Implant Users

shel90

Love Makes the World Go Round
Premium Member
Joined
Sep 7, 2006
Messages
45,078
Reaction score
335
I am seeing a lot of new members coming in here either as implant users themselves or know someone who is an implant user for advice.

It seems like history is repeating itself...most of the advice is about seeking acceptance. If CIs are intended to make deaf people fully accepted in teh hearing world like the advocates say so, then why an influx of new people coming in here saying they wished they knew about the Deaf community and ASL?

This whole oral-only approach is becoming ridiculous. :roll:

It is not only here, but I am seeing it constantly in real life. When will it stop?
 
Last edited:
I believe that CIs do NOT make us fully involved in the hearing world, it is just simply a tool like hearing aids to hear. Just because we have CI's does not mean we want to be involved in the hearing world 24/7.

But I do not know why they are seeking acceptance from AD, you'll have to ask them that. Good question though!

I've grown up with sign language around me, since my cochlear implant I have not wanted to stop using sign, I've wanted to use it more.

Oral-only approach needs to be stamped out, since a lot of CI users do regret having in a oral-only approach as they were growing up but they did not have that choice. Their parents will have choose for them unless they were old enough to decide where they would go to school. I do not regret having an oral only approach when I was in primary school but do wish sign was used in together with that
 
I wish I knew.

Apparently, Doctors give out the informations to certain people who thought they are going to be fine. Look at the repeating itself all over again and again.

Now babies got implanted, and wait to see once they get older and see what they are going to say something about repeating itself again.

But we all need to convince some high level where we can tell them to change the academic system to change to having BOTH speaking and signing in every schools. Again, hearing people may not agree due to being afraid of seeing these kids who use CI will fall into ASL more and more than using voices to speak yet their attitudes toward ASL issue will stubbornly stay and stick with using voices.

i wish i knew! If babies with CI's turn out in 2015 to 2020 to see if repeating itself come back then we will say, "we told you so!". eh.
 
I do not think that is what it is at all. I think a lot of people who come here seeking advice and comfort are people who do not know what it is like to experience Deaf Culture and the community. AD is one of the biggest Deaf Communities on the internet. Some people do not have access to any Deaf Community where they live. They may not know anyone Deaf aside from themselves. I have noticed an out reach of people who come here about CI who are Late Deafened that seek CI because that is what they are used to, hearing. Some people here need to realize that it is a hard pill to swallow to lose something you have had your whole life and everyone in your "hearing world" is like you. Then all of a sudden you are the only one like you and you have no idea what to do, who to talk to about it. By coming to AD they have people they can talk to, people to listen to them who have been through what they are going through.

The advice people seek and what people are wondering is what to expect. I have rarely seen if at all if people come out and say "Getting a CI is because I believe Oral is the only way to go." I do however see a lot of people asking about ASL and CI because they were once hearing and have no idea what to expect either way. Some people here and all over the place have this stigma where they believe that once someone asks about a CI or has a CI that they are shunning the deaf community by doing so, that is so far from the truth.

I can speak from personal experience when I say that I have inquired about CI here to find out if it is right for me. I am severely deaf now, as hard as that was for me to accept in the beginning, it is because of this website that it is easier to accept. I am CI eligible but I probably will not seek getting a CI until I have very little to no residual hearing left at all. In no way whatsoever am I wanting a CI to gain acceptance in the hearing world, having a CI just makes it easier for me to communicate with everyone I have grown up with in my life.

The gaining acceptance thing that you talk about is a gray area for people here. Like I said before people come to AD to talk to people that are like them or going through what they are. This is a forum with a lot of information and who are we to judge someone who is looking for acceptance. We all look for it some place or another and if people come here asking questions about what to expect and they get answers then this forum that we all love so much is helping someone. Its hard to go through something when people around you in your life do not understand. I was relieved when I came to this site because I wasn't the only one like me. I think that is what some of the members here have to understand. Some of us, Yes me included. Didnt grow up in the deaf community and its nice to come to a place where being deaf whether you want a CI or not want one, whether you wear a hearing aid or not, or even if they are here to inquire about things because they know someone for the information. Would you rather the world just be ignorant about it? You ask when things will end, when will the separation between Deaf who choose CI and those who don't end? Really that is what this is about? We are all one community within a planet of many. I love everyone for whatever decision they make, and essentially it is their own decision and what is best for each person.

I know someone will try and argue about children and CI but that isnt what this is about and if there is someone that is going to try to debate this AGAIN I will not look at this thread again.
You just gotta try to put yourself into the other persons shoes to understand fully why each person is here.
Hope that helps Shel.
 
I do not think that is what it is at all. I think a lot of people who come here seeking advice and comfort are people who do not know what it is like to experience Deaf Culture and the community. AD is one of the biggest Deaf Communities on the internet. Some people do not have access to any Deaf Community where they live. They may not know anyone Deaf aside from themselves. I have noticed an out reach of people who come here about CI who are Late Deafened that seek CI because that is what they are used to, hearing. Some people here need to realize that it is a hard pill to swallow to lose something you have had your whole life and everyone in your "hearing world" is like you. Then all of a sudden you are the only one like you and you have no idea what to do, who to talk to about it. By coming to AD they have people they can talk to, people to listen to them who have been through what they are going through.

The advice people seek and what people are wondering is what to expect. I have rarely seen if at all if people come out and say "Getting a CI is because I believe Oral is the only way to go." I do however see a lot of people asking about ASL and CI because they were once hearing and have no idea what to expect either way. Some people here and all over the place have this stigma where they believe that once someone asks about a CI or has a CI that they are shunning the deaf community by doing so, that is so far from the truth.

I can speak from personal experience when I say that I have inquired about CI here to find out if it is right for me. I am severely deaf now, as hard as that was for me to accept in the beginning, it is because of this website that it is easier to accept. I am CI eligible but I probably will not seek getting a CI until I have very little to no residual hearing left at all. In no way whatsoever am I wanting a CI to gain acceptance in the hearing world, having a CI just makes it easier for me to communicate with everyone I have grown up with in my life.

The gaining acceptance thing that you talk about is a gray area for people here. Like I said before people come to AD to talk to people that are like them or going through what they are. This is a forum with a lot of information and who are we to judge someone who is looking for acceptance. We all look for it some place or another and if people come here asking questions about what to expect and they get answers then this forum that we all love so much is helping someone. Its hard to go through something when people around you in your life do not understand. I was relieved when I came to this site because I wasn't the only one like me. I think that is what some of the members here have to understand. Some of us, Yes me included. Didnt grow up in the deaf community and its nice to come to a place where being deaf whether you want a CI or not want one, whether you wear a hearing aid or not, or even if they are here to inquire about things because they know someone for the information. Would you rather the world just be ignorant about it? You ask when things will end, when will the separation between Deaf who choose CI and those who don't end? Really that is what this is about? We are all one community within a planet of many. I love everyone for whatever decision they make, and essentially it is their own decision and what is best for each person.

I know someone will try and argue about children and CI but that isnt what this is about and if there is someone that is going to try to debate this AGAIN I will not look at this thread again.
You just gotta try to put yourself into the other persons shoes to understand fully why each person is here.
Hope that helps Shel.

I get the gist of the heart of your message and that is all well and good enough for me, CBE. One problem: The deaf community is too fractured for deafies of all stripes to to come together for certain political causes that would benefit everybody and I think that is just unfortunate.
 
I get the gist of the heart of your message and that is all well and good enough for me, CBE. One problem: The deaf community is too fractured for deafies of all stripes to to come together for certain political causes that would benefit everybody and I think that is just unfortunate.

me too =/ but I am glad you understand what I am trying to say. :hug: :ty:
 
It seems like history is repeating itself...most of the advice is about seeking acceptance. If CIs are intended to make deaf people fully accepted in teh hearing world like the advocates say so, then why an influx of new people coming in here saying they wished they knew about the Deaf community and ASL?
AMEN!!!!!! The thinking was that "hoh kids are more hearing then deaf" and don't need the deaf world. Sorry, but we have even had mildly hoh people come by and say " we don't feel like we fit into the hearing world!"
 
AMEN!!!!!! The thinking was that "hoh kids are more hearing then deaf" and don't need the deaf world. Sorry, but we have even had mildly hoh people come by and say " we don't feel like we fit into the hearing world!"

There are very few folks with any significant hearing loss can say they fit 100% in the hearing world. By this I mean missing very little. For the few that do or say they can, even they know they have limits.

It seems to always come down to the haves and have nots. Class envy is ugly no matter how one slices and dices it.
 
There are very few folks with any significant hearing loss can say they fit 100% in the hearing world. By this I mean missing very little.
That's true, but on the other hand......someone who's late deafened feels more a part of the hearing world, and is perfectly happy with "hearing impaired" support then does someone who was born or early dhh.
 
...If CIs are intended to make deaf people fully accepted in teh hearing world like the advocates say so, then why an influx of new people coming in here saying they wished they knew about the Deaf community and ASL?...

Hi Shel, this isn't an argument I've ever heard in real life for getting a CI. Most people I know want to expand their communication options (or those of their children), not gain acceptance by some group or another. It's not like having a gang tattoo or a secret handshake, a superficial recognition factor. That would be like saying that someone wears glasses or contacts to be accepted by the seeing world. It's more likely that they just want to see, not to be loved for their glasses or to reject their other senses.

I've heard many people complain that those who wear a hearing aid or a CI are rejecting deaf culture, but I've never before heard anyone complain about people with CI s being *too* accepting of ASL/deaf culture ("when will it stop?"). This is a hearing aid and cochlear implant forum and you are wondering why people with cochlear implants would think to come here to share common experiences with other deaf people wearing cochlear implants?
 
That's true, but on the other hand......someone who's late deafened feels more a part of the hearing world, and is perfectly happy with "hearing impaired" support then does someone who was born or early dhh.

I don't agree with this. At one time that person may have felt more apart of the "hearing world" when in fact they were hearing, but not anymore. Speaking from experience I feel more now in limbo than anything. And who said I am perfectly happy with "hearing impaired support?" Im caught in between the two. Hearing world is no longer comfortable because NO one knows what it is like that knows me, not my family, not my friends not anyone, being apart of a place where you isolate yourself because people around you have absolutely no clue how important certain things are because they have never been exposed to it. You cannot be mad at people who are not educated. The Deaf world is tough because Deaf do not know what its like to lose something after so long. Then if by coming to this forum we start to feel bad because people who have been Deaf their whole life say because we want to hear or communicate we are breaking the rules some how? I never see people here saying THIS IS WHAT WE MUST DO, to be Deaf. Arent the people who are so upset about the world shunning the Deaf, doing it themselves also????
 
I don't agree with this. At one time that person may have felt more apart of the "hearing world" when in fact they were hearing, but not anymore. Speaking from experience I feel more now in limbo than anything. And who said I am perfectly happy with "hearing impaired support?" Im caught in between the two. Hearing world is no longer comfortable because NO one knows what it is like that knows me, not my family, not my friends not anyone, being apart of a place where you isolate yourself because people around you have absolutely no clue how important certain things are because they have never been exposed to it. You cannot be mad at people who are not educated. The Deaf world is tough because Deaf do not know what its like to lose something after so long. Then if by coming to this forum we start to feel bad because people who have been Deaf their whole life say because we want to hear or communicate we are breaking the rules some how? I never see people here saying THIS IS WHAT WE MUST DO, to be Deaf. Arent the people who are so upset about the world shunning the Deaf, doing it themselves also????

If you really want to assimilate, you probably have to be the one who completely changes, rather than expecting an established culture to adapt to you.
 
Botts that is not what I meant. And I am pretty sure you know what I meant. People cant just go around and assume everyone is the same and they feel the same way the next person does. I am not saying the Deaf Community and culture must change because of me or anyone else, please don't twist my words. Trust me I am the one who has had to change. You find out your real friends, the ones who no matter what will accept you, then you find a new community and you try to make friends there.

What I was disagreeing about was was this:

someone who's late deafened feels more a part of the hearing world, and is perfectly happy with "hearing impaired" support then does someone who was born or early dhh.

That is a bold statement to say about everyone who is late deafened. Because I dont feel that way at all.
 
Botts that is not what I meant. And I am pretty sure you know what I meant. People cant just go around and assume everyone is the same and they feel the same way the next person does. I am not saying the Deaf Community and culture must change because of me or anyone else, please don't twist my words. Trust me I am the one who has had to change. You find out your real friends, the ones who no matter what will accept you, then you find a new community and you try to make friends there.

What I was disagreeing about was was this:

someone who's late deafened feels more a part of the hearing world, and is perfectly happy with "hearing impaired" support then does someone who was born or early dhh.

That is a bold statement to say about everyone who is late deafened. Because I dont feel that way at all.

You know what? I always say exactly what I mean. That is just an autistic trait. And it does alienate people.
But I am interpreting your words the way I perceive them.
I am happy for you that you are a moderator, but you constantly come in here and tell people they are not entitled to their feelings or allowed to express them.
 
You know what? I always say exactly what I mean. That is just an autistic trait. And it does alienate people.
But I am interpreting your words the way I perceive them.
I am happy for you that you are a moderator, but you constantly come in here and tell people they are not entitled to their feelings or allowed to express them.

I am well aware that you always say exactly what you mean. And you can interpret my words any way you want, it doesn't mean its the right way. Thanks for being happy that I am a mod, I appreciate that. Constantly come here to tell people they are not entitled to their feelings or allowed to express them is hardly correct? As a moderator I am well aware of many many people on this forum and who trys to flame and push people around. NOW, I am not saying that is you, or anyone else. People are perfectly allowed to say what they feel and that is what I am doing. Shel and you and anyone else can say what they feel. What I said was how I feel. I read through many many many posts that get reported daily, weekly, monthly. Is it strange that its the same people that get reported?

I am not trying to tell people what to say and how to feel but when people make statements about things I DO know about (because I know I dont know everything) that may in fact come off as wrong for members on this board I will speak up and say something. Shel has every right to feel what she does. And I have every right to say how I feel, I am not telling her she has to feel that way and I didnt say deafdyke was wrong in what she was saying if that is who she feels, I said I DIDNT AGREE with that. Its the same fight every day, EVERY DAY. Just different words in a different post. There WILL NEVER be a common ground, but I can hope.

Maybe you would feel differently if you were in my position. I never claimed to be perfect and for you to say that I am constantly here to tell people how to feel isnt true either. So take my words as YOU want to and interpret them the way you want to because you will anyway, and agree to disagree. thanks
 
If I may inject...

Your grammar do have a rather condescending tone to them. It may not be your intentions, but it does remind me (and probably many other deaf users) of our experiences in the education system and how teachers treat us in a rather... parental way.

I don't know why, but the way the posts were worded remind me of a "father knows best" kind of attitude and perhaps that is why Bottesini is interpreting it as such. Being passive about a topic isn't really "our" way.
 
If I may inject...

Your grammar do have a rather condescending tone to them. It may not be your intentions, but it does remind me (and probably many other deaf users) of our experiences in the education system and how teachers treat us in a rather... parental way.

I don't know why, but the way the posts were worded remind me of a "father knows best" kind of attitude and perhaps that is why Bottesini is interpreting it as such. Being passive about a topic isn't really "our" way.

If that is how I come off souggy I do apologize that isnt how it is meant to be perceived. Maybe the way I word things does come off that way but its probably only because I am a writer for a living and I tend to over analyze everything I write. I just try to keep the peace here. It isn't to say that one point of view is better than the other I just try to keep a common ground between people. Again I am sorry if you or Bottes or anyone else feels the same way. I will try to not sound so passive. Thanks for bringing that to my attention.
 
I know, I am just saying, as a writer myself, that I would consider my audience. I am more blunt with d/Deaf people than I am with hearing people because the way the two crowds are treated are vastly different in real life-- so accordingly, they would view things differently online as well.
 
I know, I am just saying, as a writer myself, that I would consider my audience. I am more blunt with d/Deaf people than I am with hearing people because the way the two crowds are treated are vastly different in real life-- so accordingly, they would view things differently online as well.

Well thank you for bringing it to my attention. Ill work on that.
 
What I was disagreeing about was was this:

someone who's late deafened feels more a part of the hearing world, and is perfectly happy with "hearing impaired" support then does someone who was born or early dhh.

That is a bold statement to say about everyone who is late deafened. Because I dont feel that way at all.
Sorry, I should have been more clear in my orgional post.I should have said OLDER late deafened folks feel more attached to the hearing world, and so tend to be satisfied with HLAA/SHHH style "hearing health" stuff. It's very rare to see someone who's an older late deafened person be involved in the whole Deaf community.
I have noticed that young late deafened folks tend to be more interested in ASL and Deaf culture, and to see being dhh as something that's just a part of themselves.
Granted its understandable that young late deaf folks don't have the same experiance as someone who was born or early dhh. (ie speech therapy, attending schools or programs for the deaf, and not experiancing the world as a hearing person) But that doesn't mean that they don't have any thing in common with those of us who have been dhh since we were very young.
 
Back
Top