Failed Ci....removal?

Polish deaf had it hard during socialist. they fled as soon as they could.

Fuzzy
 
btw I believe nobody got it better than USA and Canada deaf. not even Europe.

Fuzzy
 
Audiofuzzy said:
btw I believe nobody got it better than USA and Canada deaf. not even Europe.

Fuzzy
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that wasn't for free, and we had to fight for it

in canada Deaf hands were still being tied in some Deaf schools up till 1983 so..
yeah..

in the states it was forced sterilization at some times, as well as laws preventing Deaf from marrying, as well as the hand tying, in germany of course its a fact regarding the T4 programme under the third riech and what resulted in, poison gas, and ovens...sterilizations, so on...all of these can be traced to a line of thought that seeks a world with no Deaf..a line of thought that wants rather then diversity in human experience and in human being, instead seeks a scientific measure of normality and to impose it on those who are deemed abnormal, and defective with the aim to not just "cure" but also to prevent any further beings of that tagged measure even being born.

such as what alexander graham bell founder of agbell, large stake holders in the combined system of CI, envisioned and pleaded for in his, memoir of the formation of the Deaf variety of the human race, i quote


founder of AGBELL:" said:
"in the proceeding chapters i have shown that sexual selection is at work amongst the Deaf and dumb, tending to produce a Deaf variety of the human race.

those who believe as i do, that the production of a defective race of human beings would be a great calamity to the world, will examine carefully the causes that lead to the intermarriage of Deaf with object of applying a remedy"
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the above framework of eugenics of course is alive and very active in the latest scientific fields, and it is the above frame works that we Deaf have been opposing since oralist domination.


as Deaf, i am well aware of Deaf plight in other nations, after all i've been around and that is why our resistance to the combined system CI/AO/AVT/LSL/AGB, ect ect is also global in nature..

We know what we've been through, WE knwo how close it came, WE know how close they are today, WE know the future is grim, WE know that our children are counting on us to not go quietly and silently in the night, WE know we are obligated to resist.

and so WE DO!
 
yes around 45% refuse and or reject the technology..that's not a very high success rate..so they keep expanding the market and moving the goal post to get more drilled into...
 
hoichi said:
yes around 45% refuse and or reject the technology..that's not a very high success rate..so they keep expanding the market and moving the goal post to get more drilled into...
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In the last 10-20 years, how much has that number changed (those that reject the technology)?
 
Limited02 said:
Then what is it today? What was it prior to 2008? You mention a lot about how the CI industry is eradicating the deaf culture so I assume you would be able to answer that?
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you asked me a question re the numbers for those who are rejecting CI, and i provided it for the year it was measured anyway.
that is a very different question then the one regarding the eradication for Deaf culture

are you asking me a number for the eradication for Deaf culture then i have already posted numbers for the time frame 2000-2008 in regards to ASL in Deaf schools, and orla only education and mainstream in that time bracket
 
hoichi said:
you asked me a question re the numbers for those who are rejecting CI, and i provided it for the year it was measured anyway.
that is a very different question then the one regarding the eradication for Deaf culture

are you asking me a number for the eradication for Deaf culture then i have already posted numbers for the time frame 2000-2008 in regards to ASL in Deaf schools, and orla only education and mainstream in that time bracket
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I'm asking about those that reject/accept CI technology. You said that in 2008, 45% of people rejected the technology? I am just curious what was it prior to 2008 and what is it today?
 
the numbers i have on hand are for the years i posted, feel free togather other stats and we can work together in discussing them.

i do not have the numbers from for the present yet..

the studies are out there of occur, both from the multi-nationals and other orgs.
its just a matter of finding them they are public, and usually will be referenced in peer reviewed academic journals either available on jstor or muse, even academia..
having stated that.
we can actually discuss the numbers we do at the moment have for the brackets we have them
also its its not the numbers isolated that matter, its the numbers coupled with eye witness statements both form survivors and from those who actually do the actions and work the policy of keeping Deaf children away from Deaf children and DENYING sign language which again is NOT even disputed on their part, they even pat each on the back at annual dinners regarding it,

the last one in may was agbells gloating o fit so..

so
when it comes to the numbers we do have at the moment, for those brack t years as well as the actual statements of those who survived it both on here and in peer reviewed literature its not very wise to dismiss what we are stating.

if you sincere
anyway
 
Mary Gorton said:
Hi, I just had a Med El CI put in two weeks ago with hopes to gain some hearing and relief from my terrible tinnitus. I have NF2. For those who don't know what that is, it's a genetic disease that the hallmark of it is bilateral vestibular schwannomas (acoustic neuromas). I had my left side's tumor debulked last summer, and went deaf. The first Surgeon said he kept the auditory nerve intact and that my face and hearing would be back to normal in 6 months. No such thing. He was so unfamilar with NF2. Anyways, now I'm being treated at Mayo in MN by a team that is well-acquainted with NF2, as it's very rare. I was told I was an excellent candidate for a CI, and the Med El specifically, because I wouldn't need remove it for MRIs, which I will be getting at least once a year for the rest of my life. I'm 36 by the way.

Anyways, I went in for activation yesterday, and nothing. Today we went 4 times the volume for each of the 11-12channels, and went 'live' and cranked it up t 120. I was told that people usually get sound at 15-30. Anyways, it's a failure. My nerve was too far gone. It's a big bummer, as I was really excited and pushing for this all spring, now I have all this stuff in my head with nothing to show for it.

Has anyone had one removed due to failure? The audiologist said the ENT(surgeon) probably would say keep it in, but I'm not fond of the implant disc above my ear...especially if it's not functioning.

When I have to deal with my other tumor, we'd most likely put an ABI in during tumor resection. I'm told when that happens, due to the nature of NF2 tumors, I would be left completely deaf, and I've accepted that someday I will be. Anyways, my main question is if anyone has had one removed...

Thanks in advance,
Mar
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My aunt's CI failed, she asked about having it removed...while they could do it it was considered elective at the time and the recovery would be similar to the original surgery...
I am curious if this one failed why go through with another surgery for the other side?
 
This surgery failed because her auditory nerve on that side was damaged by the tumour/surgery to get it out. She's intending to have an ABI on the other sound which bypasses the auditory nerve and is attached to the brain stem. It offers perception of sound rather than speech intelligibility.
 
appleeater said:
This surgery failed because her auditory nerve on that side was damaged by the tumour/surgery to get it out. She's intending to have an ABI on the other sound which bypasses the auditory nerve and is attached to the brain stem. It offers perception of sound rather than speech intelligibility.
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I will need either another craniotomy or radiation on both sides at some point. Whether it be surgery or radiation, I will be deaf in the other ear regardless. If my first surgeon knew anything about NF2, he would have put an ABI in during my first partial tumor resection (the one that made me deaf in that ear). So if I want to hear anything from my other ear, I would want some sort of implant put in. If I choose radiation, which I'm leaning against, I would be a good candidate for a CI. If it's surgery, I'd probably get an ABI. I meet with my ENT surgeon tomorrow at Mayo. I want to discuss the explantation of the CI. I have a Med El, which is compatible with 3 Tesla MRIs. I will need MRIs at the least annually for the rest of my life. The CI is bulky under my skin, and sits right under the arm of my glasses. I would like it out if it's not serving any purpose. The Med El audiologist yesterday, and she would veer towards taking it out. She said there are 7 Tesla MRIs being used in Europe, and technology is always improving. Given my NF2, a higher tesla than 3 could possibly be used in the future, and it would have to be taken out anyways. Also, she said the sooner the better because scar tissue would not be a big issue. If I had it later, the surgery would be harder because of all the scar tissue. I will get more answers tomorrow when I see my surgeon. Insurance is another issue I have to deal with.
 
I hope your insurance covers it. Do you think you'd go for the ABI? Would need MRIs after the second side was operated on?
 
appleeater said:
I hope your insurance covers it. Do you think you'd go for the ABI? Would need MRIs after the second side was operated on?
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I'll need MRIs at least once a year for the rest of my life due to neurofibromatosis type II. Yes, I would want an ABI, because as soon as they need to take the tumor out on the other side, he pretty much promised me he'd make me deaf. I wish I would have had this surgeon for my first craniotomy, one who knew about NF2, and would have put an ABI in during the procedure. Also one that didn't promise me my face and hearing would be back to normal in six months. Who promises that kind of stuff? My face is a lot better, but I cannot move my forehead and I have no muscle movement on that side of my mouth. Like I can't sip out of a straw on that side. I know it'll never be the same, but that's ok considering what it was like before.

These pics are from 2015FB_IMG_1448307968189.jpg
 
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