Need your opinions ci user

[Redskin]

Hi,

some of you know already that my hub has been having bad tinnitus, dizziness and veritgo and OFF BALANCE especially. Before He recevied CI, his balance was not that bad, very little. After he got a CI, and his balance got worse and worse each year. His dizziness is on and off. BUT the MOST part that has been bothering my hubby is, Tinnitus and off balance when he got CI and they both are worse. He asked me for my opinion, what if he removes his CI, will his balance returns to the orginial ones or will go WORSE one. Tinnitus may go worse but he cant stand the feeling when the balance is horrible. I was choked when he asked me if i think will it help if he removes his CI.. i said to him, " i thought you like CI?" He said, " I dont care i cant stand the off balance rather than listening to CI." i feel helpless not able to help him.

Anyone of you who had experiences with off balance after you guys got CI??

p.s. He did ask doctor but you all already know that most doctors WONT admit if there goes wrong.

You need to stick to the drs diagnosis. If the dr didnt recomend removing the CI then the CI is NOT the problem. I friggin guarantee you. Its rather something inside the disease state, not the CI. I promise. The drs are on your side. If the CI caused it the DR would HAVE to remove it. Its not the ci.

 

[Frisky Feline]

We haven't talk to dr. He did make mistake couples of times for more than 10 yrs. sure he did a good job but he's not the one who deals with all his condition. Like I said. Every Doctors do make mistakes of course they are not god.


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[ecp]

He has been seeing two different doctors. Nothing about it and saw the doctor who performed him. He didn't know and said. It should reduce the tunnius. NOT.


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Your husband needs to see a neurologist. I highly doubt the cochlear implant is causing problems but a multitude of conditions can cause vertigo and imbalance.
What is worrisome is that he walks like he is drunk. That is more indicative of peripheral nerve problems. Does he complain that the world is spinning even if he is sitting still? Or is his complaint that his feet feel unsteady? Those are two totally different things.

 

[soutthpaw]

My second CI really messed up my balance in that i could not put my head upside down or do any type of flip or roll etc as well as rapidly move my head back and forth. i had to give up snowboarding due to the constant change in head position as well as rolling when crashing. It has got mildly better over the last few years but that was implanted in 2007 and the Dr made no mention of it as a side effect before either of my implants and had no idea what was/ is causing it. Also my experience is that i get like instantly and severe "motion sickness" for several hours after such an event. so its not like I am having actual Vertigo. which i have had so i know what it is like to experience.
not sure that removal would help. the damage I feel, was caused by the surgery itself. I did actually think about having it removed also but have not indication that anything would improve. in fact it would be more likely to make it worse due to a second trauma from removal...

 

[NYNY]

Hi,

some of you know already that my hub has been having bad tinnitus, dizziness and veritgo and OFF BALANCE especially. Before He recevied CI, his balance was not that bad, very little. After he got a CI, and his balance got worse and worse each year. His dizziness is on and off. BUT the MOST part that has been bothering my hubby is, Tinnitus and off balance when he got CI and they both are worse. He asked me for my opinion, what if he removes his CI, will his balance returns to the orginial ones or will go WORSE one. Tinnitus may go worse but he cant stand the feeling when the balance is horrible. I was choked when he asked me if i think will it help if he removes his CI.. i said to him, " i thought you like CI?" He said, " I dont care i cant stand the off balance rather than listening to CI." i feel helpless not able to help him.

Anyone of you who had experiences with off balance after you guys got CI??

p.s. He did ask doctor but you all already know that most doctors WONT admit if there goes wrong.

My 4 cents worth ...
One of the initial side-effects listed for CI is tinnitus. I had it prior to surgery a couple years ago likely due to otosclerosis and to a lesser extent simply growing older and having the celia bend (celia carries sound to hear and when bent, it causes different degrees of tinnitus) but it's exponentially worse now. It is not uncommon. It can also drive a person pretty nuts, so I just have to really focus on getting things done and pushing through the constant sound. It's not easy. My tinnitus tends to get worse at night when I take off my CI. It makes sense because the implant processes sound and for me acts like a "white noise" and somewhat masks the noise.

Dizziness is also listed as a possible side-effect and I experienced it probably for the first half-year periodically and momentarily. I kept hoping it would go away and it did for me. Sorry about the continuing problem with your husband.

The brain is mysterious and different to some degree for anyone with a CI. I wish you luck.

 

[Frisky Feline]

My 4 cents worth ...
One of the initial side-effects listed for CI is tinnitus. I had it prior to surgery a couple years ago likely due to otosclerosis and to a lesser extent simply growing older and having the celia bend (celia carries sound to hear and when bent, it causes different degrees of tinnitus) but it's exponentially worse now. It is not uncommon. It can also drive a person pretty nuts, so I just have to really focus on getting things done and pushing through the constant sound. It's not easy. My tinnitus tends to get worse at night when I take off my CI. It makes sense because the implant processes sound and for me acts like a "white noise" and somewhat masks the noise.

Dizziness is also listed as a possible side-effect and I experienced it probably for the first half-year periodically and momentarily. I kept hoping it would go away and it did for me. Sorry about the continuing problem with your husband.

The brain is mysterious and different to some degree for anyone with a CI. I wish you luck.

Thank you for your time to reply here. Yeah I think he better leave it alone for now. Yes at night, its worse and keeps him up at night and hardly sleep well.

by the way, welcome on the forum.

 

[NYNY]

Thank you, Frisky Feline, for the welcome.

If your husband finds something that works for him, please let us know. If I learn anything (besides intensely focusing through the noise to get through the day), I will let you know. I don't know what to even write about night time noise when the CI comes off other than it makes a lot of sense that it happens. People who hear and have tinnitus are told to try an aid to mask the noise. But that's not an option for us other than wearing the equivalent - the CI - and I can't wear that to sleep and it doesn't block the intensity of some sounds.

I am concerned about your husband's dizziness, though. Good luck to both of you. I'll be interested in learning anything from anyone here about this.