Question about CI...urgent

I think your making the right decision, since your HA's don't benefit you anymore. Just think of hearing your little boys voice for the first time.

I really wanted to hear my mom again. She is getting old so writing things down for me was difficult and not the same for our talks. She was with me and hubby during surgery and on my activation day. We all cried with happiness. I had only been deaf a year and a half, for you who have not heard familiar sounds in years, this is so exciting.
 
Angel1989 said:
I think your making the right decision, since your HA's don't benefit you anymore. Just think of hearing your little boys voice for the first time.

I really wanted to hear my mom again. She is getting old so writing things down for me was difficult and not the same for our talks. She was with me and hubby during surgery and on my activation day. We all cried with happiness. I had only been deaf a year and a half, for you who have not heard familiar sounds in years, this is so exciting.
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Yeah, Ive been without HA most of last year due to the fact they were out of warranty, they did do a courtisy repair since it was just a week out, and that only lasted about a week..grrrrrrrrrr.
Anyways as my audi said, HA wont help me much longer since they are maxed out and CI would be the next option, he refered me sooner but I never went at the time due to spinal surgeries. But now, Im ready to take that chance.
 
sonocativo said:
Yeah, Ive been without HA most of last year due to the fact they were out of warranty, they did do a courtisy repair since it was just a week out, and that only lasted about a week..grrrrrrrrrr.
Anyways as my audi said, HA wont help me much longer since they are maxed out and CI would be the next option, he refered me sooner but I never went at the time due to spinal surgeries. But now, Im ready to take that chance.
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:thumb:
 
You will be assimilated .... resistance is futile ...

:laugh2:
 
Talked to my Audi today, he refered me to a specialist ( only one here in St. Louis who does them) so got to call and go get mri and all those goodies done.
 
Smithtr said:
you lose damage nerve your ear. I understood clear to CI review. approxiate $70,000 compare for addition for insurance will alike house pretty you handle you costly spending risk your budget. my experience expert study. I understood, But you have proper function your health high, MRI team decide CI cochlear implant review your assessment your brain make sure no damage. prevent to damage. won't damage for hurt to you

100% is high quality is very clear to define make sure correct to confirm mention for audiogoloy is. Audi and doctor is very strong assessment to your review,.

long time your possible long time your . you cannot fast times quick jump. I knew people have fast time serious people have jumping it sadly Cochlear implant cause damage nerve cause illness or perfect to cochlear become have professional lip reading cue speech. I understood I research some rare. odd. some rare people have jumping to awkward to ask to me mind to, I said to up to your to choice.

people have worry to Cochlear implant risk 2014 new technology costly, I understood observing to research study but. People have failure malufaure suppose have relpace to back to Cochlear implant. issues problem on repair. same exactly.I knew some rare Cochlear implant rare.

it is expect to better more relative to alike to improve development to mind your sound your skills lip reading. you goal sound I understand. you want to remove implant sometimes you up to you choice to up to you want to remove implant.

I said no choice to decide. I understand alikes cost will worst development to inexpensive. I said Good lucky to people Cochlear Implant have will failure. will happened show up. then happened modify sounds doesn't work you will make sure proper to functions. It is very careful sound.

it is very hard for you whether for your sound


Costly is very more than spending to for you.

I cannot do that do refusing to spending to insurance to for cochlear implant cause costly for expesnive for healthy Canada prevent policy. I knew wise avoid to Cochlear implant,, It will damage nerve cause affect to some make sure nerve your ear.

you want to up to your choice cochlear implant. mostly people have replace to remove implant then.



I cannot to help for you with for you, BUt you can do decide to think. who trust to opinion to your personal hard.
But I lost friends Cochlear implant Unfornately It is very difficult viewpoint my culture.


it costly is very expensive, so But I refusing to cochlear implant,

BUt I Have already imply I have lucky recovery healthy is very successfully :) impressive for me no damage. whew I am happy I scary Cochlear implant is very some danagerous. it is scary for me. It is risk level Cochlear implant.

I high Doubt Cochlear implant is very expesnive and costly failure.
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I'm not sure what you are trying to say but I think it is about cost of surgery.

My insurance (in the United States) is covering 100% of the cost. I only have to pay $150 copay for outpatient surgery.

This is a bit unusual for the states but just about every country also pays 100% for surgery (Canada, UK, Ireland, etc).

You say "you want to up to your choice cochlear implant. mostly people have replace to remove implant then." That is blatantly false if you mean most people have to have their electrodes replaced. In fact, very, very, very, few people need to have the electrodes replaced.
If that is not what you meant, please let me know, but over 95% of implant surgeries (even those with complicated anatomy) are successful for 15+ years.
 
ecp said:
I'm not sure what you are trying to say but I think it is about cost of surgery.

My insurance (in the United States) is covering 100% of the cost. I only have to pay $150 copay for outpatient surgery.

This is a bit unusual for the states but just about every country also pays 100% for surgery (Canada, UK, Ireland, etc).

You say "you want to up to your choice cochlear implant. mostly people have replace to remove implant then." That is blatantly false if you mean most people have to have their electrodes replaced. In fact, very, very, very, few people need to have the electrodes replaced.
If that is not what you meant, please let me know, but over 95% of implant surgeries (even those with complicated anatomy) are successful for 15+ years.
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I see. exactly It my insurance social worker benefit to really complication

Not sure USA and Canada different
Rules Canada is strictly.

I had experience first assessment to re-evaluation for surgery remove implant. Canada for remove implant for benefit insurance no costly, I understood whom is insurance which is costly doctor or consent agree to approval to CI team specialist to.

I did private to Ontology surgery remove implant. causes. Dr.Brain said remove implant. from BC reason. I have some uncomfortable not sure pretty. Dr already remove some magnet and everything wholes electronic wholes inside to the ear some. Dr. said headache you have headache that all simply I wonder I have horrible headache not good... replace to I have hearing aid doesn't' work enivormnet sound. I need to strong environment something sound skills

I want to second cochlear implant. CI team said not support to Mental. whom is costly and medical. I assurance CI team not support to Mental. doesn't work not improper, my obvious I am personal review SPARC not clear to interpreter third misleading to miscommunication failure. I understood, not whom misleading to interpreter professional, I understood misinterpreted quality legal is professional not match miscommunication for me, unfortunately, Audoigoly assurance to me I am not clear to talk to discuss to CI second what do ahead go, I now, I dropped to CI or later awkward

I assurance to Audio gist is very mistake misunderstand to third to interpreter or, I advise deaf interpreter implentation communication clear to understood will later . not yet. missing to communication problem on interperter aware failure.

I understood uneasy Cochlear Implant seems strictly.


I think so approximate $70,000 more addition add your implant will surgery will will increase your costly will expensive. it is serious. it approximate

malfurlare your equipment for your process replace remove or replace your risk magnet implant risk . I mention psychiast decide you already 10 years once times. I have enough experience two CI and Hearing aid too many.

I have defense to SPARC..,.


my dad is very costly purchaser inexpensive is before not sure long times SPARC and intepreter old. Edmonton pretty different rules . now SPARC ruin to my implant screw up system functions whom fault SPARC, that is why.


I think so strictly insurance to my benefit. professional medical or anytime assistant, I assurance to specialist serious I am normal healthy.

everything is normal is my healthy.


I am normal healthy fine. I understood prevent to mentally it is cause.

my cochlear implant right is magnet is weakness is failure. It seems magnet. I doubt to magnnet is odd.
it is too late.


I already social worker costly to purchurse governemnt approximate strictly rule.

gov cannot maximum increase worst to costly.

whom decide Audiolgy or CI surgery pay for surgery cochlear implant risk high make sure clear understood

Canada is Cochlear implant the Complication policy.

I understood depend on the Canada policy Saskatchewan pay or gov social worker or specialist to health

Saskatchewan Pediatric Auditory Rehabilitation Center - University of Saskatchewan
 
Did I "understand" you correctly-considering being ReImplanted for the second time? " I want to second implant".

Is this revaluation of your thinking?

aside: the total cost of my Cochlear Implant operation in 2007 was $55,000.00 fully picked up by OHIP_ Ontario Health Insurance Plan. Obviously I was approved. To date-no medical problem whatsoever.
 
sonocativo said:
Talked to my Audi today, he refered me to a specialist ( only one here in St. Louis who does them) so got to call and go get mri and all those goodies done.
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There's only one in St Louis that does them? That's a surprise....one would think there'd be a ton b/c of the private oral schools and Washington University.
 
"Thanks, Im nervous but really I have nothing to lose but very little residual hearing."
I'm feeling the same way. I keep having bad dreams and even day dreams that suddenly the doctor decided "nope, nope, nope".

That is what is so scary. Not having the surgery but NOT having the surgery. That terrifies me. I've adjusted to the risks and possible pain but the idea of much better hearing being taken from me...that is scary.
 
deafdyke said:
There's only one in St Louis that does them? That's a surprise....one would think there'd be a ton b/c of the private oral schools and Washington University.
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Yep and thats where he is WU.... same place I had my spinal surgery. Top of the line docs, and yes it is odd thats there is only one doc/surgeon who does the CI....odd.
 
sonocativo said:
Yep and thats where he is WU.... same place I had my spinal surgery. Top of the line docs, and yes it is odd thats there is only one doc/surgeon who does the CI....odd.
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He may be the only Dr at Wash U but there are doctors in all of the major medical centers in STL, Barnes, STLU, etc. that do CI's. A quick google search will show that.
 
sonocativo said:
Yep and thats where he is WU.... same place I had my spinal surgery. Top of the line docs, and yes it is odd thats there is only one doc/surgeon who does the CI....odd.
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Do you currently work? Just curious how supportive your employer has been through this and for any time off for recovery? I may be heading in this direction in future... Sill on HAs for now and hopefully awhile.
 
sappstter said:
Do you currently work? Just curious how supportive your employer has been through this and for any time off for recovery? I may be heading in this direction in future... Sill on HAs for now and hopefully awhile.
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Recovery time for most people is pretty minimal really. Most people can be back at work within a week of surgery. It's minimally evasive so not much trauma to recover from. You will be on lifting restrictions but that is pretty normal for just about any surgery so if you have a job that requires lifting you will probably have to get a Dr's note.
 
sonocativo said:
This question is for those with CI who were hearing before.
After receiving the CI and having it activated, did things sound the same or different, like someones voice? Music? I am just curious as I am seriously considering the option to have it done. Ive heard various stories but Id like to know first hand from someone who actually had it done. Thank you.
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You're asking a loaded question but I have many people on my side. You may not understand music. Phones? You won't know. I am consistently wearing my CI and everything still sounds like ducks but no one has seen that on the internet. Bleeding Purist made some suggestions similar (thanks, BP) to what my cochlear implanted social worker has said. He said it's the high frequencies I haven't heard and am now hearing for the first time. SHE said (and she has two separate things after her name) nothing should sound like a duck that the high frequencies may be set too high. A CI will let you PROCESS sounds. You do not hear them as sounds are not going through your ear.

No one can tell you how you will react to the implant. Careful of the websites you visit. NOTE if they are owned by one of the CI companies Cochlear (publicly owned and 65% of market), Adv Bionics (what I have publicly owned and 15% of market), Med-El (not public and 15% of market) and my suggestion (again I expect darts being thrown my way) is to avoid them. They will be specifically-targeted to drawing you in to their brand. Each company has its lovers and supporters. Some people have one of each (well, only two not three :) ). I'm not supporting what I have as I don't know how I will fare.

It is a tough and expensive, non-retractable decision. Best of luck. For me and where I live and have to go for this, it's a long and very tedious process. I feel too old to go through this - you may be fine. It is (don't let anyone talk you out of this) a risk on many levels as any surgery is. Yeah yeah yeah it's my other recording. But I'm speaking facts and my truths.
 
ecp said:
"Thanks, Im nervous but really I have nothing to lose but very little residual hearing."
I'm feeling the same way. I keep having bad dreams and even day dreams that suddenly the doctor decided "nope, nope, nope".

That is what is so scary. Not having the surgery but NOT having the surgery. That terrifies me. I've adjusted to the risks and possible pain but the idea of much better hearing being taken from me...that is scary.
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Pain's not so bad :) .
 
sonocativo said:
Yep and thats where he is WU.... same place I had my spinal surgery. Top of the line docs, and yes it is odd thats there is only one doc/surgeon who does the CI....odd.
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Doctor/Specialist professional do want to to reading everything your record to assessment health.. will Doctor or Audiology tell you answer. Good luck. if Doctor checked past surgery. if suppose happened risk surgery. the doctor wise to everything make sure evaluation for you.
 
SBirn said:
You're asking a loaded question but I have many people on my side. You may not understand music. Phones? You won't know. I am consistently wearing my CI and everything still sounds like ducks but no one has seen that on the internet. Bleeding Purist made some suggestions similar (thanks, BP) to what my cochlear implanted social worker has said. He said it's the high frequencies I haven't heard and am now hearing for the first time. SHE said (and she has two separate things after her name) nothing should sound like a duck that the high frequencies may be set too high. A CI will let you PROCESS sounds. You do not hear them as sounds are not going through your ear.

No one can tell you how you will react to the implant. Careful of the websites you visit. NOTE if they are owned by one of the CI companies Cochlear (publicly owned and 65% of market), Adv Bionics (what I have publicly owned and 15% of market), Med-El (not public and 15% of market) and my suggestion (again I expect darts being thrown my way) is to avoid them. They will be specifically-targeted to drawing you in to their brand. Each company has its lovers and supporters. Some people have one of each (well, only two not three :) ). I'm not supporting what I have as I don't know how I will fare.

It is a tough and expensive, non-retractable decision. Best of luck. For me and where I live and have to go for this, it's a long and very tedious process. I feel too old to go through this - you may be fine. It is (don't let anyone talk you out of this) a risk on many levels as any surgery is. Yeah yeah yeah it's my other recording. But I'm speaking facts and my truths.
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Yes I understand the "Bait" to get you to purchase "Their" product... Thats why I am asking everyone who has them (which brand, how are they for them, ect....) You can only get insight from someone who actually has them.

Example, my spinal surgery, doc was all "Yeah, you'll recover in 6 months" and people I talked to ( a friend had it done and a friend of the family whos a surgeon and had it done) both said it hurts like hell and look at 1-1/2 to 2 years recovery... and yes it took almost 2 years for the extreme pain to go away before I had the second surgery and I was scared as hell to do the second, but did it and now I need my lower/mid back fixed... not looking forwards to it.
I rather have the truth about it that suffer afterwards. Had my gall bladder removed, doc told me this and that... yeah, wish I never did it now.
 
I know its not the same surgery, but I had both my BAHA's done at once. It did take awhile to get used to sound again but I would not want to do desperate surgeries even if my insurance didn't have a clause that if not done simultaneously I'd have to wait 5 years. But I can only relate my experience... it really boils down to personal preference.
 
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