I thought I was alone, but obviously I'm not
As an oral deaf individual of 50 years, my issues are both similar and different from some. In 50 years of living, I've lived without technology and with it. I was raised in the rural country and my mother would not allow me to be acquainted with other deaf people or deaf organizations once I was out of elementary school. I was only in a deaf residential school through elementary school to obtain a "functional means of communicating on which to base a more normalized means of communicating (speaking)." My mother never discussed why she removed me from all things and people related to deaf culture other than to say, "If you act deaf and function deaf, you'll always be no more than those ways and actions because people will assume you are more limited than you really are. You need to function as normally as possible because the world is hard, cruel and will not cater to you. People will walk on you and give you no respect or opportunity. You must be as good at functioning in the hearing world as you can possibly be to have a decent life." I never understood all that and the intent until I was in my late 20's. I sometimes hated her for removing me from people I could easily relate with and forcing me to fit into the hearing world.
I was in a public hearing school throughout high school. It was hard because I was the only deaf kid around and back then the stereotypes were not just stereotypes, they were purely prejudicial judgments of one's abilities and personal qualities. I was an athlete so it was difficult - until they needed me to do the things I was good at that would win for the teams. Throughout school, I was also the object of every teen boys' fantasy - a girl they could date and abuse because they thought I was an ignorant female that couldn't do anything about it. Those kinds of guys were a pain because every other cute girl wanted their attentions and I couldn't get rid of them fast enough because they were jerks who thought I was a novelty.
By the time I finished high school, it was never a question that I would go to college, but I couldn't go to Gallaudet - that's a deaf university and of course my mother wouldn't allow it. I went to a state university part-time and got jobs as a nursing assistant in nursing homes. I hated all of it and finally ditched everything and ran away to family at the opposite side of the U.S. I'd hoped they'd give me respite and acceptance. Not the case. They did give me a wonderful place to live and promptly required me to enroll in the local community college and participate in a local church. I did and it was okay for a while, but communication was always hard with them because I couldn't really read my uncle's facial structure and my aunt was a meek, mild mouse of a woman for whom I had no respect.
I left that life and came to the midwest. I admit to using my deafness in ways I'd never dreamed purely because I was completely exhausted always struggling to fit into the hearing world that it was sometimes nice just to pretend I couldn't understand or talk just to get people to either leave me alone or to get them to do the harder work of communicating via writing. I floated and struggled for about two years and admit that I was also quite promiscuous because I was looking for love and didn't have a clue what that really meant. I finally met my first husband - a hearie. For 13 years we were married and he could NEVER communicate on my terms, it was always on his. We had a son and I said that regardless of all things, he was MY son first, last, and always to raise to be a good person and do his best in life. Our son became the pawn in our sick marriage until I finally realized I married badly and left, taking our son.
I was on my own and decided I needed to finish a college degree to become completely self-sufficient and independent. I attended Purdue University. This time, I was 32 years old and finally, I was able to go to the Student Services and get set up with accommodations for my classes that enabled me to focus on the lecturers while note-takers took my notes & court stenographers turned "real time captioners" were capturing the entirety of my classes in print form. While every other student had 3 - 7 books and their own notes to study, I had to pour through hundreds of pages of printed text that was the notes of my classes in addition to my books. Did I mention my field of study? COMMUNICATION! I was the joke of the university because of it, until I cranked out many papers that were too good to be degraded. I graduated with a degree in Communication with triple minors in English, psychology, and organizational leadership from Purdue University. I got that degree in 1998, while being a full-time parent, full-time employee and full-time student! No small chore for anyone hearing or deaf!
I did everything everyone said would make me marketable and successful at finding a good job. To this day, I have NEVER found a good job! The best I've managed was to be the Administrative Secretary in a public high school and I write and do sewing and horse training to make some money on the side. Last summer (2010), I lost my job because our district experienced serious budget cuts and my job was given to a person of lesser qualifications simply because she was in the school system longer, even though I'd had five years. Here I am a year later and now, the economy has made jobs hard to find, but when you have a disability and some age, it's almost impossible. I've never been able to network with well-connected people and I've never had the luxury of being able to do nothing but look for a great job - I need money to pay bills. Therefore, the professional experience I have does nothing to advance me because I've been completely under-employed since I got my degree.
When people have found out about my deafness, they have always called me "amazing and talented" because I'm oral and I too have learned strategies for surviving with hearies that make it easy for them to NOT notice my deafness. However, they want to "test" me and think I'm stupid enough that I don't realize that's what they're doing. I've been told that I'm a "wonderfully talented, highly intelligent, very organized, skilled person-more so when you consider my 'disability.'" I despise those kinds of qualifiers. I don't identify them as being gifted for people who wear glasses or manage to tie their shoes so I think considering me gifted because I do so much without being able to hear is insulting. At the same time, I have NO connection to the deaf world, deaf people and I don't sign. I have no one in my life with even half a clue what my life is really like and how hard it is to always make it easier for those around me than they ever make it for me to just be me.
I also enjoy pulling out my hearing aids and not hearing the noise. I often wonder how different my life would be if I even had one deaf friend to relate to. The problem with that is that I'm not sure I can truly relate to a culturally deaf person and their life either.
I've been caught between two worlds my entire life and never truly fit into either world. It's been a frustration and now that I'm getting older, it's a series of frustrations I really don't want to endure the rest of my life, but have no choice. Frankly, if I died tomorrow, it would be a great relief not to have to work so hard to survive in a world that claims to be "disabilities friendly and all-inclusive." There is no such thing as a hearie who can possibly understand the totality of a deaf life-oral or cultural deaf. I'm not sure there are culturally deaf people who can understand how hard it is to be oral deaf and have no life-lines to people who understand life between the two worlds of the deaf and hearing.
For you young people struggling with the issues of life as oral deaf, it hasn't ever been easy and if you think it will get easier, keep dreaming, but don't count on it. Life is not easy and no one ever promised it would be. It's a challenge on the best of days - for everyone. If you're oral deaf you're blessed and cursed because you can never completely fit in either world. Get over the idea that you can. You have to make the best of what you have and be the best that you can be as the person you are. Set your eyes, heart and mind on being that person and not on being oral deaf, deaf, HOH, or hearing. Just live to the best of your abilities and strive to achieve your goals knowing you'll probably always work harder for it than most other people.
At least now, the technology of computers and cell phones has bridged many communication gaps and makes life easier in general. Use that technology to your advantage at every opportunity.
Thanks for letting me vent my frustrations.
CARedmon