Cochlear implant decision Kirsteen Allison
Kirsteen Allison says “When I was first told I should consider a cochlear implant, I underwent a few weeks of shock as I did not think I was deaf enough. Also anger because my audiology department had led me to believe my hearing would not deteriorate further.
I wasn’t against the idea at all. I know some deaf people are, but this is because perhaps they come from an ‘all deaf’ family, or never had any hearing. Perhaps they only ever used sign language and never used lip reading or hearing aids.
There are many ‘anti CI’ deaf people and I encountered many of them in the run up to getting an implant. Similarly some who had CIs acted as though they felt I was not as ‘deserving’ as them, perhaps because I had ‘coped’ better than they had (mainstream school, less problems getting employment etc). (I don’t socialise with any of them any more)
I wasn’t really aware of what a cochlear implant could do. I knew it improved your hearing, restored ‘some’ hearing if not all, but my knowledge was limited. I did lots of research online in the run up to my assessments, and got answers this way.
I knew two people with cochlear implants prior to my own assessments. One of them had a blog with lots of answers and detailing the process, how she felt etc. This was very helpful. I was able to speak with them about the side effects, what the new sounds sounded like etc.
At first I found it hard to believe I really needed a cochlear implant, I did not think I was deaf enough. It was only the revelation that my hearing loss was progressive and without it, I would end up with no hearing whatsoever that made me decide to go for it. I feel like I didn’t have any other choice. Plus my ENT doctor was very blunt about my need for one and my level of deafness!
No one in my family was against the idea. My mum was more concerned about the operation aspect of it. My dad was fascinated by how it all worked (being a science teacher etc!).
My daughter’s only 4, but she was already aware that I needed my hearing aids to hear her, and her view of it was that I was getting a ‘new ear’ and that my hearing would be ‘fixed’.
I think my colleagues and friends expected 100% hearing. Certainly after the operation they were going ‘can you hear me now’? I had to say to them I could hear them before! albeit with hearing aids, and slightly less well.
I knew from online research that other implantees were able to use a telephone again or enjoy music and I hoped for this myself.
My mum was worried about it ‘not working’ but I didn’t really dwell on this as I knew only a small percentage failed. I was more concerned about the hearing from the implant being the same as the Hearing Aid, in other words, just the same.”
Webpage published: 2012
I wasn’t against the idea at all. I know some deaf people are, but this is because perhaps they come from an ‘all deaf’ family, or never had any hearing. Perhaps they only ever used sign language and never used lip reading or hearing aids.
There are many ‘anti CI’ deaf people and I encountered many of them in the run up to getting an implant. Similarly some who had CIs acted as though they felt I was not as ‘deserving’ as them, perhaps because I had ‘coped’ better than they had (mainstream school, less problems getting employment etc). (I don’t socialise with any of them any more)
I wasn’t really aware of what a cochlear implant could do. I knew it improved your hearing, restored ‘some’ hearing if not all, but my knowledge was limited. I did lots of research online in the run up to my assessments, and got answers this way.
I knew two people with cochlear implants prior to my own assessments. One of them had a blog with lots of answers and detailing the process, how she felt etc. This was very helpful. I was able to speak with them about the side effects, what the new sounds sounded like etc.
At first I found it hard to believe I really needed a cochlear implant, I did not think I was deaf enough. It was only the revelation that my hearing loss was progressive and without it, I would end up with no hearing whatsoever that made me decide to go for it. I feel like I didn’t have any other choice. Plus my ENT doctor was very blunt about my need for one and my level of deafness!
No one in my family was against the idea. My mum was more concerned about the operation aspect of it. My dad was fascinated by how it all worked (being a science teacher etc!).
My daughter’s only 4, but she was already aware that I needed my hearing aids to hear her, and her view of it was that I was getting a ‘new ear’ and that my hearing would be ‘fixed’.
I think my colleagues and friends expected 100% hearing. Certainly after the operation they were going ‘can you hear me now’? I had to say to them I could hear them before! albeit with hearing aids, and slightly less well.
I knew from online research that other implantees were able to use a telephone again or enjoy music and I hoped for this myself.
My mum was worried about it ‘not working’ but I didn’t really dwell on this as I knew only a small percentage failed. I was more concerned about the hearing from the implant being the same as the Hearing Aid, in other words, just the same.”
Webpage published: 2012