Qualified for a CI

Bear said:
Was mapped yesterday and today I got the roaring sound back in my ears is this normal?

Bear
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WHen you say the audi turned up some of the lower and higher frequency electrodes, did you actually listen to them to decide if the sound was to loud? I actually had a problem with 'loud'. To me the sound wasn't loud but the effects of the setting actually could be felt. :LOL: I learned at my second mapping to back off when I felt it. That first map was awful, and everything set off sirens for me. I also have the two lowest electrodes turned off cause when we turn them on it's a big buzz. :)

if the sound is when your processor is off then something triggered some tindinitus, did your map change alot? :(
 
Bear said:
While that all may be true Cloggy, I did say I respect that it is not my decision to make and it is the parents decision. I am just stating that after having my own implant done that I still feel children should not get it..........
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I realis that, but I needed to comment on your post, since the decision to implant a child should not depend on one's own experience. The cases are too far apart. That's what I wanted to comment on.

I feel that when a grownup chooses for CI, he/she chooses for NOW. When parents choose for a CI for their child, they choose for the FUTURE.

As you said, opinions differ, and points of view are different... It's important that we share each others point of view.
 
Bear and Cloggy, well said!

I find it very informative in reading this thread and to absorb everyone's different viewpoints.

Now I'm very anxious to have Fragmenter's family in town and I want to personally observe my grandson. I was even told that his voice had changed since the "turn-on"! :cool:
 
roaring sound = tinnitus. Consider it as "alarm" going off since your cochlea was invaded. Tell your brain to ignore it :D it is just telling your brian that their space is violated. LOL. It will go away... just a temporary. I did that and it went away quickly.
 
Cloggy said:
Just want to rectify some things..
The surgery being a risk is all relative. You did it and you theoretically could have died... leaving lots of people grieving, people that would depend on you. So, in that perspective, the operation has more risks for an adult than for a child.

But remember that from what I have read here, it's the adults that have pain after the surgery. My daughter, and appearently Isaac in another thread, have no pain withing a short time. So, in that respect, the operation is worse for adults.

Then you mention that CI is a lot of work, and I agree. But again, children are growing up and doing much of this work automatically AND their brain is in the phase where this learning is done easiest.

So, in a way, here are three reasons why CI should be done early:
1: Fewer risks - especially regarding other people depending on the patient,
2: Less pain,
3: Easier learning to use CI

But obviously there are personal reasons why a child should NOT be operated on.... Pitty for the child should not be one of them.... The child has the best staring position..
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well said.. that's what I would have said.
 
Cloggy said:
I realis that, but I needed to comment on your post, since the decision to implant a child should not depend on one's own experience. The cases are too far apart. That's what I wanted to comment on.

I feel that when a grownup chooses for CI, he/she chooses for NOW. When parents choose for a CI for their child, they choose for the FUTURE.

As you said, opinions differ, and points of view are different... It's important that we share each others point of view.
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:werd:
 
thanks everyone for the answers to my questions about the roaring sound I had it once after surgery and then not again till after the second mapping. So will ask the audi if that was caused by the mapping itself.

Still have some concerns that i will bring up at the next appointment on October 22nd. I am not sure how well this is gonna work out for me there are some sounds I could hear before that i am not hearing today. So, it is an up and down thing for me. There are times when I am very happy with it and times when Im not so happy. Today is one of those days when Im not so happy cause I am not hearing some of what I was hearing before such as the keyboard clicking. Not hearing that today at all.

So, all in all it is definitely an adventure lol.
 
Bear said:
thanks everyone for the answers to my questions about the roaring sound I had it once after surgery and then not again till after the second mapping. So will ask the audi if that was caused by the mapping itself.

Still have some concerns that i will bring up at the next appointment on October 22nd. I am not sure how well this is gonna work out for me there are some sounds I could hear before that i am not hearing today. So, it is an up and down thing for me. There are times when I am very happy with it and times when Im not so happy. Today is one of those days when Im not so happy cause I am not hearing some of what I was hearing before such as the keyboard clicking. Not hearing that today at all.

So, all in all it is definitely an adventure lol.
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Oh yeah that kind of things happens so your next mapping session, you can increase the threshold.

Try turning volume up a notch or so.
 
Ahh I see Boult at the last mapping he did turn it up more with the volume. But it never does seem loud enough to me. But he did program it to where I can increase the volume on my own but am afraid to do that. Simply because I am afraid of making it too loud for my ears. But for some reason it never seems loud enough and now my audi is like really? LOL so I think safer to leave it alone maybe?

Another problem I have been having is that damn thing keeps falling off. It wont stick there and then it gets tangled in my hair and then my hair becomes a tangled mess from having to get the thing out of my hair.

Anybody have a solution to that?
 
Bear said:
Ahh I see Boult at the last mapping he did turn it up more with the volume. But it never does seem loud enough to me. But he did program it to where I can increase the volume on my own but am afraid to do that. Simply because I am afraid of making it too loud for my ears. But for some reason it never seems loud enough and now my audi is like really? LOL so I think safer to leave it alone maybe?

Another problem I have been having is that damn thing keeps falling off. It wont stick there and then it gets tangled in my hair and then my hair becomes a tangled mess from having to get the thing out of my hair.

Anybody have a solution to that?
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Try go and have haircut to make short?? :lol: .. I knew you would said NO!!!!! rather long hair lol :lol:
 
You might try a "huggie" to keep the processor from falling off. It is a clear latex rubber type thing the connects to the ear hook and wraps around the front of your ear and then connacts to the bottom of your processor behind your ear. It loops around your ear. We use them on Lillys processor and have pretty good luck with them.
I have also seen people use double sided tape. They cut a small peice of it and stick the processor to the side of thier head.
 
Bear said:
Ahh I see Boult at the last mapping he did turn it up more with the volume. But it never does seem loud enough to me. But he did program it to where I can increase the volume on my own but am afraid to do that. Simply because I am afraid of making it too loud for my ears. But for some reason it never seems loud enough and now my audi is like really? LOL so I think safer to leave it alone maybe?

Another problem I have been having is that damn thing keeps falling off. It wont stick there and then it gets tangled in my hair and then my hair becomes a tangled mess from having to get the thing out of my hair.

Anybody have a solution to that?
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Put the processor on your shoulder.... With Lotte, we have it on her shoulder because running behind her putting the back every time... dot doable.
Also, the HA's she took off because they bothered her. (I can imagine since they did nothing for her, so they were just dead-weight) She now has nothing on the ear... Tried with double tape, but that was a nono from her point of view....
And think about it.... why should you have your ear on your ear :) Lotte now hear with her shoulders!!
Have a look here...
 
Just don't suggest duct tape! (some people, my husband included, seem to think duct tape fixes just about anything :giggle: )
 
Its not the BTE that keeps falling off it is the little round thing *not sure what they call that* that goes to the head that keeps falling and getting tangled in my hair. I cant figure out how to get it to stay there. I leave it when I hear it and always try to get it under my hair to no avail.

DMG good suggestion, but am wearing my hair up now and its still not helping. Am afraid I may have to end up wearing a hat to hold it in place and I hate hats!
 
Bear said:
Its not the BTE that keeps falling off it is the little round thing *not sure what they call that* that goes to the head that keeps falling and getting tangled in my hair. I cant figure out how to get it to stay there. I leave it when I hear it and always try to get it under my hair to no avail.

DMG good suggestion, but am wearing my hair up now and its still not helping. Am afraid I may have to end up wearing a hat to hold it in place and I hate hats!
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Sounds like you might need a stronger magnet...ask your audiologist...
 
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