HOH people who recieved an CI, pls look here!

I hope this might clear up a couple things with hearing requirments and CI candidacy. It usedd to be that only severe/profound or profound could get a CI. Recently, they have loosened that requirement due to the "real world" factor. Introduce background noise and the ability to hear may decrease. Audis can test you in a booth with background noise. If then you hear poorly, you may be eligible for a CI.
 
hailstorm100 said:
Are you hard of hearing? Are you an adult? Did you
receive an CI as an adult? You hear most of your
life, and then slowly lose your hearing to the point
where you can't join in on group conversations, talk
with others like you do everyday, lip
read more, can't hear on the phone or cell phone
very well, and your hearing is just going downhill to
the point where you are mostly likely to become an
candidate for an CI? Please tell me your story...I
am exactly that person too.

I was born hoh, my mother had me when she
was only 6 months pregnant and I weighed only
2 1/2 pounds, so I was a preemie and thats what
they think is why my hearing did not progress.


I've grown up my whole life wearing to hearing aids,
no problem, lost hearing in my left ear, couldn't even
wear the aid anymore and now, since Jan, my right
ear hearing has gone downhill big time...it's so
frusterating! I'm so used to being able to hear..:(
Now, I am waiting to go to see a dr in Vancouver,
BC to see if I am a candidate for an implant.
Just wanting to hear your stories/experiences, please.
Thanks for reading! :) :ty:

Neecy, you can share yours here too... :)
Click to expand...

Oh well, some of HoH children are candidate to get CI for some reason, not all of them are so. I used to born in HoH until around toddler then lost most of hearing due infection in ear, also almost lost all benefit from HA but I had wear analog HA until around 1997 until audioglist found about poor sound from analog HA and they recommended to switch into digital HA to improve my hearing but not 100%. I got 7 days trial for try out on digital HA until audioglist found poor on sound record then omit out from digital HA and rather to wear analog HA until late 1998, right after got CI, look much different from HA, such as no blast out or nothing to feel like blow in my ear.
 
shel90 said:
Can HOH people recieve CIs? I know that profoundly deaf people are qualified but didnt know that HOH people are too? Is that a new critera now?

I dont have anything to share cuz I dont have a CI and dont plan on getting one so I shouldnt be posing here but I had to ask about the critera for hoh people getting CIs. Thanks...
Click to expand...

Yes I didn't know about this until I learn a lot from CI users where I met during 5 week spa last year.

HOH people are being recommend to not receive CI yet until there're 100% hearing loss.

One HOH *M* told us the story that she regret her mistake for desire to have CI because she thought CI is better technology than HA. (Before CI, she can hear and talk on the phone, can hear what the people talk behind her back.... ). After CI surgery, she compared the sounds between original HOH and CI and said that they are total different. She cannot hear the sound or on the phone anymore because the sounds are total different. It took her 6 years to practise to familiar with sounds until she is able to hear what the people says on the phone at last... It makes her mad because she fall doctor's influence on CI technology without check with cons/pros from people. She recommend some between 50 and 80% hearing loss people to not candiate CI yet until they lost hearing to 100% then... Guess what, the doctor at spa where we stayed for 5 weeks told her off for "bad influence" on his patients over CI. *M* told him that she only answer when the people asked her questions... why can't she tell them truth what she had an experience then? Doctor said to her... Next time, tell the people to see him if they have any questions because he is a doctor... We were like WTF when she had told us what the doctor said to her... Is it harm when the people collect pros and cons between doctor and CI users?
 
Liebling:-))) said:
...
One HOH *M* told us the story that she regret her mistake for desire to have CI because she thought CI is better technology than HA. (Before CI, she can hear and talk on the phone, can hear what the people talk behind her back.... ). After CI surgery, she compared the sounds between original HOH and CI and said that they are total different. She cannot hear the sound or on the phone anymore because the sounds are total different....
Click to expand...

Obviously, this person wasn't a CI candidate . If someone cal talk on the phone with HAs then he/she isn't a candidate for CI. It was fault of doctors and/or audiologists to recommend *M* a CI . Perhaps money was more important than *M*'s health.
 
Liebling:-))) said:
Yes I didn't know about this until I learn a lot from CI users where I met during 5 week spa last year.

HOH people are being recommend to not receive CI yet until there're 100% hearing loss.

One HOH *M* told us the story that she regret her mistake for desire to have CI because she thought CI is better technology than HA. (Before CI, she can hear and talk on the phone, can hear what the people talk behind her back.... ). After CI surgery, she compared the sounds between original HOH and CI and said that they are total different. She cannot hear the sound or on the phone anymore because the sounds are total different. It took her 6 years to practise to familiar with sounds until she is able to hear what the people says on the phone at last... It makes her mad because she fall doctor's influence on CI technology without check with cons/pros from people. She recommend some between 50 and 80% hearing loss people to not candiate CI yet until they lost hearing to 100% then... Guess what, the doctor at spa where we stayed for 5 weeks told her off for "bad influence" on his patients over CI. *M* told him that she only answer when the people asked her questions... why can't she tell them truth what she had an experience then? Doctor said to her... Next time, tell the people to see him if they have any questions because he is a doctor... We were like WTF when she had told us what the doctor said to her... Is it harm when the people collect pros and cons between doctor and CI users?
Click to expand...

Ouch, they aren't supposed to get CI at first place but their doctor made mistake to gave a candidate to got CI for HoH people when they got good benefit with HA at first place.

For me, If I get good benefit with HA then CI wouldn't my choice.
 
Pacman said:
Oh well, some of HoH children are candidate to get CI for some reason, not all of them are so. I used to born in HoH until around toddler then lost most of hearing due infection in ear, also almost lost all benefit from HA but I had wear analog HA until around 1997 until audioglist found about poor sound from analog HA and they recommended to switch into digital HA to improve my hearing but not 100%. I got 7 days trial for try out on digital HA until audioglist found poor on sound record then omit out from digital HA and rather to wear analog HA until late 1999, right after got CI, look much different from HA, such as no blast out or nothing to feel like blow in my ear.
Click to expand...

I means in 1999, not in 1998.
 
Highlands said:
Obviously, this person wasn't a CI candidate . If someone cal talk on the phone with HAs then he/she isn't a candidate for CI. It was fault of doctors and/or audiologists to recommend *M* a CI . Perhaps money was more important than *M*'s health.
Click to expand...

Actually, no. Talking on the phone doesn't automatically disqualify you, and there are successful CI users who were able to talk on the phone (albeit with difficulty) before they were implanted.
 
Liebling:-))) said:
Guess what, the doctor at spa where we stayed for 5 weeks told her off for "bad influence" on his patients over CI?
Click to expand...

With that, I don't think he was a doctor. He doesn't sound like one. Most doctors usually either leave it alone or make medical correction, but they usually don't tell people off like that.They are too smart to do that. I am referring to American doctors. I don't know how doctors are like in other culture.
 
ismi said:
... who were able to talk on the phone (albeit with difficulty)....
Click to expand...

actually, this defines me :D I can talk on phone if the speaker speak slowly and clearly and if there is no much noise but it is difficult and frustrates me ( I have 92 dbl loss in both ears )
 
ismi said:
Actually, no. Talking on the phone doesn't automatically disqualify you, and there are successful CI users who were able to talk on the phone (albeit with difficulty) before they were implanted.
Click to expand...


Sure, they CAN talk on the phone but not hear what they said on the phone.

It´s hard believe that the CI users can hear on the phone soon to few weeks after CI surgery. It takes them months to year to familiar with sounds because the sounds before and after CI surgery are not the same. I met a lot of CI users at 5 weeks spa and learn from them and also learn from members´ posts from any forums as well.


At first I was puzzled when my hubby told me the story where he met some CI users at 4 weeks spa at 3 years ago. I learn from them at 5 weeks spa last year and gave my hubby right. All said the same thing.
 
nightcrickets said:
With that, I don't think he was a doctor. He doesn't sound like one. Most doctors usually either leave it alone or make medical correction, but they usually don't tell people off like that.They are too smart to do that. I am referring to American doctors. I don't know how doctors are like in other culture.
Click to expand...

He himself is a CI user. He was a simple doctor for many years until he lost his hearing at late age before he become a professor for CI centre in Spa-clinic at 10 years ago. I was there for 5 weeks and collect a lot of things from them... I also communicated with him personally myself. To my impression that he wants everyone listen only him. No Way.
 
nightcrickets said:
Most doctors usually either leave it alone or make medical correction, but they usually don't tell people off like that.They are too smart to do that. I am referring to American doctors. I don't know how doctors are like in other culture.
Click to expand...

wow, you talked as American doctors are prefect and honest people in the world... Nope, I learn alot from any American forums and agreed that every doctors in the world including our country sees after patients money.
 
Liebling:-))) said:
Sure, they CAN talk on the phone but not hear what they said on the phone.

It´s hard believe that the CI users can hear on the phone soon to few weeks after CI surgery. It takes them months to year to familiar with sounds because the sounds before and after CI surgery are not the same. I met a lot of CI users at 5 weeks spa and learn from them and also learn from members´ posts from any forums as well.


At first I was puzzled when my hubby told me the story where he met some CI users at 4 weeks spa at 3 years ago. I learn from them at 5 weeks spa last year and gave my hubby right. All said the same thing.
Click to expand...

Er...it may be for some if not most people who just gotten a CI. I did just fine with the phone 3 days after hookup talking with two people (my wife and my mother). On day four, I had a nice phone conversation with my brother in Texas. I couldn't believe how clear the sounds were with no repeats.

As for as understanding sounds, it really wasn't big deal either. I had gotten used to the differences rather quickly.
 
because she thought CI is better technology than HA.
Click to expand...
Yeah, some of the advertising makes it seem like CI is some trendy gadget. That's strange that she got approved..........I thought that in countries with universal health care, people were more strictly screened? Or does Germany have a hybrid health care system?
 
Liebling:-))) said:
Sure, they CAN talk on the phone but not hear what they said on the phone.
Click to expand...

I'm getting an implant in June, and I use the phone to talk to my family back home. For me, other than the lack of lip reading, it's the ideal situation: I can turn the volume up as much as I want (because the phone is plugged directly into my aid) and there's no background noise to worry about. But then, those are voices that I know well, there's only one at a time, and there's no background noise.
 
Liebling:-))) said:
wow, you talked as American doctors are prefect and honest people in the world... Nope, I learn alot from any American forums and agreed that every doctors in the world including our country sees after patients money.
Click to expand...


Did I say they were perfect? No, it is the way they were trained. They do give their opinion and some can be mean but most just drop it and let the patient decide for themselves. ..... and they don't like being sued :)
 
ismi said:
Actually, no. Talking on the phone doesn't automatically disqualify you, and there are successful CI users who were able to talk on the phone (albeit with difficulty) before they were implanted.
Click to expand...

Actually, if one is able to use a hearing aid to communicate on phone then this person does not need a CI. So with your statement above, I think you mean "who were able to use phone before their hearing condition got worse." that's different story.

So when it comes to take a CI evaluation, if they found that you can use phone with your current HA and passes HINT test and etc then CI isn't a option.
 
Boult said:
Actually, if one is able to use a hearing aid to communicate on phone then this person does not need a CI. So with your statement above, I think you mean "who were able to use phone before their hearing condition got worse." that's different story.

So when it comes to take a CI evaluation, if they found that you can use phone with your current HA and passes HINT test and etc then CI isn't a option.
Click to expand...

That's what I thought but it's nice to learn this from a CI-Borg :D
 
deafdyke said:
Yeah, some of the advertising makes it seem like CI is some trendy gadget. That's strange that she got approved..........I thought that in countries with universal health care, people were more strictly screened? Or does Germany have a hybrid health care system?
Click to expand...

Simple is Health Care System :bowdown: CI and support 100% on this, no matter what. Health Care System treat CI and HA users differently which is not right.

Hybrid Health Care System? I'm not sure what you mean... Is "Compulsory" what you mean?

Germans has a universal multi-payer system with two main types of health insurance: "Compulsory" health insurance (Gesetzlich) and "Private" (Privat).

We have free choice of our social health insurance plan. They cover everything where there're important health are... and very strict about the cost... The doctors need Health Care System's approval before they take care of their patients. The doctors has to follow Health Care System's law.
 
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