Otosclerosis is my final diagnosis

Ksnurse2012

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So after talking with everyone at my audiology clinic, I have otosclerosis and I'm on my way to permanently being deaf. I am not a surgical candidate. And I'm totally ok with that.

Sent from my SPH-L710 using AllDeaf App mobile app
 
Absolutely, for awhile I was starting to think that they thought i was crazy.

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That could take awhile ;) took me oh about 17 years between the two ears.

Why can't they do a stapedectomy? I didn't get one because I had no insurance. Bit I also have cochlear otosclerosis so I don't just have bone conduction loss I have sensorineural as well. It's pretty much all gone now. Profound to no response in my left ear and profound in my right. I don't even hear myself talking anymore without my aid in.

Oh yeah, so when your getting hearing aids make sure you get ones that have room to accommodate progressive loss. My hearing went in waves. It'd be stable for a few years and then another drop in hearing, and I'd end up having to get more powerful aids.
 
Thanks for your advice. Right now my insurance wants to pay for hearing aids instead of surgery, maybe at a later time I will be.

Sent from my SPH-L710 using AllDeaf App mobile app
 
So after talking with everyone at my audiology clinic, I have otosclerosis and I'm on my way to permanently being deaf. I am not a surgical candidate. And I'm totally ok with that.

Sent from my SPH-L710 using AllDeaf App mobile app

Talking to everyone at your audiology clinic is not exactly a safe and foolproof way to get a diagnosis.

You really need to see an otolaryngologist or otologist qualified to make this diagnosis and rule out other diseases or processes that could be dangerous to your overall health
 
Talking to everyone at your audiology clinic is not exactly a safe and foolproof way to get a diagnosis.

You really need to see an otolaryngologist or otologist qualified to make this diagnosis and rule out other diseases or processes that could be dangerous to your overall health

I saw his nurse practitioner yesterday. I know he was consulted during my visit. But thank you for being concerned

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I had been originally diagnosed with it by an ENT. Then like a year later I had to get aids, at first it was just my left ear, when it started going in my right it was unavoidable. I had lost so much during that year that they were afraid I might have a tumor so they had me get an MRI. Nothing, then they sent me to a specialist in Boston and he had me get a CTscan, that's when I got diagnosed with otosclerosis and cochlear otosclerosis.

Was it just your audi or did you at least get this from an ENT? There's tests they can do for it, measures how your ears adjust to pressure changes, that's a symptom of it but I don't know if its enough fir a diagnosis.

It's hereditary, and prevalent in women, is there anyone else that started losing their hearing in your family. Somewhere between ages 20 and 40? My mother and aunt have it, both have gotten stapedectomies. I started losing mine before my mother though. Started when I was 20. I'm 39 now, and just got to profound in my good ear I don't know like 2-3 years ago. So it takes awhile.
 
I think I'm going to ask for a ct scan. I noticed my hearing loss out of the blue. But I failed the pressure change portion of my hearing screen and the bone conduction test was apparently their determining factors

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I know. For some stupid reason United health care prefers to avoid surgery costs and to pay for dme.

Sent from my SPH-L710 using AllDeaf App mobile app
 
Well they won't do it at the beginning of your progression. The disease would just progress more and you'd need it done again. As far as I know they wait a bit, until your loss has stabilized and seems to have stopped the progression.

I could be wrong, I'm not a doctor :)
 
It is factual-hearing aids are substantially cheaper than Cochlear Implants which entails surgery/hospital care.
aside: from my very direct experience with both-over the years.
 
It is factual-hearing aids are substantially cheaper than Cochlear Implants which entails surgery/hospital care.

aside: from my very direct experience with both-over the years.


Otosclerosis, normal typical otosclerosis causes bone conduction loss. A cochlear implant isn't the go to surgery for treatment of it. A stapedectomy is, but really it's probably too early for her to have it done yet.
 
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