Hi & Some Questions for CI Users

cdmeggers said:
YES purple! I'll have to take a picture later as I am currently at work. Purple hearing aids, bright green or orange earmolds... Yeah, I was quite the colorful kid. And you could see through the casing of the HAs too, I thought they were so awesome.
Click to expand...

Wow :) they sound awesome!
 
cdmeggers said:
about how visible the CI might be.. I don't care if people notice my hearing aid or not, so I'm not going to care if people take notice of the CI if I get one... Ever since I was a little kid I was always wanting to show off... Especially in the 3rd grade when I got new purple hearing aids (I was the only one with colored hearing aids at the deaf school at the time, so I was a brat and bragged).... I used to put sticker earrings onto my hearing aid to decorate them and all.... And I'm sure I'll be doing the same with the CI. I even get bright colored molds now (for years I wore flesh colored molds cause the school district audiologist thought I had an allergy... but I don't).
Click to expand...

I'm doing that with my CI now! I have a pink star sticker earring on my CI coil. :D
 
cdmeggers said:
YES purple! I'll have to take a picture later as I am currently at work. Purple hearing aids, bright green or orange earmolds... Yeah, I was quite the colorful kid. And you could see through the casing of the HAs too, I thought they were so awesome.

and thanks Rick. :) And that's cool about your daughter and the birthday we share. :)
Click to expand...

I remember when I was 6 and at the state school for the deaf, I saw a girl with bright orange hearing aids and I thought that was the coolest thing ever. And then years later people had multi-colored earmolds and I thought that was so cool! :)
 
I think those hearing aid with tinted transparent cases are cool. I've always wanted one. I've never worn anything other than beige hearing aids.
 
did any of you that was born deaf due to rubella measles have any plms with surgery .. the audiologist i talked to today said most people who were born deaf due to rubella measles usually have plms with cochlea not being developed right and that it may not be smooth? so just wondering what about any of you that had ci?

the dr i talked to said whenever i am ready i can come back and make surgery date to have ci... i told him im not ready yet.. i dunno why.. maybe due to me not having my own place etc.. so rather wait till im settled down then i will go ahead and have the procedure..

so im curious so tell me if you have any plms with surgery or not? :)
 
Freaky Cat said:
did any of you that was born deaf due to rubella measles have any plms with surgery .. the audiologist i talked to today said most people who were born deaf due to rubella measles usually have plms with cochlea not being developed right and that it may not be smooth? so just wondering what about any of you that had ci?

the dr i talked to said whenever i am ready i can come back and make surgery date to have ci... i told him im not ready yet.. i dunno why.. maybe due to me not having my own place etc.. so rather wait till im settled down then i will go ahead and have the procedure..

so im curious so tell me if you have any plms with surgery or not? :)
Click to expand...

It was believed that my mom had rubella while she was pregnant with me. This was back in 1958 so who knows? Anyway, my surgery went without a hitch and no problems with my cochlea.
 
I'm a rubella child myself and I never had any problem with surgery.
 
deafskeptic said:
I think those hearing aid with tinted transparent cases are cool. I've always wanted one. I've never worn anything other than beige hearing aids.
Click to expand...

Yeah, my ex roommate had hearing aids with clear cases and I thought it was the coolest thing ever. Too bad CI processors don't come in clear or tinted cases! That would be the coolest thing ever!
 
LuciaDisturbed said:
Yeah, my ex roommate had hearing aids with clear cases and I thought it was the coolest thing ever. Too bad CI processors don't come in clear or tinted cases! That would be the coolest thing ever!
Click to expand...

Oh, yeah it would!
 
MRIs and other problems

Hi again everyone--

I consulted with a dr. today. He said I am a candidate based on my audiogram. We discussed my history and expectations, and he wants to implant my bad ear as I had predicted. I am still thinking about it and researching for at least one more year before taking the plunge.

I did forget to ask him a few questions though:

-Is Nucleus Freedom incompatible with MRIs? What do you suggest for patients who need MRIs?
-What about static electricity? Is there intereference with computer screens and tv screens necessitating a removal of the processor? (I read this somewhere, not sure if it's a true concern)
-What do you suggest people do when passing through a security checkpoint? What's the worst thing that can happen if there is interference?

Hoping you wonderful people can address some of these for me!
Thanks. :bowdown:
 
Grendel said:
Hi again everyone--

I consulted with a dr. today. He said I am a candidate based on my audiogram. We discussed my history and expectations, and he wants to implant my bad ear as I had predicted. I am still thinking about it and researching for at least one more year before taking the plunge.
Click to expand...

Congratulations on your candidacy!

Grendel said:
I did forget to ask him a few questions though:

-Is Nucleus Freedom incompatible with MRIs? What do you suggest for patients who need MRIs?
Click to expand...
Any implant regardless of who the manufacturer is incompatible with a MRI period. The implant is metallic and thus attracted to any magnetic force and particularly a MRI. They have other means to scan your head without resorting to a MRI.

Grendel said:
-What about static electricity? Is there intereference with computer screens and tv screens necessitating a removal of the processor? (I read this somewhere, not sure if it's a true concern)
Click to expand...

The implant is not impacted by static electricity. The processor though can be and at worst case have the programs wiped out. You just have to go to the CI center and get them restored...no big deal and if you have two of them (some get two for the same side like myself) you simply use the other until the other gets fixed.

As for computer and TV screens, no problem whatsoever. Er...how do we CIers do AD or anything on computers or TV with the CI on? :D

Grendel said:
-What do you suggest people do when passing through a security checkpoint? What's the worst thing that can happen if there is interference?
...
Click to expand...

Shouldn't be any real problems as I have gone through some of them. I did set the alarm off of one and showed my card that explains that I wear one.
 
Oh okay, thanks for answering. So how do you avoid the static electricity problem? And where do you get official cards saying that you're a CI wearer?
 
Grendel said:
Oh okay, thanks for answering. So how do you avoid the static electricity problem? And where do you get official cards saying that you're a CI wearer?
Click to expand...

To avoid static electricity, you just have to avoid strong conductors of it. Things like plastic slides the kids go down in parks. Hey...I go down them anyway with my kids now and then but I simply don't let my head touch the sides ;) Don't shuffle your feet on the carpet asking for a zap when you touch metal like doorknobs. Even if you did that, it won't effect your processor...just your hand. Use your common sense. I have yet to get into a situation that could have caused a problem (okay...okay, the slide was one :whistle: but otherwise no).

As for a card, they give you one after you get your CI when you get "hooked" up. If they "forget", ask for it.
 
Grendel said:
Just did some research and it seems they usu. recommend implanting the ear with less hearing and using a hearing aid on the other side. Hmm... anyone tried this approach?
Click to expand...

Hi Grendel,
My 17 year old daughter has a severe to profound to severe hearing loss. She wear a hearing aide in the better hearing ear and an implant she received when she was 11 years old in the other ear. She has long hair and sometimes she wear it up and sometimes she wears it down. You cannot notice her implant but you sure can notice her bright green ear mold and hearing aide. Most implants are now behind the ear so you really do not notice them.
 
Grendel said:
Hi again everyone--

I consulted with a dr. today. He said I am a candidate based on my audiogram. We discussed my history and expectations, and he wants to implant my bad ear as I had predicted. I am still thinking about it and researching for at least one more year before taking the plunge.

I did forget to ask him a few questions though:

-Is Nucleus Freedom incompatible with MRIs? What do you suggest for patients who need MRIs?
-What about static electricity? Is there intereference with computer screens and tv screens necessitating a removal of the processor? (I read this somewhere, not sure if it's a true concern)
-What do you suggest people do when passing through a security checkpoint? What's the worst thing that can happen if there is interference?

Hoping you wonderful people can address some of these for me!
Thanks. :bowdown:
Click to expand...

Hi Grendel,
My name is Jackie and I have 2 oral deaf teenagers that both have cochlear mplants and I am also an oral teacher of the deaf so I deal with these issues on both sides.

There is research coming out that says it is better for you to wear either a hearing aide on one side and the implant on the other side or 2 implants but that really is a personal choice. Since you have useable hearing you probable should still where your hearing aide. Part of the reason is that it will help you localize sounds. While it is true that most people lose all hearing on the side that is implant that is not always the case. My daughter did not lose her hearing on her implanted side. When I asked her audiologist she said that most people do so that is why they tell everybody that they will.

In my classroom we have taken measure to aviod electrical static such as having wood chairs, special mats under slides but while this is a concern it does not happen that often. My son has had is implant for over 12 years and once his map was wipe out because he was jumping in one of those moon bounces.

As a family we do a lot of traveling with our kids, they do not go through the security box. We inform the guards that our children have cochlear implants and cannot go through that box. They just pull them aside and pat them down. At first this bother my children but now they just take it as part of our traveling together. Also these guards do learn a little bit about people with implants, they are told that they cannot go through it. The worst thing that can happen is that your program is wiped out and you have to go have it programmed again.
 
That's exactly what I've been thinking of doing with the implant, Jackie... get the implant in the left ear, so that I can continue with the hearing aid in right ear... But first, let's find out if I'm a candidate. 11 on Monday is the appointment, and we leave for Denver very early in the morning tomorrow. :)
 
Back
Top