Odd ? - Do any of y'all know of a CI forum that gives demerits?

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SBirn

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I made a comment in a forum that was quite harmless. Maybe I had a virus on my old laptop and I'm using a different pc now. But I received "500 demerits." I've been asked about what site that may have been. Does anyone have any clue?

It would have been related to a cochlear implant.

Many thanks.
 
lol back and let me trump your remark... I'm 59!

Some of these websites are just off the wall. I had a post taken down from another (CI-owned) site because a woman said she was scared of getting CI surgery. I pretty much said I agree that was it. Then BBBBBOOOOOMMM (uh, I went to bed) I had a note from the moderator telling me to delete my comment or they would do so for me by 10 pm that night. Unfortunately (it was too late) I have their CI :) so that's a little more irony for ya.

I'm 59 years old for goodness sakes. I may be feisty :) but I'm not stupid and would not say anything inappropriate.

Your remark was a good one. Thanks for the laugh. But an electrical engineer I know wants to know which site gave me the demerits. Bad bad bad little girl (moi). I'm just kidding about the bad girl but ironic, right on.
* * *
I have severe-to-mostly profound losses in both ears. Right ear was massively operated on in October at which time I got an implant. I was born with a loss that got progressively worse.
 
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Doesn't surprise me........they can be very strict over at the CI forums.....
 
Sort of silly if ya ask me....anyway, while in high school, I got so many dermerits that I was "campused" every month....:giggle:...waking up late, forgot to dust well...etc., etc.
 
All technology can go wrong when it becomes ages. What kind of forum did you were warned ?
 
DeafDyke: Yes, I agree. The forums are strict when they are owned by one of the three implant companies. It's their right (I know you didn't say it wasn't) but by doing this, it is limiting real information from reaching the internet. I know this happens, too, like GE (PCB polluters of the Hudson River) owning television news stations. So, we base our lives on bogus info. I may have made an error getting a CI based on the lack of real info available and while (again) it's life, it ends up potentially being a really bad one. It also makes me question what's true and what isn't ... everywhere in life.

Rockin: You are funny! My thought was what? I never got demerits! But at my age to be "treated" like this with demerits and having a sympathetic statement removed from a CI-owned site is ridiculous and they're doing it for some unknown reason and it can't be good.

Frisky: Super point. I don't remember and a guy I know who has a CI wants to know. But the non-CI owned sites tend to be a lot more lax. CI sites want negative publicity (sorta) completely off their site. That's why I came back here to y'all hoping someone would know. I deleted the few emails I had to and from them.

Let me just mention one last thing here and I'll check back periodically instead of a lot :) . I did the research I could without knowing for sure if I would be accepted. In my case, while I don't think an audiologist is allowed to recommend a specific brand, I had no audi until ten days prior to surgery and I live @5.5 hours away. So the information we came up with and the choice made is based on somewhat faulty information. Where that will leave me, I will learn in time. I don't care that it's the way America is these days. It's not good stuff.

Anyway, I'm glad to be hear with you guys. Thanks, everyone.
 
Not surprising that the CI companies don't want any negativity about their precious CIs on their websites. It is all about money, not about the people. :roll:
 
shel90 said:
Not surprising that the CI companies don't want any negativity about their precious CIs on their websites. It is all about money, not about the people. :roll:
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That's an uneducated statement. You do not know if the site referred to was even a company owned site. AB does provide a range of very patient oriented services that are precisely about the people. Paranoid hysteria serves no purpose. It's a business. That does not make it evil or non people oriented.

In the case of the removed post: do you really think someone facing surgery wants negative reinforcement? The risks of any surgery are reviewed with every patient. When someone says "I'm scared" they do not want or need "Yes, you should be." That's a simple-minded, ignorant approach. CI surgery is very low risk surgery. That is a fact. When someone faces truly high-risk surgery, say a brain tumor removal, you don't respond to a statement of fear with "Yes, be afraid. You will likely die." You hold their hand. At least, that is what a mature, intelligent person does.

With CI Surgery, someone who has been there reassures a patient who is worried. Realistically and statistically, there is nothing to worry about. Your chances of being in a car accident every time you get behind the wheel are higher than the chance of complications due to surgery.
 
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I hate that someone said, CI surgery is very low risk surgery. PLEASE don't say that.

my girlfriend who had a csection and she almost died from it.

the little girl who had tonsil removed and she died.

Someone who had CI and have really bad balance than before. If someone had never had CI surgery then the balance would be not too bad.
 
BleedingPurist lives up to the name

BleedingPurist said:
That's an uneducated statement. You do not know if the site referred to was even a company owned site. AB does provide a range of very patient oriented services that are precisely about the people. Paranoid hysteria serves no purpose. It's a business. That does not make it evil or non people oriented.

In the case of the removed post: do you really think someone facing surgery wants negative reinforcement? The risks of any surgery are reviewed with every patient. When someone says "I'm scared" they do not want or need "Yes, you should be." That's a simple-minded, ignorant approach. CI surgery is very low risk surgery. That is a fact. When someone faces truly high-risk surgery, say a brain tumor removal, you don't respond to a statement of fear with "Yes, be afraid. You will likely die." You hold their hand. At least, that is what a mature, intelligent person does.
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When someone says they are scared, there is nothing wrong to say what I did and that was that I was scared as well. I was and was telling the truth rather than hiding it. "Simple-minded, ignorant approach?" That's quite a mouthful and arrogant and I am neither simple-minded nor ignorant. Is this a reflection of something? No one connoted or denoted "Yes, be afraid. You will likely die." That's going to extremes and is ridiculous. Finally, the statement was her reality as it was mine except you are saying it's not "our" reality, which makes you a mind reader. Don't tell me you know how things would be after her surgery or mine. You had no clue and you had no idea what was involved.

Ah, going back to the beginning. Since I am neither ignorant (we'll add uneducated in there) nor simple-minded, you made an assumption. You know what that means. I know exactly what website it was and who owns it. Paranoid? No. Are you as your statements of your fact (that are not) indicate it. Rhetorical.

What are you out to do, bully people from the internet? Well, I suppose we all need an outlet somewhere.
 
SBirn said:
When someone says they are scared, there is nothing wrong to say what I did and that was that I was scared as well. I was and was telling the truth rather than hiding it. "Simple-minded, ignorant approach?" That's quite a mouthful and arrogant and I am neither simple-minded nor ignorant. Is this a reflection of something? No one connoted or denoted "Yes, be afraid. You will likely die." That's going to extremes and is ridiculous. Finally, the statement was her reality as it was mine except you are saying it's not "our" reality, which makes you a mind reader. Don't tell me you know how things would be after her surgery or mine. You had no clue and you had no idea what was involved.

Ah, going back to the beginning. Since I am neither ignorant (we'll add uneducated in there) nor simple-minded, you made an assumption. You know what that means. I know exactly what website it was and who owns it. Paranoid? No. Are you as your statements of your fact (that are not) indicate it. Rhetorical.

What are you out to do, bully people from the internet? Well, I suppose we all need an outlet somewhere.
Click to expand...

Mostly we just ignore Bleeding Purist. He is out to get the kickbacks for pushing his brand of CI>

He's notorious for this type of bullying.
 
Ah, little Frisky !

Frisky Feline said:
I hate that someone said, CI surgery is very low risk surgery. PLEASE don't say that.

my girlfriend who had a csection and she almost died from it.

the little girl who had tonsil removed and she died.

Someone who had CI and have really bad balance than before. If someone had never had CI surgery then the balance would be not too bad.
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(Love your handle. I cannot tell you how many "kitties" as my dad used to call them I owned ... lol ... literally, I can't remember but a lot. So your "handle" is special to me and now I own a dog but he's little and adorable like a kitty.)

Yo, Frisky Feline :) , I just responded to the "purist" and needed to see your response again. I believe I have thanked you before and I do so again. I'm a volunteer here in Asheville and I can't tell you how many MRSA warnings there have been at various centers. I think I knew about it before but when training for the volunteer job (pet therapy), the hospital warned us about MRSA. Even a senior citizen home was pretty much in lock down a couple times a year.

I had a few surgeries done at once. I anticipated feeling pretty bad from all of them, so investigated having one done in advance and getting over it before the next ones. One of the issues we all discussed - had nurse friends so I wasn't doing this in a vacuum - was the safety of having it done here. The local specialist who saw me said he was unable to do it. So it was all done at the top-rated hospital that was hours away.

Purist can say what he/she wants. It's one of the things that happens on this website. People really do appear to have a right of free speech and that right does not exist in many places anymore. In that sense, I'm really glad we can "type" our minds. It doesn't mean we must believe what other perhaps ignorant people type. So ignore it. I've had so many things happen in my own family and to me that I know enough about what can happen. We do our best to prepare and hope for the best but I won't go around telling people there are no surgical risks. You just named two and I have a list of my own. That doesn't make us paranoid :) but smarter and perhaps a bit better prepared. I'm very sorry about your c section friend and the little girl who died from tonsil surgery.

Take care. :wave:
 
Bottesini said:
Mostly we just ignore Bleeding Purist. He is out to get the kickbacks for pushing his brand of CI>

He's notorious for this type of bullying.
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MAN! BP's bs caught my eyes and I zeroed in on it! I missed your response and we sorta said the same thing.

I dunno if he gets kickbacks for Adv. Bionics because his/her response is so ______ fill in the blank however you wish. It can either have you run to AB (but why ...) or think, "Why the heck would I want to go to them with a ____ like that runnin' around :)!

Next time, I will read FIFO - first in first out (or first in, first read in forums). I think your pseudo-statement of, "Ignoring (bp) is bliss," is best and I will do that. Gadzooks (and hey, thanks).
 
SBirn said:
When someone says they are scared, there is nothing wrong to say what I did and that was that I was scared as well. I was and was telling the truth rather than hiding it. "Simple-minded, ignorant approach?" That's quite a mouthful and arrogant and I am neither simple-minded nor ignorant. Is this a reflection of something? No one connoted or denoted "Yes, be afraid. You will likely die." That's going to extremes and is ridiculous. Finally, the statement was her reality as it was mine except you are saying it's not "our" reality, which makes you a mind reader. Don't tell me you know how things would be after her surgery or mine. You had no clue and you had no idea what was involved.

Ah, going back to the beginning. Since I am neither ignorant (we'll add uneducated in there) nor simple-minded, you made an assumption. You know what that means. I know exactly what website it was and who owns it. Paranoid? No. Are you as your statements of your fact (that are not) indicate it. Rhetorical.

What are you out to do, bully people from the internet? Well, I suppose we all need an outlet somewhere.
Click to expand...

Was that really all you said? "I'm scared as well." Or is that what you were feeling but what you actually typed was something else?

You made a run of assumptions from a post of mine that was pretty logical, reasonable and wasn't a reply to you. I provided example of possible responses to someone who is scared and deemed them simple-minded and ignorant... because they are. I don't know what you actually said, but I'm pretty sure it wasn't "I'm scared as well" if you were told to remove it. For you to react as you did indicates I must have hit close to home even though I didn't say you said any of those things.
 
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Bottesini said:
Mostly we just ignore Bleeding Purist. He is out to get the kickbacks for pushing his brand of CI>

He's notorious for this type of bullying.
Click to expand...

I do not get kickbacks and it isn't about pushing a brand of CI. Sheri is not telling the whole truth and is playing victim. I understand her fears and disappointment. Rather than actually listen to professionals and people who have been there, she chooses to run with her notions.

I take issue with the irresponsible statements often made on the topic here that are right in line with conspiracy theorists who have convinced parents not to vaccinate their children with zero consideration for the repercussions of making that decision. If that makes me a bully. So be it.
 
BleedingPurist said:
That's an uneducated statement. You do not know if the site referred to was even a company owned site. AB does provide a range of very patient oriented services that are precisely about the people. Paranoid hysteria serves no purpose. It's a business. That does not make it evil or non people oriented.

In the case of the removed post: do you really think someone facing surgery wants negative reinforcement? The risks of any surgery are reviewed with every patient. When someone says "I'm scared" they do not want or need "Yes, you should be." That's a simple-minded, ignorant approach. CI surgery is very low risk surgery. That is a fact. When someone faces truly high-risk surgery, say a brain tumor removal, you don't respond to a statement of fear with "Yes, be afraid. You will likely die." You hold their hand. At least, that is what a mature, intelligent person does.

With CI Surgery, someone who has been there reassures a patient who is worried. Realistically and statistically, there is nothing to worry about. Your chances of being in a car accident every time you get behind the wheel are higher than the chance of complications due to surgery.
Click to expand...

Not an uneducated statement. CI companies are businesses, aren't they? It is a fact.
 
SBirn said:
When someone says they are scared, there is nothing wrong to say what I did and that was that I was scared as well. I was and was telling the truth rather than hiding it. "Simple-minded, ignorant approach?" That's quite a mouthful and arrogant and I am neither simple-minded nor ignorant. Is this a reflection of something? No one connoted or denoted "Yes, be afraid. You will likely die." That's going to extremes and is ridiculous. Finally, the statement was her reality as it was mine except you are saying it's not "our" reality, which makes you a mind reader. Don't tell me you know how things would be after her surgery or mine. You had no clue and you had no idea what was involved.

Ah, going back to the beginning. Since I am neither ignorant (we'll add uneducated in there) nor simple-minded, you made an assumption. You know what that means. I know exactly what website it was and who owns it. Paranoid? No. Are you as your statements of your fact (that are not) indicate it. Rhetorical.

What are you out to do, bully people from the internet? Well, I suppose we all need an outlet somewhere.
Click to expand...

My outlet is aggravating people like BleedingPurist and get them to bully others. :D
 
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