Me and My Cochlear Implant

I am not sure if my experience with a Cochlear Implant is any help-never felt any pain since the operation which was in July 07. Still don't today nor any discomfort yet. It is correct one loses all hearing when implanted. That is why it is "mostly restricted to the deaf/profound hearing impaired" as well as the high cost factor. There is no going back if one's brain "doesn't accept the implant", fortunately a rare occurrence- but possible. I have no trouble sleeping with the internal processor nor any problem- swimming etc.( external removed, of course).
The rationale for using an Implant to help one hear "somewhat" now vs remaining deaf. Yeah i am ORAL deaf since December 20.2006. Prior to that -was in the Profound Hearing loss category for almost 30 years. Lost all hearing in my Right ear in Feb/92.
No regrets in starting the process of evaluation for Cochlear Implant in early Jan/07 at Sunnybrook/Toronto

Advanced Bionics- Harmony activated Aug/07
 
I am not sure if my experience with a Cochlear Implant is any help-never felt any pain since the operation which was in July 07. Still don't today nor any discomfort yet. It is correct one loses all hearing when implanted. That is why it is "mostly restricted to the deaf/profound hearing impaired" as well as the high cost factor. There is no going back if one's brain "doesn't accept the implant", fortunately a rare occurrence- but possible. I have no trouble sleeping with the internal processor nor any problem- swimming etc.( external removed, of course).
The rationale for using an Implant to help one hear "somewhat" now vs remaining deaf. Yeah i am ORAL deaf since December 20.2006. Prior to that -was in the Profound Hearing loss category for almost 30 years. Lost all hearing in my Right ear in Feb/92.
No regrets in starting the process of evaluation for Cochlear Implant in early Jan/07 at Sunnybrook/Toronto

Advanced Bionics- Harmony activated Aug/07

Thank you for your answer, my doctor told that I would not lose any hearing
when I ask him about this! So he is not telling me the truth! I really do not like the guy . For some reason all the ear ,nose all the throat doctors around my town are jerks so not any good. I have a 65% hearing lost , my DR. want to give me a hearing test as does not have one , I only saw him 2x .
Now I am not sure if I should waste my time going back to the DR to see if I am a good canidate for the implant as I do not want to lose the hearing I have.
 
Thank you for your answer, my doctor told that I would not lose any hearing
when I ask him about this! So he is not telling me the truth! I really do not like the guy . For some reason all the ear ,nose all the throat doctors around my town are jerks so not any good. I have a 65% hearing lost , my DR. want to give me a hearing test as does not have one , I only saw him 2x .
Now I am not sure if I should waste my time going back to the DR to see if I am a good canidate for the implant as I do not want to lose the hearing I have.

My daughter didn't lose what hearing she had prior to either of two CI surgeries, according to booth testing done after. But that bit of natural hearing she had before and after the surgery (she was and is profoundly deaf in both ears) didn't and still doesn't do her any good: even with hearing aids she didn't come anywhere near the speech banana or most environmental sounds. Most surgeons emphasize that it's more likely that residual hearing will be lost than retained, although the newer smaller implants do less damage. And to qualify for a CI, that residual hearing you have isn't in the useful range anyway. Maybe your doc thinks you have so little hearing there's nothing left to lose, but don't know why he's even discussing it with you if he hasn't seen your audiogram.
 
I lost what very little natural "hearing" I had in my right ear after the CI. But it really is no loss to me because it did absoulutely nothing for me anyways. After almost 1 month wearing the CI it has also lowerd my tinnitus tenfold. I can still tell it is there but just barely. I have no regrets whatsoever in getting the implant. It has been a blessing to be able to hear yet again. But I am still Deaf without the implant.
 
My daughter didn't lose what hearing she had prior to either of two CI surgeries, according to booth testing done after. But that bit of natural hearing she had before and after the surgery (she was and is profoundly deaf in both ears) didn't and still doesn't do her any good: even with hearing aids she didn't come anywhere near the speech banana or most environmental sounds. Most surgeons emphasize that it's more likely that residual hearing will be lost than retained, although the newer smaller implants do less damage. And to qualify for a CI, that residual hearing you have isn't in the useful range anyway. Maybe your doc thinks you have so little hearing there's nothing left to lose, but don't know why he's even discussing it with you if he hasn't seen your audiogram.

I am getting earaches in my left ear and I have no infection in it , I am not able to wear a HA in my right as my TMJ made it too painful . My TMJ is now affecting my left ear and the DR. was thinking I may not be able to wear HA any more. I cleaned my right ear out with a Q tip today and that hurt my right ear. I am really up set about this. This all because of a teenage driver Tboning my car. The guy cut me off right in making a turn . I sue the kid and got some money. This was in 1997 and I still have head trauma.
 
Thank you for your answer, my doctor told that I would not lose any hearing
when I ask him about this! So he is not telling me the truth! I really do not like the guy . For some reason all the ear ,nose all the throat doctors around my town are jerks so not any good. I have a 65% hearing lost , my DR. want to give me a hearing test as does not have one , I only saw him 2x .
Now I am not sure if I should waste my time going back to the DR to see if I am a good canidate for the implant as I do not want to lose the hearing I have.

You MAY lose your hearing. It depends on the surgeon. Some surgeons go out of there way to do things that are more likely to preserve residual hearing, some don't.
 
A message from QueenBazoomba herself;)

When the doctor ask me if I tought about having an Cochlear implant, I told
him about 30 years I did and I was told I had 50/50 chance oflosing the hearing I do have. My Dr. said is not like that any more. Well I looked up line about Cochlear implant and one web site said if a person has any natural
hearing they would lose all of it when they had Cochlear implant put in. If this is correct I would not want to have the implant as I may for like it and then I would have no hearing. What kind of discomfort does Cochlear implant
give you , or is no discomfort in having one. I was wondering if having the inplant would get in the way of falling asleep easy. I know if I ask my DR.
questions about it he is going to tell me is no big deal about having the implant. He would not know as he does not have one.

I lost all hearing I had in my left ear when I had the surgery, but I still have someee hearing in my right ear so i'm not completely deaf without the implant thankfully :) buut, another thing I forgot to add in my video is that it is SO much easier to fall asleep now that I have the implant because when I take it off before bed, like I said i'm not completely deaf but I can barely hear ANYTHING.. so I have become such a deep sleeper ever since I got the implant because while i'm sleeping I'm not distracted by anything ! :)
 
I lost all hearing I had in my left ear when I had the surgery, but I still have someee hearing in my right ear so i'm not completely deaf without the implant thankfully :) buut, another thing I forgot to add in my video is that it is SO much easier to fall asleep now that I have the implant because when I take it off before bed, like I said i'm not completely deaf but I can barely hear ANYTHING.. so I have become such a deep sleeper ever since I got the implant because while i'm sleeping I'm not distracted by anything ! :)

When I take my HA off at night I am not bother by sound unless is really loud. Now if my dog fart that wake me up! Boy I am going really have to think about getting implant. Thank you everyone , I feel better knowing hearing from people that have an implant than having a doctor tell me about it when he does not have one.
 
:)

When I take my HA off at night I am not bother by sound unless is really loud. Now if my dog fart that wake me up! Boy I am going really have to think about getting implant. Thank you everyone , I feel better knowing hearing from people that have an implant than having a doctor tell me about it when he does not have one.

Honestly, I wouldn't bother saying this if I didn't mean it .. but you really should get an implant. Sure, there is a few downsides to getting it, like possibly losing all hearing in that ear.. but the upsides farrr outweigh the downsides and you will be sooo grateful that you got it, i'm telling you. It has made so many miracles happen for me and I'm sure it will do the same for you !! :)
 
It's not letting me add the captions to the video so I watched it and wrote down what I said, so here is the captions:) sorry everyone.

Hi everyone
Um, I'm making this video right now to talk about ci. Because basically no one really knows about them or what they're like. And and people I guess just assume that they're like hearing aids. In a way they are but they give sound a lot more detail. Yeah it's just way different.

Um. I had hearing aids in both of my ears from kindergarten to about grade 6. I was told I was eligible for cochlear implant which I'm actually grateful for because I guess if you were born deaf you have a much lower chance of being eligible.

Um. For the surgery. But I wasn't born deaf. To this day I don't know what exactly happened. But me and my mom think it might have just been an illness that I had, and it killed my ear nerves or whatever. Um *chuckles* so yes I got a surgery in april of 2004 I think at Ottawa Children's hospital of Eastern Ontario.

It lasted about 5-6 hours and then I had to stay overnight in the hospital for two nights with my mom. And then I was off school for about two weeks and I couldn't even move or walk really, and I mean my brother carried me around and my dad.. stuff. It was horrible. Horrible. Because I was so sick and so dizzy. Um. But yeah what they did was they had to shave off some of the hair under the ear. Like, I used to have this plastic baggie of my hair 'cuz they gave it for me to keep which is kinda weird but I probably do have it sitting around somewhere. But um, they had to shave so they could cut my head open. And they put a circular metal part. I'm trying to find pictures to show you guys cuz I don't know the names of them really.

But the circular part they put inside my head and it connects to the metal.. metal part whatever, I'll show you a picture. Um. And it connects to this that I wear everyday.

And the scar was pretty long and disgusting. It was about this long. And um, it um, my hairline developed over it, so um, for all you people who like looking at scars, there's nothing to see here. So um. Yeah, after the surgery I was a mess. I had this big afro on my head. Um that material, I forgot what it's called, I think it stayed or something. They wrapped that all around my head. And um. Yeah and I was for a week. So it looked ridiculous.But it taped on my head all the way around my neck and it was so painful ripping it off. Oh I have pictures. But basically it was like, I'll show you guys right now. They put it like this. The CI. The metal part is under on my hair I'll show you. *shows CI* This connects to the metal part inside my head. Feels so weird. Yeah I'll show you a picture right here.

[Photo on computer screen]

It's kinda weird to.. I don't know how to describe what it does on the inside. I really have no idea how it works. Like I never paid attention to anything they told me *laugh* but take a look. [Picture] and it's kinda big but thankfully I'm a girl and my hair grows over it and they can't see it. Unless I wear my hair up, I never wear my hair up unless I have a band over it so that people can't see it. It's so big and attracts so much attention from people and I don't like that, so, you'll hardly see me with my hair up with no band on. So um. Sorry *heh*

So yeah um. On another note, yeah, um, there was this video on youtube I saw that there was this little boy, I'm not sure how it works but he was like this little baby, a toddler, and um it showed him getting a CI turned on after the surgery. And it was such a cute video and I loved watching it because, like, it reminded me of when I got mine turned on and it was honestly the best experience that I've ever had. Like, I've had hearing aids basically my whole life up until that part where I got the surgery. So I've always been able to hear. But, never like this. So like, I had to - when I went to get turned on I was going up to the hospital every week and then it became every two weeks for testing and stuff to make sure it was actually um benefiting me.

And - but - I remember the day I got turned it on. Um. I went to the cafeteria for lunch. Um my break from testing and I could hear SOO many things like the microwave beeping and um and like just weird things when you're cooking the little sounds you make like chopping onions and stuff and peeling oranges. Like all those weird little sounds like little things that you don't realize or big things like, like, I've never been able to hear stuff like that. And the birds chirping outside, and heels clicking down the hallway which is actually one of the most annoying sounds ever now. But back then it was the greatest because I've never been able to hear that right. So um, yeah. I don't think people realize how much of a change it is after you get the surgery done, but it was actually one of the best blessings that I have.

Um. Yea I just wanted to make this video to talk about this because I was going to have (__??)
Whenever I say after this, however it comes out of my mouth, like honestly only a small portion of my friends, or people who know, know that I have a hearing problem. Because I don't bother telling people, unless they notice or ask about it because I'm scared of being judged. And some people would say that's crazy but from experiences, um, I know there is some people out there that have no heart at all. And they make fun of people like me. And um when I was younger I did get teased a lot, all the time. But now I'm older so I learned to deal with it more. But it still really really hurts deep down inside because honestly everyone's fighting some kind of battle or will some point in their life and the last thing they need is someone teasing them to make it worse. So um, yeah. I just got like, make sure people have an understanding what CIs do and how they affect people like me.

Um. So to the parents of the little boy in the video that I'm about right now, thank you for putting that up because it's one of the cutest things I've ever seen and I'm sure it put smiles on a lot of people's faces including mine. So um anyway thank you for everyone that watched this, I appreciate it seeing that you did wasted about 10 minutes of your life on me. *giggles* so um, I'll sign off right now. Thanks again. Bye everyone.

Did anyone else have dizziness aand a hard time getting around after having the implant put in? I would need help it that is a common side affect.
 
Errm, I had no side effects whatsover at all post implant BUT I was on A LOT of drugs! It's probably had helped. When I went under I was pumped with anti-nauesa etc along with anti bios. When I came round it felt like I had too much wine but without nauesa which subsided as soon as I woke up, I was up and walking around 30 mins after I left the recovery. Post OP in hosp I had 2 huge jabs for Anti bios. I never needed the saline drip. I went home with bag of pills! Anti Inflam (2 weeks), Anti Bios (2 weeks), and Pain killers (lasted few days as i wasn't in pain at all). BUT...... my friend who had hers few months after mine, she was under same surgeon and at same hospital was sick a lot afterwards so it depends on individuals.

This is in UK though so USA/Canada may be different.
 
Did anyone else have dizziness aand a hard time getting around after having the implant put in? I would need help it that is a common side affect.
I was dizzy the first week I had my implant. But it eventually wears off the longer you have it.
 
Did anyone else have dizziness aand a hard time getting around after having the implant put in? I would need help it that is a common side affect.

My dh has a long history of dizziness. After He got a Ci, during the first week and two week he had bad dizziness for while. He still has dizziness, not often. He got worse off balance after he got a CI. His balance is pretty bad to me after he got a CI.
 
Short reply : NO. I also resumed daily swimming when the externals were hooked up-which was 4 weeks after the operation. Still no problem 3 years later.

Advanced Bionics Harmony activated Aug/07
 
I am just in total awe that you took the time to type out everything you said. Thank you.
 
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