I shared my story with a parent this week. She had just found out about her child's severe hearing loss at age 5(!) She asked about CI's, so I did some explaining:
Ok, now the advice. Your child needs language and he needs it NOW! Being 5 years old and unable to communicate is not ok. Also, right now spoken language is not accessible, because he can not hear, maybe later with the CI he will be able to, but right now it isn't. So, the only other option is a visual language. If I was in your position I would start signing ASAP. If your child isn't signing enough, it's because you aren't signing enough. Our kids have to pick up language from us, so we have to put it out there! I am begging you, please, start signing. Everyday pick out 3 more words that you are going to sign today and use them. It is a lot of work to learn ASL, but our kids are worth it! Please, again, please start right now, your child needs language
Ok, now the CI. Yes, implanting this late, especially with a child that has been deaf since birth is very difficult. Statistically speaking, it is unlikely that he will become a oral language user. It is possible, but even if he doesn't, I don't think that is a reason not to implant!!! Even if all it does is give him environmental sounds, or awareness of loud speech (not understanding) that is wonderful!!!!! You can scream if you see a car coming and maybe he'll turn and look or at least stop...GREAT! Well worth it! I love my daughter's CI, and so does she. It has been a great choice for us. In fact, it is the second best thing we ever did for her, and the best was ASL. She has been severely speech delayed since she was 2, but she was never language delayed. She was always able to communicate her needs, wants and feelings to us, even if she couldn't speak, and that is what is important. Yes, the CI has changed her life, but ASL is what saved it.