frankies surgery is next tuesday.

frankiesmom

frankiesmom

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yep..captain oral aversion is getting a feeding tube!
the boy just wont eat..thank god hes a chub and hasnt gotten to the starved looking child stage, but it is still not good at all.
we saw the geneticist..he was horribly vague and is doing a "microarray" and a test for fragile x..he said his hearing loss is "syndromic", i think that is what he said anyways.
blah. i wish he only had hearing loss! :eek3: it would be so wonderful!!!
 
There are lots of us "syndromic" types here. It just means that the mutated gene affects more than just hearing. It's not as scary as it sounds.
 
I have two! Syndrome is just a good way of grouping and explaining things. Sorry about the feeding tube.
 
LOL I hear you. But at least you might be getting answers with genetics. In some cases there are treatments for the genetic problems.
 
thanks everyone! it sucks..but there isnt much else i can do..i cant bribe him to eat! at least its not like heart surgery or something really major.
 
Poor little guy. He must be hungry! Hope that he feels better soon.
 
In my thoughts and prayers, too. Good luck to you, Frankie and your whole family.
 
Will be praying for you, Frankie, the family and the doctors as well.
 
I'll keep Frankie in my thoughts. Let us know how it works out.
 
Speaking of syndromes, I have congential Rubella syndrome. It has nothing to do with genes though.
 
thanks everyone! i am not looking forward to it, but i AM looking forward to not having to obsess over his eating habits quite as much. its been very hard lately!!
 
I will keep frankie in my thoughts and hope he's feeling better. good luck to all of you.
 
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