Support Group: Deaf parents of Kids with CI

Yup! I remember way back when, a parent who had a kid at an oral school, said that there were some deaf parents who had their kids enrolled in ORAL programs. I do think most Deaf families are reconizing that the CI is basicly a high power hearing aid. (it aids hearing, and does not make a dhh kid hearing) and are reconzing that their kids can be a part of both worlds. Which is AWESOME! Finally Deaf people are realizing that hoh folks can be Deaf too!
 
I've known two families who implanted their deaf child and sent them to oral schools.
 
Interesting question: which "deaf" can hear? When I disconnect my Cochlear Implant I don't hear anything-silence. Real deaf? As previously mentioned I became deaf-December 20, 2006-BOTH ears!

Implanted Advanced Bionics-Harmony activated Aug/07
 
drphil said:
Interesting question: which "deaf" can hear? When I disconnect my Cochlear Implant I don't hear anything-silence. Real deaf? As previously mentioned I became deaf-December 20, 2006-BOTH ears!

Implanted Advanced Bionics-Harmony activated Aug/07
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But when it is connected, do you hear? If so, you are deaf, and you can hear.
 
Surely this is an exercise in semantics. If I have my Cochlear Implant connected I can hear -yeah really! Which is why I considered it way back in early 2007. What about the deaf that DON'T HAVE a Cochlear Implant- do they hear? To be more specific-Hearing Aids don't work to well at Profound Loss level-85db.( From my personal experience of having Profound loss in both ears-25 years!) Of course, one wouldn't be considered deaf!

Implanted Advanced Bionics-Harmony activated Aug/07
 
To be more specific-Hearing Aids don't work to well at Profound Loss level-85db
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My Phonak Naida's work fine for both ears. And, as you can see below, my left ear is in the Profound loss range. So there are some hearing aids today that are meeting the needs of those with Profound loss. I do not need at CI now, but would consider one in the future if my hearing gets worse and HAs no longer help. That's because I've been in the hearing world all my life.

Of course, that's just me. Everyone is different. I've had people tell me that they are surprised at my speech discrimination scores considering my loss. Perhaps it's because I am late-deafened and began wearing hearing aids before my loss go too bad (though I did wait a few years between when I was diagnosed and when I got my first HA because they were not recommended. My hearing loss was probably very mild at that time).

....0250...0500...1000...2000...4000...6000...8000
L....100......90......85.....85......85......90......95
R.....85......75......65.....60......55.....100......85

SD @ 100db L-88% / R-96% - unaided
 
Good post, LoveBlue. Many deaf people with profound hearing loss do benefit greatly from digital hearing aids.

I'm one of them! :)
 
I was another one. 90's db in both ears- wore phonak and phonic FM system and I did pretty good with that. Not perfect but I was able to get by with it and pick up words and develop speech.
 
I have a severe/profound loss - I'm at 110 db and my HAs work beautifully for me.
 
AlleyCat said:
I have a severe/profound loss - I'm at 110 db and my HAs work beautifully for me.
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My son is 90 dB right and 110 dB left. He only wears an HA in his right ear, because amplification in his left interferes with discrimination due to distortion. He does very well, too.
 
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