Help with hearing aids for child

[Smithtr]

That whistling is mic feedback..... You might try plugging up the air hole in the mold. I did this and it took care of the problem.

you are funny jokes!

 

[RyLeigh's mom]

Thanks so much for all the responses. It makes me feel better to know that there are others out there willing to share their advise and experiences. In way I think I just really needed someone to vent (aka panic) to. lol.
I really can't say enough how much better it felt just to write about my worries and have someone respond.

I though a lot about what some of you mentioned about learning ASL and you made some good points.

Before she was born I had decided to do baby signs with her I though that it would be interesting and would be good for her. She has been exposed to them some since she was only a few months old, I will admit after she was diagnosed things got kinda crazy and I haven't used them nearly as much as I had planned.

This is something I am going to starting working on with her more again. I think I will also look into if there is a class that I can take. I do have a book and a DVD but I am not sure if I could learn ASL on my own.

Yes I am only too aware of the fact that her hearing can get worse I have read that as much as 50% of children with her type of loss will loose more hearing. I have also read about other bad things that can come along with hearing loss among them, eventually becoming blind and kidney failure to name the worst , although I know these things are rare they still scare me.

I find it interesting that someone mentioned the loss of hearing as we age as also being a progressive hearing loss. I hadn't thought about it that way, and that did make me feel better.

We are supposed to have some genetic testing done in March, I know that there is a good chance that we will never know what caused her hearing loss, but I hope that maybe they can at least rule out a few of the bad things the ones that cause other problems.

I am going to ask her audi about if an aid with more frequencies would be better for her though. I did ask this question last time we were there but the audi was out of the room and the student she had with her answered it. She said that having more than 8 channels really didn't make much difference and that the ones with more channels cost lot more.

I think her aids would be good for most kids, it is the fact the RyLeigh has a cookie bite that makes me worry.

In closing I just want to say thanks again. I look forward to being a member of the forum. I know I will have more questions in the future.

 

[deafdyke]

Hmm, true,
however most people with sensorineural hearing loss including myself I know
got it in progressive form, though.

I just assumed it is most common, of course I can be mistaken.

How about you, I suppose yours isn't progressive? if you have s-n at all?


Fuzzy

I think 20% of pediatric heairng loss is progressive.

 

[Lissa]

Hmm, true,
however most people with sensorineural hearing loss including myself I know
got it in progressive form, though.

I just assumed it is most common, of course I can be mistaken.

How about you, I suppose yours isn't progressive? if you have s-n at all?


Fuzzy

I do have sensorineural hearing loss but if you look at my audiograms from 1998 my audiograms pretty much the same. It might be due to the cause of my hearing loss though.

 

[Lissa]

Sensorineural hearing loss is nerve deafness. It can be progressive hearing loss as one ages. It's rather quite common for older people to experience a decline in hearing from sensorineural hearing loss. Maybe the term "progressive" need to be spelled out somehow and clarified?

Kokunut, I KNOW what sensorineural hearing loss is and I definately know what progressive is, mine isn't and like another poster said, it's not ALWAYS progressive.

 

[Lissa]

I think 20% of pediatric heairng loss is progressive.

that's a very interesting fact!

 

[deafdyke]

that's a very interesting fact!

It's also another very good reason why hoh kids should learn ASL.....it's a good backup in case the loss is progressive.

 

[Audiofuzzy]

Well, I think it is better to be prepared for the worst while expect the best, though
as one never knows what ten future hold.

That's all I mean.

Fuzzy

 

[CSign]

I think 20% of pediatric heairng loss is progressive.

I'm curious where you got that statistic from. I've never heard or read that before.

 

[Audiofuzzy]

I do have sensorineural hearing loss but if you look at my audiograms from 1998 my audiograms pretty much the same. It might be due to the cause of my hearing loss though.

Do you mind telling what is the cause of your hearing loss, then?

I was probably born with it - nobody knows for sure.
It manifested for the first time when I was about 5 y.o. or less.

Fuzzy