Silenced again...

sonocativo

Well-Known Member
Joined
Sep 25, 2012
Messages
9,807
Reaction score
994
Well, a couple days ago my hearing aid batteries went out so I decided to clean them as well as change the batteries....well, after all said and done, I put them on and they stopped working again (just the left one) but it affect how I hear and still almost like not wearing anything at all, it doesnt matter if its right or left, I still cant hear with just one...its odd I know.
Anyways I have been in a world of silence the past 2 days. I have been pondering going to see the specialist for the cochlear implants, as the aids arent helping me much anyways. Im kinda stuck on the decisions in part due to all the pros and cons and makers. Will I hear normally afterwards? or is it a whole new learning experience to hear again?
Can someone explain to me what exactly they experienced with their cochlear implants and the makers of which they prefer? Thank you all for your input on this. I am sick of the aids not working, repairing and replacing, they are out of warranty now so.... time to move on to the next step.
 
It's funny, I have the same problem but never considered the cochlear implant. For me it's out of the question, like tattoos.
 
Well the first step: get an up to date test of your hearing. Profound loss? DEAF-one/both ear?
Examination of your ear re suitably of the operation. Can you "tolerate" a 3 hour operation?
How and who will cover the cost of an Implant/operation/hospital care?
If accepted/suitable it takes about 4 weeks for your head to heal- after the operation. Then the externals are hooked up. Turned on-mapped to you and will your brain accept.?
One doesn't get back to "normal hearing" but does have an improvement to when one used Hearing aids.

That succinctly is my experience at Sunnybrook/Toronto- almost 6 years ago.

Aside: their experience since 1984: 3000 adults tested. 2000- unsuitable-variety of reasons Of the balance-1000 only 18 were unable to benefit by their Implant-why?
Statistics: till late 2011- a patients meeting.

I became bilateral DEAF December 20, 2006 and the operation was July 12, 2007

Much success in your new journey re Cochlear Implant
 
Well the first step: get an up to date test of your hearing. Profound loss? DEAF-one/both ear?
Examination of your ear re suitably of the operation. Can you "tolerate" a 3 hour operation?
How and who will cover the cost of an Implant/operation/hospital care?
If accepted/suitable it takes about 4 weeks for your head to heal- after the operation. Then the externals are hooked up. Turned on-mapped to you and will your brain accept.?
One doesn't get back to "normal hearing" but does have an improvement to when one used Hearing aids.

That succinctly is my experience at Sunnybrook/Toronto- almost 6 years ago.

Aside: their experience since 1984: 3000 adults tested. 2000- unsuitable-variety of reasons Of the balance-1000 only 18 were unable to benefit by their Implant-why?
Statistics: till late 2011- a patients meeting.

I became bilateral DEAF December 20, 2006 and the operation was July 12, 2007

Much success in your new journey re Cochlear Implant

I was born HOH, and gradually over the years it has gotten so much worst, I cannot hear without aids now. I can shoot guns and barely hear a pop.
Doctors called it inner ear nerve deafness.
The hearing aids I have are digital now and sound funny, music seems to "Warbble" at certain frequencies and it bugs the shit out of me, my audiologist didnt understand why the aids were doing it so he cut certain frequencies down to stop it, and things were just off. He said because of the power I needed to hear things, they were just maxed out and wont help me as time goes on, basically saying I am pushing them to the limits and I will need cochlear implants since there is not much more the HA's can do for me.
When I was young I remember being around 4 or 5, I had constant ear aches, severe aches that hurt so bad for days on end, when I laid down the room would spin or actually just my bed and it would throw me into the floor... because my equalibium was all out of whack, doctors back in the late 60's and early 70's didnt know squat of what was wrong with me. My parents took me to every specialist,ENT doctor and every test you could imagine done, I had tubes put in my ears at 7 to help them drain, got my first analog aids in 3rd grade... heard everything but what I needed to hear, picked up so much background noise, then the bullying started and I quit wearing them. Struggled through school as I couldnt hear to follow directions, but Im more advanced in alot of subjects from hands on i guess you would say, very artistic and mechanically inclined. When I was evaluated during my highschool years I was observed as "well guarded" but the special education program brought in a Deaf person to observe me ( she was some sort of Authority Figure) and she could not read my lips, I do not move them properly because i cannot pronounce the sounds. I used to read lips like a champ, I could see everything a person said and some were surprised I knew what they were saying from a good distance away, but during highschool, It was a rough school and the staring to read lips made some uncomfortable, and caused confrontations from so called Bullys, I earned a nickname in school due to the fights when I was jumped by a small group, I got tired of being bullied and I made my stand that day and I still stay in contact with alot of friends from school ( even some of the bullies as they learned a lesson and we became friends in the long run) Long story short, i want to hear my son grow up, hear his voice and laughter....
I have had several major surgeries most recently
1988 Facial reconstruction (wide awake no painkillers due to contussion)from a bike accident 6-1/2hrs
2009 Spinal fusion 2hrs
2011 Spinal fusion 2hrs
2012 Gallbladder removal 2hrs
So undergoing surgeries are no big issues and may need rotator cuff surgery soon... sucks getting old too.
 
You may have maxed out your current HAs but are they the most powerful ones available today? Do you have confidence in your Audi to inform you of all possibilities available (and not just through her office)?
Get your hearing tested then go to the HA manufacturers' websites and see what they have available for your loss (even check their professional pages if they're available).
If your Audi doesn't dispense the HA manufacturer(s) you think have the best HAs for your loss, shop for a new Audi.
I realize you may be at the point that HAs are no longer helpful, but one of the requirements for CIs is that HAs no longer help.
 
I definitely know how it feels to max out ha's.
Also at least you live in the states...Much easier to get approved than some other countries. My body seems to defy medical technology..not joking..and one of my tests shows that "apparently" the hairs in my cochlea are fine BUT everything else I qualify but since it "shows" that the hairs are ok..something ain't right somewhere and Idc where I just want to hear with something better than the maxed ha's I currently have...

anywho ...will it sound different, yes. Will you have to work hard and practice with words and sentences etc every day, yes. I don't think this would be hard for you though since you do have a child that also needs to practice. You can practice together!

Manufacturers are all diff. I made a choice a long time ago that I would go with cochlear. But now that AB's future processor that's coming out soon can work with my phonak ha that's a bit of a game changer and now I may choose that instead. My advice is to go on each manufacturer's website and request an info package. Read up on each company's current processor and then write out what you like and don't like for each. Keep in mind AB is coming out with a new processor soon and so is cochlear but AB will be sooner.
 
hearing may not be "normal" with a CI (some people, after a while, say things sound pretty normal with a CI, but everyone's different), it's a whole different way of hearing. Electronic signals, your brain has to figure out what the electronic signals are and recognize the sounds from the CI. You can go for an evaluation, and ask the audie and CI surgeon all questions you have and they can give you feedback.
 
I definitely know how it feels to max out ha's.
Also at least you live in the states...Much easier to get approved than some other countries. My body seems to defy medical technology..not joking..and one of my tests shows that "apparently" the hairs in my cochlea are fine BUT everything else I qualify but since it "shows" that the hairs are ok..something ain't right somewhere and Idc where I just want to hear with something better than the maxed ha's I currently have...

anywho ...will it sound different, yes. Will you have to work hard and practice with words and sentences etc every day, yes. I don't think this would be hard for you though since you do have a child that also needs to practice. You can practice together!

Manufacturers are all diff. I made a choice a long time ago that I would go with cochlear. But now that AB's future processor that's coming out soon can work with my phonak ha that's a bit of a game changer and now I may choose that instead. My advice is to go on each manufacturer's website and request an info package. Read up on each company's current processor and then write out what you like and don't like for each. Keep in mind AB is coming out with a new processor soon and so is cochlear but AB will be sooner.

Yes these HA's are the best at this time, I miss the tele-coil they usually have but because of the power I need it was eliminated from the design. I have been to many Audiologists and this one I have now is great. He has been running his own place recently and recently moved again so I will need to track him down,,, Only thing is, he doesnt do the Cochlears and refered me elsewhere ( I have the card/number/location ) he gave me. He has told me last time I had a test (about a year now) that the aids wont help me much longer ( any aids ) and that cochlear will be my next step. I just havent kept up to date on all the makers/models of cochlear and I have no clue about any of them...other than you tube videos of the surgeries. I know that they implant like 22 wires that take place of like 300,000 hair fibers or something like that, reason I asked about what people hear or if they have to learn all the sounds again ( I assume you just dont hear music/voices like you did with aids or un-aided, or if its just noise til your brain figures out what it is?
 
your brain will figure out what the sounds are after after getting a CI, and you'll get used to the sounds with the CI.
 
Yes these HA's are the best at this time, I miss the tele-coil they usually have but because of the power I need it was eliminated from the design. I have been to many Audiologists and this one I have now is great. He has been running his own place recently and recently moved again so I will need to track him down,,, Only thing is, he doesnt do the Cochlears and refered me elsewhere ( I have the card/number/location ) he gave me. He has told me last time I had a test (about a year now) that the aids wont help me much longer ( any aids ) and that cochlear will be my next step. I just havent kept up to date on all the makers/models of cochlear and I have no clue about any of them...other than you tube videos of the surgeries. I know that they implant like 22 wires that take place of like 300,000 hair fibers or something like that, reason I asked about what people hear or if they have to learn all the sounds again ( I assume you just dont hear music/voices like you did with aids or un-aided, or if its just noise til your brain figures out what it is?

All ultra powered hearing aids will have telecoil. It's only the tiny ones for mild losses that don't always have telecoil. My ultra powered aids have telecoil altho I don't have it programmed in as I never use it.
 
You should consult a different audiologist. You have Starkey RITE aids, I believe?

At this time that only works for up to severe losses.

There are many more powerful hearing aids on the market today.
 
You should consult a different audiologist. You have Starkey RITE aids, I believe?

At this time that only works for up to severe losses.

There are many more powerful hearing aids on the market today.

My main issue is, I sweat like a pig and the BTE aids get soaked, these are supposed to be water proof but the contacts inside still corrode. I am worried that the cochlear processors will have the same issue as well? Yes, I will probly be seeing another audiologist since Im pretty much out of his league now I suppose, although I do like him, he has cleared alot of hurdles with getting certain aids for me. I have had AITE, ITC aids and since using the latest BTE I can no longer hear with the old aids... Just to show how much worst my hearing has gotten in 2 years. I wish i knew more people who knew ASL so I can hone my skills and communications, but sadly Im alone here. I love to hear but getting so frustrated with trying to please everyone when they know its a lost cause for me to hear everything they say.

As far as the tele-coils, these do not have them, just the way its made so there is more room for amplification/electronics. They have 4 settings but were all turned off since they wouldnt make any differences to what I could hear, all the past aids had settings as well for voice/music/noisey environments and standard...they never made a difference to me and these were all digital. I can put ear buds in on my MP3 player and crank it to 30 (max level) and barely hear it ...while everyone else sits around saying it is loud and they can hear it across the room.
 
If you're not even in BTE's I don't know if you'd even get approval. I'm no expert in any way shape or form, but I'm pretty sure they won't implant you until HA's prove to be no help. If you haven't even tried the most powerful aids yet I doubt you'd get approved. Who knows though maybe they would??? Maybe they're implanting people with lesser losses I have no idea, but I wouldn't get too hopeful about it until you've exhausted all HA possibilities.
 
at least consult with a CI center and be tested. Generally CI centers and insurance companies say in order to be a candidate for a CI, comprehension has to be at 50% or worse (some say 60% or worse). If the CI center feels like you should try more powerful hearing aids, then they will say so. They might even be able to loan you a set for a trial period to see how it goes.
 
From previous tests, I am told within the next 2 to 4 years I will be completely deaf.
 
Well, a couple days ago my hearing aid batteries went out so I decided to clean them as well as change the batteries....well, after all said and done, I put them on and they stopped working again (just the left one) but it affect how I hear and still almost like not wearing anything at all, it doesnt matter if its right or left, I still cant hear with just one...its odd I know.
Anyways I have been in a world of silence the past 2 days. I have been pondering going to see the specialist for the cochlear implants, as the aids arent helping me much anyways. Im kinda stuck on the decisions in part due to all the pros and cons and makers. Will I hear normally afterwards? or is it a whole new learning experience to hear again?


Oh come on!
are you aware you need batteries for CI as well???

This is not the HA vs CI matter. this is simple BUY ENOUGH SPARE BATTERIES
so you'll never run out of them matter.
Don't be a child...

Fuzzy
 
Also. have you tried these:
WaterResistant solutions

Phonak has developed WaterResistant products, designed for people who are interested in high performing and higly reliable hearing aids. These products are water, sweat, moisture and dust resistant. Embrace the unexpected joys of life with care-free confidence instead of planning your life around them!

WaterResistant solutions are available in

Phonak Bolero Q - Capturing voices wherever you go, whatever you do
Naída S - Believe in the power to hear more
Nios S H2O - Performance and dependability for young lives

Phonak Hearing Systems - life is on

Fuzzy
 
Last but not least - free backyard psychotherapist friendly advice :)


You are using your breaking down HAs as an excuse for wanting to go CI route,
obviously.
You are however, too afraid of "what if" to firmly plant your foot ON this road.

Well, my friend, no amount of analyzing and wondering will substitute simply
DOING IT.
No way no how.

What you have to do, you have to make a decision - YES or NO.

Make an appointment, talk to the doctor first to find out if you even qualify.
If you qualify, that probably 90% mean you will be satisfied because, simply,
that's what qualify means in your case - no ?

Whether or not you will hear"normally" - who cares?
what matter is that you will hear better than thru what you actually have.
Isn't it enough?
:)

smiley-bounce017.gif


Fuzzy
 
From previous tests, I am told within the next 2 to 4 years I will be completely deaf.

That day may come, but not today.

It's up to you. It's also irreversible and you should take that into consideration. If I were you, I'd test drive a Naida before going to a CI. But, that's just me.

I'm holding out to bitter end. And even then, I don't know if I will get one.
 
Back
Top