Mother of LDA Daughter

deafdyke said:
Do they wear hearing aids or is it that they have fluctuating losses? (ie they can opt for FM devices when they have ear infections, but get along most of the time?)
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my son's children have had various surgeries to improve their hearing - tubes to drain fluids, etc. At this time, none of them is considered to need any special accommodations. They will be monitored for future hearing loss, due to my daughter's gradually increasing deafness.
 
THANK YOU ALL so much for your very warm welcomes! It's such a pleasure to meet such wonderful, amazing, inspiring people!!

I think my daughter is the one who told ME about this site, so hopefully, she is planning on joining herself, too. :D
 
my son's children have had various surgeries to improve their hearing - tubes to drain fluids, etc. At this time, none of them is considered to need any special accommodations. They will be monitored for future hearing loss,
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Oh so they have flutuating loss? Basicly, they're hearing but when they have ear infections they go mildly hoh? Does your son know about 504 plans? Those are for kids who while they may not have a disabilty, that's serious enough for an IEP they may have chronic health issues that may affect their learning.
 
deafdyke said:
Oh so they have flutuating loss? Basicly, they're hearing but when they have ear infections they go mildly hoh? Does your son know about 504 plans? Those are for kids who while they may not have a disabilty, that's serious enough for an IEP they may have chronic health issues that may affect their learning.
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Yes, they are hearing, but they do get very hoh when their ears are full of fluids. We seem to have a gene in the family for bad sinus/palate/nasal/ear structures. Various members wind up having some sort of reconstructive surgery for any or all of the above. I don't think he knows anything about 504 (I've never heard of it... what is that?) And I don't know what an IEP is either? Could you explain further?

Several of my grandchildren have issues that affect their learning. One granddaughter is dyslexic. One grandson has Asperger's (mild autism spectrum disorder,) these two belong to my daughter. And my son's youngest son has ADD/ADHD.

We also carry a family gene for the most severe form of celiac/sprue (I have it quite severely. It affects my memory, sleep, lots of neurological issues - including eyes and ears, etc.) So, we won the genetic lottery in our family. YEAH. :shock:

I can try to suggest various things to the parents, and do push for medical testing for the things I know are genetic, but ultimately - these are adults and they do what they think is best for their children as far as they are able. My job is to be supportive of their choices as parents, and to love on those babies!! (I'm very good at my job, too! :cool2: :giggle:)

I will pass along any information you care to share, however. And, thank you for keeping me informed! :ty:
 
I don't think he knows anything about 504 (I've never heard of it... what is that?) And I don't know what an IEP is either? Could you explain further?
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An IEP, is an individualized education plan. It's the legal document that lets kids eligable for special ed services, get them. An 504 plan is for kids who while they may have some health issues, they're not severe enough to be covered by an IEP.

Several of my grandchildren have issues that affect their learning. One granddaughter is dyslexic. One grandson has Asperger's (mild autism spectrum disorder,) these two belong to my daughter. And my son's youngest son has ADD/ADHD
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Yes, stuff like that can run in families.
 
deafdyke said:
An IEP, is an individualized education plan. It's the legal document that lets kids eligable for special ed services, get them. An 504 plan is for kids who while they may have some health issues, they're not severe enough to be covered by an IEP.

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Yes, stuff like that can run in families.
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Ah, okay! In that case, my daughter's two children DO have individualized education plans. And they are THRIVING in the mainstream school because of them.

Thank you so much for CARING and RESPONDING! I really appreciate you!
 
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