Hi ,
my son has progressive deafness - no hearing of lower pitches in his left ear and no hearing of higher pitches in his right. His father was late diagnosis chlosteatoma and after mastoid surgery is left with marginal hearing on the right hand side and nothing on the left. Our son is progressively heading that way and I am so afraid of what the future holds for him.
After his preschool teachers calling us in for 'bad behavior' we were aghast to discover that rather than being told it was time to tidy up he was being accused of misbehaving when he had not herd the music they put on to signal that it is time. He was rep reminded for fidgeting during story time and it was only, when I found him crying under the table when I went to pick him up that he told me that he had been told off for being naughty but that he didn't meant to be naughty but he couldn't hear the story and was trying to tell them so.
He has gone from an out going boy of three to a boy who is shy of adults and does not know how to ask for help. He plays on his own now - he is too afraid of saying the wrong thing to other children and does not know how to play with them. He will not interact in groups of people now, instead covering his ears and his face in an attempt to hide himself away - I think he figures that if he does nothing at all than he cannot get in trouble and if he does not try to interact than he cannot be excluded from play.
It breaks my heart and I do not know what to do to help him. He does ballet and is learning the violin - he is so much happier during his lessons, and his tutors are among the few adults outside the immediate family that he will openly interact with. How can I encourage him that he can have the same feeling of safety that he has with these individuals with other people too?
He is utterly engrossed during his lessons and they are so patient, his violin teacher spends alot of time letting him feel the sound through her instrument so he can mimic it on his own and his ballet teacher discovered by using the R and B dancers big amp on the floor and turning the volume down low he has come on in leaps and bounds and does not recoil from the noise confusion , instead feeling the beats through the floor vibrations. I wish I could give him the confidence he has in those lessons in the rest of his time.
I am so very worried - does anyone have a similar experience? As a mother it it makes my heart break to see him so lost and confused. He does not have any friends as he does not know how to make them and I worry for his development as a whole.
my son has progressive deafness - no hearing of lower pitches in his left ear and no hearing of higher pitches in his right. His father was late diagnosis chlosteatoma and after mastoid surgery is left with marginal hearing on the right hand side and nothing on the left. Our son is progressively heading that way and I am so afraid of what the future holds for him.
After his preschool teachers calling us in for 'bad behavior' we were aghast to discover that rather than being told it was time to tidy up he was being accused of misbehaving when he had not herd the music they put on to signal that it is time. He was rep reminded for fidgeting during story time and it was only, when I found him crying under the table when I went to pick him up that he told me that he had been told off for being naughty but that he didn't meant to be naughty but he couldn't hear the story and was trying to tell them so.
He has gone from an out going boy of three to a boy who is shy of adults and does not know how to ask for help. He plays on his own now - he is too afraid of saying the wrong thing to other children and does not know how to play with them. He will not interact in groups of people now, instead covering his ears and his face in an attempt to hide himself away - I think he figures that if he does nothing at all than he cannot get in trouble and if he does not try to interact than he cannot be excluded from play.
It breaks my heart and I do not know what to do to help him. He does ballet and is learning the violin - he is so much happier during his lessons, and his tutors are among the few adults outside the immediate family that he will openly interact with. How can I encourage him that he can have the same feeling of safety that he has with these individuals with other people too?
He is utterly engrossed during his lessons and they are so patient, his violin teacher spends alot of time letting him feel the sound through her instrument so he can mimic it on his own and his ballet teacher discovered by using the R and B dancers big amp on the floor and turning the volume down low he has come on in leaps and bounds and does not recoil from the noise confusion , instead feeling the beats through the floor vibrations. I wish I could give him the confidence he has in those lessons in the rest of his time.
I am so very worried - does anyone have a similar experience? As a mother it it makes my heart break to see him so lost and confused. He does not have any friends as he does not know how to make them and I worry for his development as a whole.