The Medical Community had tried to make us suffered thinking that hearing aids and now CIs would help the Deaf hear sounds or for a lack of a better word 'Listening" which we have a hard time trying to make out. I hate oral method and still would like going to Deaf Schools where there were sign language like ASL so that we can express freedom to be able to sign with teachers and students. In the hearing world, it was not that easy trying to understand without an interpreters especially at the workplace.
Hi! I have read many mixed reviews about CIs and HAs, and I understand how frustrating it must all be. The actual integration of CN VIII (vestibulocochlear) is something we don't fully understand yet. Modern CIs reproduce the signal that hearing people perceive as sound, but what happens with deaf adults is that the signals are not perceived the same way. This is why cochlear implants are best done early in childhood; the adaptive capability of the human brain significantly changes from infancy to adulthood. We don't really understand why this happens. The lab I work at aims to understand more about biological machine learning.
As for CI, it is just surgery that you can put CI in the Cochlear area of the brain. The only difference is that each d/Deaf person are different on how they can hear sounds along with their audiograph of how much they can hear and if CI would work for this person or not. As for babies, how would you know if the baby can hear the sound with CI or later find that the CI did not work. Why do they have to suffer? Can the baby wait until he or she grows older enough to know what CI is for and whether he or she be able to hear with CI. That is what troubled us very much on this. Why do we have to suffered for this over the many years having hearing people tell us what to do and refused to let us sign our first language of ASL? They don't bother to listen to our needs. That is all I have to say.
I'm sorry this happened to you. If it were it up to me, I would ensure that ASL facilities are provided. You are right--there is no guarantee that a CI would work. It would be great to let the baby grow older and decide for him/herself, but the brain's adaptive capability changes with age for some reason we don't understand yet.
I'm currently a college student going into medicine, so I am not a doctor yet, but I work with doctors on a day to day basis. The people I work with are truly compassionate, so I'm sorry that your experience with hearing people in the medical community was terrible. The doctors I know promote ASL--it's such a beautiful and vivid language!