child because he/she wasn’t a good candidate. She flew all the way to Maryland and found a doctor who would operate. This is a waste of money — if a child is not a good candidate, it is more likely that the CI will not work.

Yeah that is very sad... I hate those "Deafphoics":rl:
 
I don't know how long you've been reading this sub forum but we've already talked about the blog and the claims in it before. The woman who wrote it still hasn't managed to back up her claims about Hybrid cars and magnetic rollercoasters with concrete evidence from independent studies and elsewhere, even though she has been asked by some of the people who commented in her blog.

Moreover, at least one regular poster here who has a CI has ridden in Hybrid cars with no problems.

Thank you very much for your concern. It's good to know you care about our welfare and safety. Unfortunately, a lot of the claims on the internet aren't always substantiated or verifiable and should never be referred to as "Truth" without any kind of backing.
 
Again? I love these "beating a dead horse" threads.

This isn't the first time this has come up and nobody can vouch for the hybrid car claim so far. Besides, what does the hybrid car issue have anything to do with children getting a CI? That appears to be the main thrust of the blog.
 
It's groundhog day, folks! Is Punxsutawney Phil around here somewhere?

BTW I loved that movie. Killed myself laughing.

Oh gosh...that would be a nightmare!!! Yea, it is a good movie. :)
 
Well, I have been told that if I orient myself in a certain way that I could hear the news from radio stations! I have been trying but no success. I guess one has to be closer to the towers. :whistle:
 
This means that a person with CI should probably not ride roller coasters with magnetic brakes (newer roller coasters usually have this, not those wooden ones). The magnetic force is too strong for the CI. More research needs to be done in this area, though, since some people with CIs have commented that they have no problem riding the newer coasters. Same .

ROFLOL Guess I should have stayed off the California Screamer and Space Mountain etc??? Naaa I'm not going to give up the fun. :)
 
Why? Because of the static — it can erase the program in the CI. Same thing goes for plastic playgrounds - their external CIs should be taken off before playing.
.

Ohhhhhhhh another good one. :) Having had some good shocks lately if this was such a hugh deal I'd have had to stop in at my center before leaving work in the mornings at least 3 times in the last week. (I was feeling like I was grabbing an electric fence at time, the sparks were awsome, hehe)
 
Some parents try so hard to get a CI for their child even when they are not good candidates.
Agreed. You can somewhat shop around for doctors to implant you. If criteria for CI was more uniform, then I'd be ALL for them. Like I think that the NO benifits from hearing aid people, should ALWAYS qualify. It shouldn't be too strict. And those with severe recruitment and tinituas should qualify as well. But, it does seem like there's a percentage of parents and people out there who are acting like the CI is the latest tReNdY device.
 
Ohhhhhhhh another good one. :) Having had some good shocks lately if this was such a hugh deal I'd have had to stop in at my center before leaving work in the mornings at least 3 times in the last week. (I was feeling like I was grabbing an electric fence at time, the sparks were awsome, hehe)

Actually, the plastic slides one is something that has been documented. However, if the program gets wiped, it's more an inconvenience, than a major problem. If you get the program wiped out, you'd go back to the clinic and get it reloaded on the external processor. Clinics always store a copy of your map on their computers.

Mind you, I forgot about that recently and went on a plastic slide with my daughter at the local playground. Just as I felt the static under me I suddenly remembered! But no harm done. My friend with bilateral CIs was with me and she went on it too with no problem.
 
nozobo,

it's old news and debunked...

R2D2 has provided the links... (thank you!)

later then..

(next time, try to provide the link to the blog where you copied and pasted from probably without blogger's permission hmm)
 
Actually, the plastic slides one is something that has been documented. However, if the program gets wiped, it's more an inconvenience, than a major problem. If you get the program wiped out, you'd go back to the clinic and get it reloaded on the external processor. Clinics always store a copy of your map on their computers.

Mind you, I forgot about that recently and went on a plastic slide with my daughter at the local playground. Just as I felt the static under me I suddenly remembered! But no harm done. My friend with bilateral CIs was with me and she went on it too with no problem.

I had asked my audiolgist about this, she said as long as you disapate the staic built up in your body before touching your ci there really is no problem. so when you go down the slide try to touch something/someone else to get rid of the buildup in your body. (I'm sure if it's someone they'll love ya :))
 
In A book I was reading it pointed out a good solution just in case you encounter a problem while traveling.After you have finished your mapping download onto a disk and take along on trip in case of a problem you can find an audie who deals with CI's and reprogram until you get home.
 
I wonder about using ARC and MIG welders while wearing CI. I posted it on blog some time ago. Just very few bloggers posted it but not enough information.

At work, I walk around 5 or 6 feet tall stacked white plastic tubs or trays which generate alot of static electricity during winter. It can zap and crackle on you when you walk too close. Sometime It feel like I held a sparkplug wire while engine was cranked (ZZZtt Ouch!!). IT didn't mess up my program because I avoided brushing my CI close to the stacks. There's nothing can be done to prevent it. There's always a danger of wiping the program.

You probably remember one of blog about Airport Metal Detector. It turned out that it won't wipe the programming. If it happens then that's rare. But only thing you MUST avoid is junkyard magnet at junkyard. It made me very leery when I see them while at junkyard dropping off metal junks.

Hybrid cars are protected by magnet shield so does new roller coaster. Most magnets are "localized" which means that it would not spread field further than it's limit. Junkyard magnet can spread further than 5 feet. You can see little metal object on ground will picked up if Junkyard magnet was turned on just about 10 to 15 feet above ground. :Ohno: :Ohno: :Ohno: :Ohno: :eek3: :eek3:

MRI and CATscan produces strong magnetic field. Only thing is to remove magnet inside of CI implant (except for Med EL implant). Dr would numb it and make small incision on your head where CI located and remove it before you can go in for scanning. Reason why magnet must be removed because it can produce electrical field in coil if magnet is present. If removed then coil will not pick up anything. Actually it's rare cuz if you have serious head injury or pain inside your head that may be a tumor or cancer.

Catty
 
In A book I was reading it pointed out a good solution just in case you encounter a problem while traveling.After you have finished your mapping download onto a disk and take along on trip in case of a problem you can find an audie who deals with CI's and reprogram until you get home.


Ummh something new! :hmm: My audie never told me about it. She told me that if I need to remap, I can go any CI audie office and they will have my program downloaded from my audie office. She gave me the card w/ coding on it. I could ask her if she can burn Map program into CD for emergency need.

Catty
 
Like I think that the NO benifits from hearing aid people, should ALWAYS qualify. It shouldn't be too strict. And those with severe recruitment and tinituas should qualify as well.

Not everyone who gets no benefit from HAs would get benefit from a CI. And knowing how to spell "tinnitus" might suggest a familiarity with the topic that would make your position a lot more credible.
 
Not everyone who gets no benefit from HAs would get benefit from a CI.
...

You are correct.

DD - Just having tinnitus (assuming very severe) is not a reason for getting a CI. It doesn't always silence it. I'm one of the fortunate ones where it is totally gone but many others still have some after getting a CI.
 
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