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fleea

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Hello, my name is Diego, im 17 and im hard of hearing, I've been suffering from hearing loss since summer of 2013(around late july) at first i thought it was an ear infection to my right ear because i had alot of pain, i had pressure and i could hear myself speak in my right ear, I was stressed about it so much to the point where I would pace around the house all night bothering my family with my footsteps all summer, i hated it so bad and after all of that the pressure was gone and I felt relief, but I lost hearing aswell in my right ear but it feels like i lost hearing in both, I still stressed and stressed about it, I even locked myself in the bathroom and just broke down into tears thinking to myself "why is this happening to me? Why?" But after that i felt relief and a bit of content letting my feelings out. I paid no mind to it a year after because i could still hear somewhat normally but recently i feel like I've been losing hearing over time and all that stress, depression, and anger came back and it's just like the summer of '13 all over again, pacing back and forth at night, locking myself in the bathroom to let my feelings out, etc. It's hard for me but i know i'm not the only one, and I know there are others who are completely deaf, im just so scared that I'll become deaf aswell someday since I used to hear normally before all this, i tried explaining to my parents about why I pace around and become stressed so bad when I feel like i've lost hearing, but they dont understand so I tell them thet have to experience it to understand what i'm going through and how I feel. I hope i find comfort and support talking about this to you guys on here. Thank you.
 
Have you seen an ENT to rule out anything? Sometimes hearing might be able to be restored. Also have you visited an audi to confirm the loss?
Are you still in school? Maybe you could attend a local dhh program for support and to learn ASL...There's also deaf camps and so on and so on......Look into every and anything!
 
Hello Diego,
Welcome to AllDeaf. It sounds like you really need someone to talk with about what you feel. It must be very frightening for you. What is it you fear most? Perhaps our deaf members can help to reassure you. Being deaf does not mean you lose anything other than your ability to hear. In fact, you may find that you gain more than you lose. It may comfort you to learn as much as you can about the Deaf Community. If you lose your hearing, those who love you will still love you. You may, however, need to learn a new form of communication so that you can live a happy life. Start out by talking about what you are going through with others who have had the same experience. It may help you to understand your feelings and to know that there are others who understand, too. Remember that being deaf does not mean you are unable.

I also agree with deafdyke that you should see a specialist to clearly diagnose your condition. It will provide you with options. Information is power. The more you take charge (even at your age), the better you will feel.

Wishing you the best,
Michael
 
Thanks, all of you. To Deafdyke and MMcC, I have been to an ENT but it was two years ago around this month. I forgot what type of hearing loss i was told i have, but i remember I've been told i had a mild loss of hearing, and that based on my hearing tests my hearing was still within normal range. I felt relieved being told that but over time i felt like my condition has been gradually getting worse, and now recently even more worse to the point i can barely hear everyday sounds or conversations, i even notice i can hear myself talk but not as loud as before. It's just really scary for me. I also notice and feel that sounds almost dont go directly to my ear, its hard to explain but it feels like i have some sort of barrier between the sound and my ear so sounds are more distant. I was planning on going to my doctor to get a referral to go to the ENT but he wont be available until august 26th. Yes I am still in school, they also know about my hearing loss but haven't been told if there's any groups with people like me, so i doubt it, but i will look into local groups around me
 
Also what I fear the most is completely losing my hearing, not being able to hear the voices of people i know, although i love some time of silence i dont want to live the rest of my life in complete silence. I fear not enjoying doing things i love like i used to anymore, like gaming while skyping friends. I've taken extreme caution with my hearing aswell to the point i almost shut myself out of alot of things due to the fear of losing hearing because of everyday sounds like cars, trains, etc.
 
:welcome:

I'm sorry that you must wait so long to see the doctor. The waiting and unknown future are causing you stress. I hope you can somehow see the doctor sooner. The sooner you know exactly what's happening with your hearing, the sooner you can take positive actions.
 
fleea said:
Also what I fear the most is completely losing my hearing, not being able to hear the voices of people i know, although i love some time of silence i dont want to live the rest of my life in complete silence. I fear not enjoying doing things i love like i used to anymore, like gaming while skyping friends. I've taken extreme caution with my hearing aswell to the point i almost shut myself out of alot of things due to the fear of losing hearing because of everyday sounds like cars, trains, etc.
Click to expand...

Well they do have hearing aids and cochlear implants! And late deafened people do respond VERY WELL to CIs!
 
fleea said:
Thanks, all of you. To Deafdyke and MMcC, I have been to an ENT but it was two years ago around this month. I forgot what type of hearing loss i was told i have, but i remember I've been told i had a mild loss of hearing, and that based on my hearing tests my hearing was still within normal range. I felt relieved being told that but over time i felt like my condition has been gradually getting worse, and now recently even more worse to the point i can barely hear everyday sounds or conversations, i even notice i can hear myself talk but not as loud as before. It's just really scary for me. I also notice and feel that sounds almost dont go directly to my ear, its hard to explain but it feels like i have some sort of barrier between the sound and my ear so sounds are more distant. I was planning on going to my doctor to get a referral to go to the ENT but he wont be available until august 26th. Yes I am still in school, they also know about my hearing loss but haven't been told if there's any groups with people like me, so i doubt it, but i will look into local groups around me
Click to expand...
Get a follow up regarding your hearing.......Regarding education...... What state are you in? They try to get away with providing minimal accomondations, and not telling you about the local resources....there are dhh programs (which can be good) and Deaf Schools, which might be a good option (although they can be mixed) They may help you with emotionally adjusting, meeting other dhh kids, various and sundry accomondations, and learning ASL (which would be a great secondary skill)
 
I live in Chicago, Illinois, I've been thinking about getting hearing aids or maybe even a cochlear implant because both of my ears are affected but im afraid if my parents will be able to afford them and i just honestly dont want to put any more stress on them than i already did with this whole situation, but i will try to talk to them about it.
 
I will be getting a follow up once i get a referral to the ENT from my doctor hopefully near the end of August.
 
fleea said:
Thanks, all of you. To Deafdyke and MMcC, I have been to an ENT but it was two years ago around this month. I forgot what type of hearing loss i was told i have, but i remember I've been told i had a mild loss of hearing, and that based on my hearing tests my hearing was still within normal range. I felt relieved being told that but over time i felt like my condition has been gradually getting worse, and now recently even more worse to the point i can barely hear everyday sounds or conversations, i even notice i can hear myself talk but not as loud as before. It's just really scary for me. I also notice and feel that sounds almost dont go directly to my ear, its hard to explain but it feels like i have some sort of barrier between the sound and my ear so sounds are more distant. I was planning on going to my doctor to get a referral to go to the ENT but he wont be available until august 26th. Yes I am still in school, they also know about my hearing loss but haven't been told if there's any groups with people like me, so i doubt it, but i will look into local groups around me
Click to expand...

Doctors are so unbelievable today , making people wait so long to see them, did you ask if they had another office you could go to or to call you if you if they had any cancellations ? If not you should , people cancel all the time . My family never really understood what it was like
for me being hoh, when you do see an audi see if they can give you pamphlets to educate your parents about having a hoh son /daughter .
:wave:
 
whatdidyousay! said:
Doctors are so unbelievable today , making people wait so long to see them, did you ask if they had another office you could go to or to call you if you if they had any cancellations ? If not you should , people cancel all the time . My family never really understood what it was like

for me being hoh, when you do see an audi see if they can give you pamphlets to educate your parents about having a hoh son /daughter .

:wave:
Click to expand...


My doctor does have another office but its real far from where i live, he's probably busy over there thats why i probably have to wait so long, my mother also told them to call if someone else cancelled their appointment so we could go. And yeah thats what bothers me a bit too, i just feel so alone because noone else in my house knows how it feels and they have perfect hearing, its just me thats why i was hoping to see if someone here could talk to me about their experience with hearing loss and what they did to deal with it if it gradually got worse over time.
 
fleea said:
My doctor does have another office but its real far from where i live, he's probably busy over there thats why i probably have to wait so long, my mother also told them to call if someone else cancelled their appointment so we could go. And yeah thats what bothers me a bit too, i just feel so alone because noone else in my house knows how it feels and they have perfect hearing, its just me thats why i was hoping to see if someone here could talk to me about their experience with hearing loss and what they did to deal with it if it gradually got worse over time.
Click to expand...

A lot of doctors and audi have more than one office today , UGH! I was going to one audi for years but I got fedup when he had his stepdaughter and wife work with him. I found a new audi close to my home and like him but now he is on the road most of the time and I have to see one of the other audi in his office. The woman did not know how to put a new tube in for me so it took almost a half hour instead of 5 minutes . :roll:

I was born HOH and got my first hearing aid when I was 8 yo . People thought I was retarded when I failed first grade the second time.
My teacher kept me after school one day and gave me a hearing test and told my parents I was HOH . So I went 8 years not hearing and I was :shock: when I heard how noisy a paper bag was . I only wore one
hearing aid ,a body style one . I hope you'll be able to see the doctor soon . I hope you'll stick around so I know how things went with the doctor . Good luck .
 
whatdidyousay! said:
A lot of doctors and audi have more than one office today , UGH! I was going to one audi for years but I got fedup when he had his stepdaughter and wife work with him. I found a new audi close to my home and like him but now he is on the road most of the time and I have to see one of the other audi in his office. The woman did not know how to put a new tube in for me so it took almost a half hour instead of 5 minutes . :roll:



I was born HOH and got my first hearing aid when I was 8 yo . People thought I was retarded when I failed first grade the second time.

My teacher kept me after school one day and gave me a hearing test and told my parents I was HOH . So I went 8 years not hearing and I was :shock: when I heard how noisy a paper bag was . I only wore one

hearing aid ,a body style one . I hope you'll be able to see the doctor soon . I hope you'll stick around so I know how things went with the doctor . Good luck .
Click to expand...


Wow im sorry for that.. Thats just cruel.. Not alot of friends of mine at school know im HOH because its a topic i just dont really like to talk about, ive only told a few, they seem to have accepted it and i feel glad. And thanks, i hope i get to see my doctor soon, and if i have to wear a hearing aid i hope if i can get two, im seriously going to be bugged if i can hear decent on one ear then the other one its all crappy, as if i had an ear infection in one ear and the other one is fine lol, ill stick around and keep in touch with you to update you after seeing the doctor! Thanks for sharing your experience, i really appreciate it.
 
fleea said:
I live in Chicago, Illinois, I've been thinking about getting hearing aids or maybe even a cochlear implant because both of my ears are affected but im afraid if my parents will be able to afford them and i just honestly dont want to put any more stress on them than i already did with this whole situation, but i will try to talk to them about it.
Click to expand...

Chicago proper? Well CIs are generally covered by insurance, and there's some financial help with aids. Maybe a better idea might be to attend a school or an educational program that would help you to adjust to life being dhh........
 
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