Surgeon's report

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faire_jour

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I just read the report from the OR. It said that during the surgery he had to remove one of the bones inside her middle ear (the incus, I think). He said that the space was very narrow and he had to do that as to not enter the nerve space. Is this common? Does this mean that she has totally lost all possiblity for residual hearing?
 
It actually can be replaced by prosthesis. Without it there will be no hearing.
 
my middle ear bones were removed after my second ci surgery, but as my surgeon explained, this was done for the purpose of a research study.

as for miss kat, it's unlikely that she retained any amount of residual hearing anyways since placing the electrodes inside the cochlea probably destroyed it in the first place.
 
as long as we're on the subject of surgical reports, would it be possible for me to obtain surgical reports from both of my ci surgeries? my first ci surgery took place in december, 2004 and my second in february, 2006. would my surgeon still have my records even though several years have passed? by the way, i'd also like to receive the audiological report regarding my first and second ci evaluations.
 
Hear Again said:
my middle ear bones were removed after my second ci surgery, but as my surgeon explained, this was done for the purpose of a research study.

as for miss kat, it's unlikely that she retained any amount of residual hearing anyways since placing the electrodes inside the cochlea probably destroyed it in the first place.
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HearAgain,

Did they tell you before your surgery that they would do this? I mean they'd get your permission if it's for research study, right?
 
ClearSky said:
HearAgain,

Did they tell you before your surgery that they would do this? I mean they'd get your permission if it's for research study, right?
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yes, they did. they left the decision up to me. since i agreed, my surgeon required me to sign a consent form before my surgery.
 
Hear Again said:
as long as we're on the subject of surgical reports, would it be possible for me to obtain surgical reports from both of my ci surgeries? my first ci surgery took place in december, 2004 and my second in february, 2006. would my surgeon still have my records even though several years have passed? by the way, i'd also like to receive the audiological report regarding my first and second ci evaluations.
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You should be able to obtain a copy of the surgical report as it's apart of your permanent medical record. I'd call your surgeon and ask how you'd go about obtaining the reports.
 
Hear Again said:
yes, they did. they left the decision up to me. since i agreed, my surgeon required me to sign a consent form before my surgery.
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I know a CI user who said someone shew knew (family or friend) had her other non-CI ear's nerve removed for research while she had her CI put on one ear.
 
ClearSky said:
I know a CI user who said someone shew knew (family or friend) had her other non-CI ear's nerve removed for research while she had her CI put on one ear.
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did she give her consent for that to happen?

by the way, i just e-mailed my ci audi requesting a copy of my ci surgical reports from december, 2004 and february, 2006. i also asked her for a copy of my audiological tests/ci evaluations from the same years.
 
Oceanbreeze said:
You should be able to obtain a copy of the surgical report as it's apart of your permanent medical record. I'd call your surgeon and ask how you'd go about obtaining the reports.
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thanks, ocean. i just e-mailed my audi requesting this information. if she says no, i'll contact my surgeon.
 
Hear Again said:
did she give her consent for that to happen?

by the way, i just e-mailed my ci audi requesting a copy of my ci surgical reports from december, 2004 and february, 2006. i also asked her for a copy of my audiological tests/ci evaluations from the same years.
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I think so because she wanted to donate the nerve for research.
 
Hear Again said:
oh, okay. did the ear she donated the nerve from qualify for a ci?
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I don't think so. I think she made that decision knowing she'd get only one implant. It was during that time when bilateral was still in its studies. I know it has to be a brave decision (the girl I spoke to said too) because I believe the CI needs the nerve for the CI to work.
 
ClearSky said:
I don't think so. I think she made that decision knowing she'd get only one implant. It was during that time when bilateral was still in its studies. I know it has to be a brave decision (the girl I spoke to said too) because I believe the CI needs the nerve for the CI to work.
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yes, that's correct. it does. that's why i was wondering if that ear qualified for a ci. i agree it was a brave decision on her part. :)
 
It's just rather upseting to know that it impossible for her to hear anything now. She was a borderline audiological canidate, but a lousy hearing aid user, so we figured we should go for it. Now I feel like I would probably never give her another implant. I don't want her to lose all possibilty of hearing naturally. She used to be able to turn if I clapped, without aids.
 
Aww don't be upset.

I hope she is enjoying her CI.

I haven't had my report from the surgeon.. perhaps i will ask at my one year check up which is next august.
 
faire_jour said:
It's just rather upseting to know that it impossible for her to hear anything now. She was a borderline audiological canidate, but a lousy hearing aid user, so we figured we should go for it. Now I feel like I would probably never give her another implant. I don't want her to lose all possibilty of hearing naturally. She used to be able to turn if I clapped, without aids.
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faire_jour, it's really that common to lose residual hearing. Some people do tend of have a little attachment to losing their natural little hearing they have left, but they know that they realize that their speech comprehension with HAs is not good.

Don't feel bad, it seems like Miss Kat is doing well. It takes some time to get used to the new experience for both of you. Please know that it is the beginning. Keep up with therapies at home when Miss Kat starts. Is there a way that you could have a parent support group to share your experience? It's nice to have people know who understand.

Keep us posted. We are here to help.
 
faire_jour said:
It's just rather upseting to know that it impossible for her to hear anything now. She was a borderline audiological canidate, but a lousy hearing aid user, so we figured we should go for it. Now I feel like I would probably never give her another implant. I don't want her to lose all possibilty of hearing naturally. She used to be able to turn if I clapped, without aids.
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i know it's easier said than done, but instead of thinking about the residual hearing miss kat has lost, try to think about the ci hearing she has gained. the ci is going to open up alot of opportunities for her. you'll see. :)
 
faire_jour said:
It's just rather upseting to know that it impossible for her to hear anything now. She was a borderline audiological canidate, but a lousy hearing aid user, so we figured we should go for it. Now I feel like I would probably never give her another implant. I don't want her to lose all possibilty of hearing naturally. She used to be able to turn if I clapped, without aids.
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But, you were aware of those possibilities prior to consenting to surgery, were you not?
 
She was a borderline audiological canidate, but a lousy hearing aid user, so we figured we should go for it. Now I feel like I would probably never give her another implant. I don't want her to lose all possibilty of hearing naturally. She used to be able to turn if I clapped, without aids.
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I second what Hear Again said! Did you just implant one ear or what? I can't remember if you did single or bilateral.
 
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