gidget6kids
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- Sep 3, 2013
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I was diagnosed with Meniere's in 1989. It was one of those things that I didn't think much about. I had had a car wreck when I was 16 and I hit my head. Dr. said that was the cause. It started out with SEVERE vertigo where I felt like my body was standing still and the world was going a thousand miles around me and my eyeballs felt as if they were going around in my eye socket. Then there was the ringing or stuffiness bilaterally and the "I'm in a well hearing" kind of feeling. My memory started going, I couldn't grasp or hold onto things, I walked with my hand grazing the wall. It was just something I kept to myself. I couldn't turn my head without having a spell, lay down, etc. After my "spell" symptoms would subside, I would sleep for, literally, 24 hrs. It was almost like my body was on overload.
I felt that no one believed me or thought I was making things up for attention. My family was not supportive and when I got married, my husband didn't understand. It was a private struggle.
I had brief 'remission' until was 6 mths preg (from about 22-24 yrs old) with my second child. I got up to go to bathroom and I fell over. For 3 days, I couldn't walk or move. It was horrible. I went to the dr and they told me that it was simply "too much fluid" and I would be fine after I had the baby.
After I had the baby, though, I got worse. I couldn't turn my head, lay down, get up, bend over, turn quickly....nothing without having a severe spell. My spells last anywhere between 24 hrs and 3 mths. I have the forgetfulness, grasp problems, ringing, stuffiness, headaches, vertigo....everything except vomiting. I couldn't function. I couldn't take care of my children.
I began going to a chiropractor which helped me to live, again and I began taking maxzide and antivert. That helped. I now have 6 kids and am alive. I still struggle. My memory is shot and I struggle with hearing my kids clearly when they are reading things or talking to me. I walk with my hand grazing the wall and I recently had a spell while driving. I had to pull over because it was not safe for me to drive. My head can not ever be in a flat position, it has to be propped by 3 pillows, at night.
I am scared that my children might have it, so I am diligent about watching for dizziness and getting their hearing tested. I certainly do not want them to be debilitated as I have been.
I continue to take my meds, I am trying (LOL) to reduce my stress (which is a HUGE trigger) and I know when I need to slow down or stop. I'm learning how to listen to my body. I have some bilateral hearing loss, but not enough to warrant HAs yet.
Nice to meet people who know I am not crazy and feel my pain.
I felt that no one believed me or thought I was making things up for attention. My family was not supportive and when I got married, my husband didn't understand. It was a private struggle.
I had brief 'remission' until was 6 mths preg (from about 22-24 yrs old) with my second child. I got up to go to bathroom and I fell over. For 3 days, I couldn't walk or move. It was horrible. I went to the dr and they told me that it was simply "too much fluid" and I would be fine after I had the baby.
After I had the baby, though, I got worse. I couldn't turn my head, lay down, get up, bend over, turn quickly....nothing without having a severe spell. My spells last anywhere between 24 hrs and 3 mths. I have the forgetfulness, grasp problems, ringing, stuffiness, headaches, vertigo....everything except vomiting. I couldn't function. I couldn't take care of my children.
I began going to a chiropractor which helped me to live, again and I began taking maxzide and antivert. That helped. I now have 6 kids and am alive. I still struggle. My memory is shot and I struggle with hearing my kids clearly when they are reading things or talking to me. I walk with my hand grazing the wall and I recently had a spell while driving. I had to pull over because it was not safe for me to drive. My head can not ever be in a flat position, it has to be propped by 3 pillows, at night.
I am scared that my children might have it, so I am diligent about watching for dizziness and getting their hearing tested. I certainly do not want them to be debilitated as I have been.
I continue to take my meds, I am trying (LOL) to reduce my stress (which is a HUGE trigger) and I know when I need to slow down or stop. I'm learning how to listen to my body. I have some bilateral hearing loss, but not enough to warrant HAs yet.
Nice to meet people who know I am not crazy and feel my pain.
are you doing to the no salt thing does it help?