My audiologist appt wasn't so great...

Thats great I was told they do EVERYTHING with the insurance and thats why I made the appt.
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Most insurances don't cover anything related to the ears, and if they do-- it's usually a refund. Like my hearing aids are covered by my insurance, however I need to pony up the costs, send in the receipts then get reimbursed for it after the initial purchase which takes a few weeks. So even if my insurance does cover them, I need to fork up the money FIRST, then I will get the money back in 2-3 months.

Now if you are looking for sympathy about your other losses and conditions, we don't do that here. If you want to understand why people treat you the way they do from a cultural or sociological aspect, they might explain to you.
 
Oh come on ladies and gentlemen, this isn't school playground, lets be ambicable! (sp?)
 
Bottesini said:
Do you really think she is not coming back for one last hurrah!! :lol:
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Sallylou and Bottesinnii, sorry to see that the two of you have such a large chip on YOUR shoulders that you have to piss on everyone else's experiences and turn it into your own Pity Party. Even though you have wrote a majority of the posts, you have contributed nothing to this thread that is constructive nor worthwhile. I did not realize this forum supported two obvious trolls who have done about as much to alienate new members as a rabid pack of middle-schoolers. I was getting pretty upset at the thought of not finding acceptance in any community but I was reminded that it is really only two people who are bitter about life.

I honestly do not know how this turned into a thread the differences and fallibilities of various insurance agencies or about sympathy....oh wait, that was twisted in by the trolls, too.....

On a more upbeat side, I am extremely grateful for the inputs of those others who had something supportive & constructive to write. I hope in the future, those who do not have at least 1000 posts here, can get some level of respect and acceptance.

Bottesinni & Sallylou, I hope you both have a blessed day.
 
redmachchick said:
Sallylou and Bottesinnii, sorry to see that the two of you have such a large chip on YOUR shoulders that you have to piss on everyone else's experiences and turn it into your own Pity Party. Even though you have wrote a majority of the posts, you have contributed nothing to this thread that is constructive nor worthwhile. I did not realize this forum supported two obvious trolls who have done about as much to alienate new members as a rabid pack of middle-schoolers. I was getting pretty upset at the thought of not finding acceptance in any community but I was reminded that it is really only two people who are bitter about life.

I honestly do not know how this turned into a thread the differences and fallibilities of various insurance agencies or about sympathy....oh wait, that was twisted in by the trolls, too.....

On a more upbeat side, I am extremely grateful for the inputs of those others who had something supportive & constructive to write. I hope in the future, those who do not have at least 1000 posts here, can get some level of respect and acceptance.

Bottesinni & Sallylou, I hope you both have a blessed day.
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You just can't seem to get the message that almost everyone here has far greater problems that you. We don't have time or inclination to hold your hand.

I don't know what you perceive as troll but you are incredibly hostile.
 
Bottesini said:
You just can't seem to get the message that almost everyone here has far greater problems that you. We don't have time or inclination to hold your hand.
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And you obviously cannot read.

Or maybe it is a comprehension problem?

Let me know how I can clear this up for you.
 
Bottesini said:
You asked for a site like this and I am posting it again, since you are not finding what you want here.
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As I wrote a few minutes ago, I have realized it is not the whole forum here, just two individuals....

Now we are going back to that reading and comprehension part....thanks for continuing to contribute nothing but negativity.

I honestly do hope your day gets better.....
 
redmachchick said:
As I wrote a few minutes ago, I have realized it is not the whole forum here, just two individuals....

Now we are going back to that reading and comprehension part....thanks for continuing to contribute nothing but negativity.

I honestly do hope your day gets better.....
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I am having a great day. Sadly I must leave soon or we could continue this delightful discourse.

I am not even close to the top in what you perceive as negativity.

Slow day here on Saturday.
 
Sadly wise heads prevail, and I am putting you on ignore. :(
 
redmachchick said:
How dare any of you say I'm here looking for sympathy...apparently some of you can't read. Its empathy, get a dictionary...look it up. Two different meanings.
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I have empathy for your hearing loss. It's just that I don't see what there is to complain about when your audi is going by tests that are only a week old. They're only a week old and unless you had a sudden change in your hearing or your hearing goes in and out, then it's perfectly reasonable to go by results that are only a week old. So to be honest, I don't empathize with that complaint.
How dare any of you lessen my experiences and my problems just because I may hear better than some of you...does that make it any less different?
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It's not about you being HOH or deaf, it's about the fact you're complaining about things that several posters can't relate to.
I have put up with crap all my life, petty shit, insensitive shit, cruel shit, from the hearing but I didn't expect it to come from here. I came into this world partially deaf, partially paralyzed on my face and partially blind in one eye...people have treated me different and and sometimes horribly just because I don't fit into their mold of whats "perfect"...even from my own family...my own parents...no one thought I would amount to much.
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So has everyone. Not even just deaf or disabled people. Several people on AD have several other disabilities. Several people have family members that are crappy about the whole Deaf/Hoh ordeal.

In addition to being HOH, I'm blind and have some other health conditions too. I'm sorry to say you're not necessarily worse off than everyone else on the forums. And everyone deals with crap in life for whatever reason. If you are going to try to prove you are worse off than everyone else, then people won't be as willing to empathize.

There is going to be a point in my life where I will probably be deafer than I am now...where I may be in some of your shoes, that is a very possible reality for me. I would NEVER EVER talk to someone HOH the way you have to me...Its not always roses and puppies and fairy tales on this side of the fence either. If I do indeed become more deaf than I am now.. I will think twice about coming into the deaf culture because its obviously just as judgmental and cruel as the hearing world.
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Deaf culture and hearing culture aren't judgmental. There are judgmental individuals in each group and non-judgmental individuals in each group. Choose your friends wisely from either group and you'll be fine.
As for the insurance..why does it matter so much to some of you how much I pay or don't pay. Is it jealousy? Why should it matter?
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You brought up the military doctor. It doesn't matter but it's just something to be thankful for.
Yes, my insurance pays 100% and I'm very sorry that some of you have to pay out of pocket. I wish it was different and everyone here could get their hearing stuff paid for. My husband is military..the military provides for its active duty members and their family...hearing loss is a big deal. My hubby works hard serving his country, working long hours and lots of time away from his family and it sometimes can be dangerous It is definitely a perk, a benefit. So go ahead, cheapen that experience too...
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Yes, hearing loss is a big deal for a lot of people. It was for me at first too. But don't expect it to be a huge deal for everyone on a deaf website.
 
CJB said:
In addition to being HOH, I'm blind and have some other health conditions too. I'm sorry to say you're not necessarily worse off than everyone else on the forums. And everyone deals with crap in life for whatever reason. If you are going to try to prove you are worse off than everyone else, then people won't be as willing to empathize.
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CJB, this is not at all about me being worse off than anyone else here and I have never wrote or tried to imply otherwise. Not once. NOT ONCE.

The only point I have about the matter is that this is the LAST place I would have expected to feel discriminated against for whatever level of hearing I may have. How many times do I have to write this?

I am happy to get some of the inputs from people here but damn if the misunderstanding and downright hateful attitude I find here make me want to beat my head on the desk. I am honestly tired of having my words taken out of context here by a few people who cannot take the time to read what I am writing. Please, can a mod close this thread because it has became worthless.....
 
While you think we are misinterpreting you, I think you are misinterpreting many of us as well. Believe me, I am empathetic. I understand how frustrating it can be, lord knows I have found myself crying many times after days at my mainstream university. However, if you hang on those days you aren't going to move forward.

To everyone here - we all need to remember that to some people being hearing loss or disabilities can be tragic and difficult to deal with. Some of us adjust fine, some of us don't. Every one of us has had some sort of frustrating or upsetting experience as a result of other peoples ignorance to our hearing loss, culture, or language. That is universal to our community and not something we can ignore.

I think what Bott and others have been trying to say is that we all deal with this stuff and it doesn't help to dwell on it. We have all developed pretty thick skins and learned how to deal with the daily challenges, whatever they are. While we are sensitive to everyones feelings and concerns most of us have been doing this for so long now that a bad audiologist that doesn't know about the technology is old news.

It also sounds like the test from the audiologist on the base was very comprehensive. Very. I don't even get all those tests when I go in! If the audiologist you met didn't work out I suggest you move on.
 
dogmom said:
redmach chick,
am sorry to read about your irritation- one thing - about the CAPD -CAPD can occur WITH peripheral hearing loss according to research I've done and the audi I've spoken who additionally specializes in testing for auditory processing disorder. From my understanding only, many < not all> audiologists have never actually tested for CAPD and may have only had read about it in school. The more severe the hearing "loss" the more difficult it may be to accurately test for CAPD, however. I investigated because I am new hoh and have LD as well as auditory processing difficulties.

Husband's first HA's after college his then-new job paid for so he could use phone. A nice break for him-

Hope you can find some answers, redmackchick:aw:
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Audiologists are generally not qualified to test for CAPD, as it is not a problem with the auditory system. It is a neurological problem and needs to be diagnosed by a neurologist.
 
redmachchick said:
I wasn't really asking about insurance so I don't understand why this turned into a thread about insurance...and why I am so lucky...:aw:

I did find out later today that she did not do all she could have on testing...nor was the hearing aid she showed me a CROS...she didn't know what she was talking about.

I guess I was hoping to get a little empathy or maybe a little "hey I've been there" but I guess no one has. Maybe its a little hard for me because no one has been able to tell me jack, my whole life about my hearing and when I try to get help it was bad experiences. At least most of you KNOW whats going on with your hearing and are getting help in some way. I'm starting at square one, and I'm trying to learn as much as I can.

Really, seriously...I came here for support but I am definately not getting that. I don't like how some people have made me feel bad about my particular situation, with little comments here and there about "how my hearing is just so great" and how I'm just so lucky to have to not pay this or that regarding my insurance." I feel like I am lumped in the middle of not hearing and hearing...so I guess I don't fit in with anybody. I've been alone in this my whole life, I have not met anyone with the hearing problems and other things I have going on..I have done it by myself and dealt with it myself...and put up with all the shit that I have to deal with day in and out because I can't hear and communicate half the time. So sorry no one understands that. :aw:

I feel like I am being judged because I'm not totally deaf. I thought this was a HOH forum too. I DO know that I am lucky and I do understand that others have it way worse than me. I don't take my hearing for granted though maybe some of you here think I do. I guess we are all not here for a common reason and to support each other.

Please direct me to a HOH just for people like me and I will gladly post there where maybe people can understand me a little bit better.
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Actually, you have gotten empathy in the previous posts. What you have not gotten is sympathy, and I wouldn't go so far as to expect it around a bunch of people who deal with deafness and hoh on a daily basis. Nor is sympathy a productive response to your situation.

The vast majority of people are here for a common reason, and they travel a 2 way street in that reason. They not only offer support, they expect it in return. You have been offered support, and you returned it with criticism and self pity. Perhaps the problem is not so much with those that have attempted to welcome you by resonding to your thread, but with the way that you are, in turn, responding to their efforts.
 
Everybody take a deep breath

Hey everybody, sometimes people need some love.
Actually everybody needs love.
redmachchick came here for advice and support and suddenly this thread turned into a contest about who has the worst life.

I think that redmachchick was distraught over a professional or many professionals that didn't listen to him. We can all relate to the frustration of being put off, ignored, demeaned and abused.

What I don't understand is why we (as humans) have such a hard time empathizing with people who are in a similar situation we are in.

No matter the degree of a person's hearing loss, it can be distressing.

Have come compassion. You (directed to anybody) might be blind, deaf, armless, legless, and paralyzed from the eyelids down but that does not mean you can not empathize with another person.

I think one of the best things about being human is that we can show compassion to other people. We can not know what other things are going on in a person's life. After losing two friends to suicide I try to keep in mind that I never know the extent of another person's pain and as a result I try (emphasis on trying) to be compassionate.

Take a deep breath (I'm serious about this part), think about the times in your own life when you have turned to someone for help or felt alone. If someone ignored you or told you that you were worthless you have all the more reason to be compassionate and you might find that you feel better.

On a personal note- I don't see my deafness as a disability anymore than I see my dyslexia as a disability. I'm alive, that is pretty fucking awesome. After my best friend killed herself (a subject I don't like to talk about...I'm crying now) I realized that everyday in everything I do I have an impact on someone's life. Why not make someone happy or listen to their problems or even just smile.

Life isn't perfect but it sucks a lot less if we embrace the challenges we face, use them to make ourselves stronger, and use our expierence to help others.

"All major religious traditions carry basically the same message, that is love, compassion and forgiveness the important thing is they should be part of our daily lives."
Dalai Lama

Also, It may be worth noticing that redmachchick mentioned the military. He or she may have seen things we can never imagine.
 
redmachchick said:
How dare any of you say I'm here looking for sympathy...apparently some of you can't read. Its empathy, get a dictionary...look it up. Two different meanings.

How dare any of you lessen my experiences and my problems just because I may hear better than some of you...does that make it any less different? So I'm just not good enough to post MY problems and MY thoughts because I don't hear like you?? Oh and maybe its just because I'm new...:roll: its okay for people to treat me a certain way? Please...:roll:

I have put up with crap all my life, petty shit, insensitive shit, cruel shit, from the hearing but I didn't expect it to come from here. I came into this world partially deaf, partially paralyzed on my face and partially blind in one eye...people have treated me different and and sometimes horribly just because I don't fit into their mold of whats "perfect"...even from my own family...my own parents...no one thought I would amount to much. Please don't tell me any of you have never experienced that...(insert sarcasm) I've fought back and never backed down, and I have truly been blessed with a beautiful life. So whats wrong with that? I don't NEED your sympathy, I just need some understanding. Don't tell me all of your life has been a bed of roses...cause I know different. I'm not asking for freakin sympathy. I'm FRUSTRATED...I've needed someone to vent to for a long time, that understands what I'm going through. Don't say any of you have never ever been frustrated before with your journeys in life dealing with your deafness. If you say no then you are lying.

There is going to be a point in my life where I will probably be deafer than I am now...where I may be in some of your shoes, that is a very possible reality for me. I would NEVER EVER talk to someone HOH the way you have to me...Its not always roses and puppies and fairy tales on this side of the fence either. If I do indeed become more deaf than I am now.. I will think twice about coming into the deaf culture because its obviously just as judgmental and cruel as the hearing world.

As for the insurance..why does it matter so much to some of you how much I pay or don't pay. Is it jealousy? Why should it matter?

Yes, my insurance pays 100% and I'm very sorry that some of you have to pay out of pocket. I wish it was different and everyone here could get their hearing stuff paid for. My husband is military..the military provides for its active duty members and their family...hearing loss is a big deal. My hubby works hard serving his country, working long hours and lots of time away from his family and it sometimes can be dangerous It is definitely a perk, a benefit. So go ahead, cheapen that experience too...
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I am really sorry you had to go throught everything ! I agree that we should NOT be made someone feel that their handicap is is not all that bad ! Everyone deal with things in their own ways and it does not made it wrong!
 
redmachchick said:
:aw:

This is long. I'm sorry, I'm really irritated...

I have got to go somewhere else because I don't think I've been informed thoroughly.

First off I had no hearing tests or any kind of testing done. She went off my test the military audiologist did last week. I asked her if what I had was a full spectrum test and she said it was. I’m not sure on this if this is normal procedure or not. I just expected to get further testing. This is what I got at the audiologist on base…an audiogram, tympanometry, acoustic reflex testing, speech audiometry, and a otoacoustic emissions test. That’s going by the paperwork I have.

She said by reading what they tested me with at the MTF(military treatment facility, my eardrum works normally but nothing else does. But she doesn't want to do any further testing because it would basically have no value except for my own information. (wtf?) She said a CT scan could tell me how my ear worked or did not work but will not send out for one. I have to go again to my PCM to get a referral for it. Thats great I was told they do EVERYTHING with the insurance and thats why I made the appt. She didn't act like she needed further testing....

I asked her about the Auditory Processing Disorder and she said no I didn't have it because thats usually for people who have both working ears...people who hear normally but their brains are not processing the sounds normally. I could have sworn I read that HOH people can have this too...in fact I read it several times. So I guess scratch that out too…

Hearing Aids...she said the best one for me was a CROS...but when she explained it to me and how they worked…she didn’t tell me what type it was or a company name so I asked her..she couldn’t tell me! She had to GOOGLE it!! Yes…GOOGLE…and she still couldn’t find it! She was sitting in front of me on the computer googling something she should know and spent forever doing it! I said to her “is it a BI-CROS?" And she was like yes, it’s a CROS…that I only need one in my dead ear as it works exactly like a BAHA only its not a implant. AND she couldn’t give me any more info because she has not fitted anyone with a CROS…but her colleague has. I don’t understand this. Maybe she is new. She said she did not recommend a dual HA and I don’t even know what they are called at the moment…because some people who have a good ear sometimes hear worse with it as it dampens or covers sounds that the good ear would normally pick up. Okay, sounds good, but I just don’t trust her at this point.

On top of all this I asked her about a BAHA and she said that I could possibly be a candidate for it but she does not have a favorable opinion of it so she steers people away from it. That’s exactly what she told me. I asked her why and she said because it is invasive and that there is a cleanliness issue as part of it will stick of out the patients head and could be a infection risk. That was her only reasons. That’s great, if that’s her opinion but its hers and not based on something fully factual. Plus I’m not convinced that her opinion is an PROFESSIONAL opinion.

She said I will have to wait about 4 weeks or more to get fitted for a HA and get one.

I feel like I got lied too because when I talked to them over the phone they acted like they were going to do all these great things but they didn’t. I just got another referral going for a second opinion…I hope I can find another place that I like this time around.

So what do ya’ll think?
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I think you should go for the 2nd opinion since you are not happy with the service you got.

I know that my last hearing test was not as adequate as the other ones I have had in the past. It has been 4 years since I was fitted with my hearing aids and I really do need to go and get retested and properly. After all being fitted with expensive digital hearing aids based on very basic testing seems a waste.

As far as hearing tests go it sounds like you had a very comprehensive test done by the military. You sound as though you would like to have the auditory processing test so if you can get the military to sanction that, then go for it!

Is this test for people who have occupational deafness or were born with it or whatever other reasons hearing goes?

My stepson is in the airforce and they can't get any treatment off-base without permission from the military. Their son was given speech therapy without the military doctor asking for hearing tests to rule out any hearing problems. After I told my daughter-inlaw to ask for permision to take him to an ENT specialist they found that he needed tubes for fluid in his ears. Now for the life of me, I can't understand why any doctor or speech therapist wouldn't insist that every other medical factor for speech problems wouldn't ask for ENT to check first. As far as I'm concerned he should also have been given a hearing test.

My adult kids in New Zealand have all had their children tested as babies to rule out deafness as it is a familial trait in my family. I don't know what America does, but I think this grandson has not had enough testing done before they gave him speech therapy!
 
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