I became eligible for CI.

Thats cool Rockin Robin (like the name By the way)

Its a worry, having recurring infections... I can image it's not nice and very painful.

Lets hope the other ENT would shed some hope for you.
 
candybrowneyes said:
Yes my right ear is deafer than my left and I have terrible tinnitus. I have it nearly 24/7 in both ears and its the one thing I struggle with the most. Its enough to make a person crazy most days. But I am learning to deal with it. There is nothing worse than the sound I hear all the time, especially at night when I try to sleep.
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i am in the exactly same situation as you, and even with your previous posts in this thread, i am tettering as well. I am eligible also but on the waiting list , there were times I'd wish they'd hurry up, other times i get afraid it (CI) might make it worse. (the tinnitus i have is full on, nasty and i try so hard everyday to control it but deliberately changing my mood, watching what i eat. I'm getting real tired of it this, I aren't living anymore, its just the consumption of tinnitus have overrided the deafness. I was a vivid music listenerer, i could have conversations with hearing people, and now i barely don't. They local deaf are crap, i do have deaf freinds but they live afar from here, and some in the internet (USA, UK). I just want to move on, but lots of questions still not answered yet. So yeah I Know Exactly where you are coming from. Lastly, best of luck to you too.
 
Yes my right ear is deafer than my left and I have terrible tinnitus. I have it nearly 24/7 in both ears and its the one thing I struggle with the most. Its enough to make a person crazy most days. But I am learning to deal with it.
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You know......I'd see about getting a CI, at least in one ear. It could help your Meniere's a lot....Maybe a good idea might be to see an ENT who specializes in Meniere's and see what their opinon is.
 
deafdyke said:
You know......I'd see about getting a CI, at least in one ear. It could help your Meniere's a lot....Maybe a good idea might be to see an ENT who specializes in Meniere's and see what their opinon is.
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I have an ENT and I have been down there many times and I also see a team of doctors who specialize in helping with tinnitus. I wont be getting the CI anytime soon but I am pretty sure it is something that will happen in the future.
 
I had a feeling you had an ENT, but maybe talk to an ENT who specializes in Meniere's maybe?
 
Candy,

Sorry to hear you are having to deal with Menieres and the fluctuating hearing. I wish no one had to go through the fluctuating part of the hearing loss that Menieres brings out. I really hope you don't have the vertigo to go along with it.

I know all to well the total frustration you are probably going through not being able to rely on your hearing. Having a loss is OK. Having it come and go on its own will is something totally different. During the beginning of my Menieres battle, my heairng would fluctuate every couple days. At the end the hearing would fluctuate by the minute and no one could understand why I could start a conversation and not be able to end it because I just couldn't hear. Getting new programs for my HA were comforting but knowing that they would be short lived was always the disappointment.

I can say that the tinnitus from Menieres is still in my head after 2.5 years of a CI in one ear and 6 months in the other ear. It is a LOT better than it was but more importantly my ability to hear and understand is a thousand times better and I don't have the fluctuating any more. It has become dependable again.

I know you will make the right decission for yourself. When I was weighing the options of a CI, I really tried to find those "bad" stories and didn't come up with much. I have seen a few on this site but again, not many.

As far as Menieres. Have you been to Menieres.org?

Hope you are able to find some relief soon.
Steve
 
SteveESP52 said:
Candy,

Sorry to hear you are having to deal with Menieres and the fluctuating hearing. I wish no one had to go through the fluctuating part of the hearing loss that Menieres brings out. I really hope you don't have the vertigo to go along with it.

I know all to well the total frustration you are probably going through not being able to rely on your hearing. Having a loss is OK. Having it come and go on its own will is something totally different. During the beginning of my Menieres battle, my heairng would fluctuate every couple days. At the end the hearing would fluctuate by the minute and no one could understand why I could start a conversation and not be able to end it because I just couldn't hear. Getting new programs for my HA were comforting but knowing that they would be short lived was always the disappointment.

I can say that the tinnitus from Menieres is still in my head after 2.5 years of a CI in one ear and 6 months in the other ear. It is a LOT better than it was but more importantly my ability to hear and understand is a thousand times better and I don't have the fluctuating any more. It has become dependable again.

I know you will make the right decission for yourself. When I was weighing the options of a CI, I really tried to find those "bad" stories and didn't come up with much. I have seen a few on this site but again, not many.

As far as Menieres. Have you been to Menieres.org?

Hope you are able to find some relief soon.
Steve
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Steve, I know everything you are talking about all too well. Its unfortunate but I do get the vertigo at times with this horrible thing. But since you have MM it helps me think of the decisions I have a little more. My hearing like yours changes often and that is hard to deal with. I dont have as many attacks as I did before I was diagnosed but nonetheless it is hard to deal with.
Thank you for your info about your CI, it does infact put a few things into perspective for me and I appreciate it. :ty:
 
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