Hearing Aids vs. Cochlear Implants

Okay... ramp up your ASL... give him another language... okay... now how do you recommend that? I don't know ASL. I am just learning as I go. I am learning as many signs as I can and then showing him throughout the day. But I don't know ASL. You might as well tell me to teach him Chinese because it's pretty much the same thing. I know how to speak english... that's it. I know maybe 75-100 SEE signs... but that's it. I give him those daily and for the most part he understands them... and he's just starting to try and imitate my hands.

And as for accepting that he will never speak... no can do!

You need to get him around adults and other children who sign fluently. I know that you don't know ASL yet, neither did we. You need to have your IFSP goals say something like "Family will learn and use 20 new sign per week". You need to find Deaf adults and interact with them so your language can grow quickly, and your child can have access to fluent signers. Do you have a Deaf community center in your area? They will have free ASL classes. Also, a community college will have introductory ASL classes as well. I found them to be a great way to learn. Also, "Signing Time" video are quick and you can watch them with your son as well. They each have at least 20 new signs in them, and I believe there are 15 or more videos.

And seriously, you need to accept that MANY deaf people never learn to speak, I'm sorry that no one ever told you this, but it is a fact. I'm sorry that it is difficult for you and that you want your child to be successful in all areas, but are you being realistic? He is already passing the prime time for language learning and you say that he is appropriatly aided and has been in early intervention and had therapy, but it hasn't worked....isn't that telling you something?
 
Okay... ramp up your ASL... give him an of deaother language... okay... now how do you recommend that? I don't know ASL. I am just learning as I go. I am learning as many signs as I can and then showing him throughout the day. But I don't know ASL. I know how to speak english... that's it. I know maybe 75-100 SEE signs... but that's it. I give him those daily and for the most part he understands them... and he's just starting to try and imitate my hands.

And as for accepting that he will never speak... no can do!

ok you need counselling from someone who understands hearing parenting of hl kids to accept your sons reality(he may not get a ci or speak and counselling will help you come to terms with it)

my parents still to counselling to accept my reality even through im 18 and not living in the same town
 
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FJ is totally right. The advice she has given you is great--work on your ASL, get him exposed, etc.

However, you don't know why your son isn't talking yet. Don't fret too much until he has visited another professional about it. Make sure that professional is experienced with deaf and hard of hearing kids. Some people think the D/HOH are all doomed to never talk. First find out how much he hears aided to see if it really is enough. Then I'd see why he isn't talking otherwise. You can see what to do after you know those things.

You mentioned you couldn't accept him never speaking. I'm not saying he won't, but you have realize that it very well is possible that speech might not be comfortable for him or that it might not be as clear as your speech as a hearie. Who knows, he might just be a late talker and end up talking as well as you--but be ready for anything. Speech is not always easy, and nobody wants their lives to be an eternal speech therapy session.
 
When I went with Tyler at 18 months, they told me that they usually implant severe/profound. But maybe after a few years with no speech they will look at implanting with a lower loss???

**(As far as I know in many locations)** The requirements are still severe -profound, so regardless of his speech or lack there of unless he meets the auditory requirements no he isn't a CI candidate.

It is possible that he may have something like CAPD (central auditory processing disorder) or APD )auditory processing disorder) ... this can be VERY hard to test for. They are NOT "hearing loss" ... It's difficult to explain, but it's like the auditory information that the person hears just doesn't make sense and is often ignored by the brain. It can vary from mild (making HL seem greater than it is, and making listening in noisy environments & with background noise etc very difficult) to very severe where the person effectively can't process auditory information at all. This is a "brain issue" NOT a hearing issue - which means that a CI isn't going to make a difference at all.

Personally I have profound hearing loss on my right side +120db across all frequencies & I have mild/moderate fluctuating loss on my left side... but I also (almost certainly) have a mild APD.
The result is that instead of responding like an individual with Rt profound & Lt mild/mod loss ... I respond & interact with the world a lot more like I have Rt Profound & Lt mod/severe or severe loss. When I am over-whelmed by auditory information (ie sound/noise) my brain sometimes will temporarily "shut off" the audio ... just as if someone hit "mute" on the TV. As a result I am a VERY visual person. ASL makes more sense to me than speech, seeing makes more sense than hearing ... visually is almost entirely how I process and retain information.


As the others have said - it's critical that your son is surrounded by "accessible language" this means being around fluent signers as much as possible (look into "signing play-dates" , Signing Parent&child groups etc in your area).

From a "learning a primary language" point of view ASL makes more sense visually than SEE does - all the word endings/tenses as well as "the","a" etc often get in the way more than they help (in this situation, it's different if your teaching reading & English ... but right now, you need to focus on communication not English grammar lessons). It will also be much easier to surround yourself with other ASL users than SEE users.

Read, read, read with him as much as possible (signing words, espeically nouns and reading at the same time so that he can see the book & your hands at the same time). Even if he's not getting the auditory input he's learning how language works - which is very important.

If you have TV you watch - ALWAYS have the captions/subtitles on. It's an important habit to get into now.


I'm not sure when the last time he had an audiogram done? but if it's been more than 6months and you are concerned that he may have more hearing loss than his previous audiogram indicates I'd recommend taking him to a Audiologist who is a specialist in paediatric Audiology and is familiar with various auditory processing etc issues (CAPD, APD, AN etc). If you have a copy of his Audiogram and have questions about it feel free to post it here and we'll help you make sense of it.

Always request a copy of your child's audiograms (you have a right to one) so you can keep them in a file at home for your own records .. this is VERY helpful!




Regarding the possibility that your child may not speak verbally (although it's very early to "go there")...

"speaking" isn't about making sounds with your voicebox ... it's about being able to communicate with someone. It's being able to tell someone you care about "I LOVE YOU" and for them to be able to understand and return the affection.

One of the most profoundly important things in my life was the very first time my mom signed a sentence to me - not a "practice sentence for ASL class", but actaully elected to enter MY world and use the language that I was more comfortable in (after 25years of making me do all the accommodating via speech-reading, hearing aids, guessing games etc). The content of the sentence wasn't important (I think she asked if I wanted coffee or tea lol!) it was that she made a CHOICE.... and honestly it felt like I was "hearing my mom's voice for the first time" ... I had that same "glee" that a parent has when their child says "mama" or "dada" correctly.

Speech comes in different forms - sometimes they are vibrations in one's voicebox... other times it's the subtle movement of ones hands ... it's the knowledge that it's the start of "meaningful communication" that makes it a beautiful and special moment.
 
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The requirements are still severe -profound, so regardless of his speech or lack there of unless he meets the auditory requirements no he isn't a CI candidate.

This isn't the case anymore. My daughter was implanted with a moderate sloping to severe loss (It was 50 db at 500 hz) twice. Surgeons are now looking at the WHOLE picture, not just pure tone averages when deciding whether or not to implant.
 
This isn't the case anymore. My daughter was implanted with a moderate sloping to severe loss (It was 50 db at 500 hz) twice. Surgeons are now looking at the WHOLE picture, not just pure tone averages when deciding whether or not to implant.


I'm guessing that it varies from country to country (and maybe even with in a country)???

Regardless ... looking at the "whole picture" for approvals is always a good thing :)
 
Also, from every professional I have spoken to, it is impossible to dx an auditory processing disorder in a person with a hearing loss. The disorder is defined as not being able to understand speech INSPITE of hearing normally. Therefore, if you do not hear normally, it is impossible for you to have the diagnosis.
 
I understand nothing will make him speak... only himself.

But I want to make sure he has access to all sounds (including speech). And I worry that maybe the hearing aids aren't providing him with this (hence the lack of speech). But I also worry if I choose to implant and destroy his residue hearing what if the ha's were enough and I just tried to rush it...

Does this make sense???

Anyone know the percentage of hoh children becoming oral if they have accessibility to ha's or ci's?

The most important thing right now is that your son gets exposed to ASL because it is a language. Once he becomes fluent in that, he will be able to read, write, and achieve higher thinking skills. Without a language, all those skills will become much much harder to achieve.

Deaf people who have no speech skills do have language and achieve literacy skills.
 
Post #21 made by FairJour has great recommendations. I hope you will seriously consider taking them.
 
I have a CI and hearing aid so i will tell you right now if he can hear he will have a harder time speaking with a CI, I'm a rare case and spent 2 weeks learning to hear and say new sounds but average time is 6 months to a year.
 
You need to get him around adults and other children who sign fluently. I know that you don't know ASL yet, neither did we. You need to have your IFSP goals say something like "Family will learn and use 20 new sign per week". You need to find Deaf adults and interact with them so your language can grow quickly, and your child can have access to fluent signers. Do you have a Deaf community center in your area? They will have free ASL classes. Also, a community college will have introductory ASL classes as well. I found them to be a great way to learn. Also, "Signing Time" video are quick and you can watch them with your son as well. They each have at least 20 new signs in them, and I believe there are 15 or more videos.

And seriously, you need to accept that MANY deaf people never learn to speak, I'm sorry that no one ever told you this, but it is a fact. I'm sorry that it is difficult for you and that you want your child to be successful in all areas, but are you being realistic? He is already passing the prime time for language learning and you say that he is appropriatly aided and has been in early intervention and had therapy, but it hasn't worked....isn't that telling you something?

Agree with Shel, this from Faire Jour is right on target :gpost:

We started ASL with our child even before we got the diagnosis of profound deafness -- our state provides family sign lessons in the home (on weekends!), thinking that whether it was a cognitive disorder, deafness, an ear infection or a blockage with hearing loss lasting a couple of months, we didn't want to lose a moment without developing language during that critical time. And if things had been different and suddenly ears were working, she was speaking, and all that, it would still have been worth all the effort: she'd start off bilingual! We're convinced that having ASL as a first language has made it so easy for Li to pick up spoken English..
 
Ryancher and I have been chatting through email but I wanted to post here too...

In Ontario our CI candidacy process is pretty strict. I doubt he will qualify, especially through the aided audiogram testing if he is recognizing and discrimination sounds.

I might have a resource for you learning ASL, or at least jump starting the process, let me send out a few emails. It is hard because of where you live, you are out of the catchment area for a lot of programs. I know people though so let me see what I can do.

We'll keep emailing.

Jenny
 
I am not involved with the above situation re: my sons, fortunately. I understand the criterion for baby's Implants/Hearing Aids is to allow them to learn to speak, In this section of Ontario it is carried at Hospital for Sick Children which does NOT use adult consideration. This is what I understand from Sunnybrook/Toronto- Cochlear section- where I am.
Perhaps other countries have different standards.

Advanced Bionics-Harmony Atria activated Aug/07
 
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