AlleyCat
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- Jun 18, 2005
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DD, the way you usually put it seems fine to me, you tend to say that kids with CIs often have similar needs to those who are HOH, and sometimes appear much like HOH kids. Nothing wrong with that, many do. But when it comes to classifying a child -- especially for educational purposes -- and driving accommodations and services and educational plans off that designation -- there's a very big difference.
If my daughter's test scores were used to classify her as "functionally hearing" or even "functionally mildly HOH", what likelihood do you think there'd be that her local school district would send her on a van for 2 hours each way to a school for the deaf based on what we propose as her need, as a deaf child, for an academic environment immersed in ASL, at an annual tuition rate that's going up to $75K plus $20K-25K when she turns 5 next month? What likelihood would there be of getting a full-time or even PT ASL-using TOD in her classroom, just for her, a child who can test at the same hearing levels of every other kid in the class -- in a booth? What need would there be for any adult ASL user in her academic environment? Why would there be any importance based on being with other deaf peers, in the deaf community if she's considered to be hearing or have a mild hearing loss?
Jillio's exhortation to classify her as "functionally hearing" or "functionally HOH" rather than what she is (a profoundly deaf child who uses CIs to access sound) is not in her best interests or educationally sound advice and shows a gap in understanding.
I absolutely understand what you're saying. It's the same issue I took with my parents. My preschool teachers, and K-2 teachers felt I was doing "way to well" to stay in a program with any accommodations. My parents listened to that, and that is why I got transferred to a mainstreamed, regular elementary school with no accommodations until 5th grade. And I'm profoundly deaf. Go figure ...
I think the difference, however, is between what you have described how well Li-Li functions with her CIs versus my HAs. I don't dispute in the slightest that she has better speech discrimination and other testing scores than I do. I take no resentment at that -- after all, if she can gain the most out of her CIs, then she certainly should.
So I think this is where the misunderstanding lies -- even with HAs, I was at best functionally deaf. I could not get enough speech discrimination. I could not understand teachers. I needed an ASL interpreter. If Li-Li is able to accomplish all that on her own, why do we call her functionally deaf? That's what I have trouble with -- it's just the terminology that I do. I would love to see a better choice of words used, if that makes sense..