Dont u get tired of these comments?

shel90 said:
U know what just happened? One of the students asked another student who has a CI why he needs to sign if he can hear like hearing people. That student said he cant hear with his CI. So the teacher asked him what did he mean by that and he started crying saying that he cant hear like his parents. Oh boy..I guess the boy wanted to hear like his parents. That's why people need to understand that just because a child gets a CI , he is still deaf. Now, that makes me wonder..was he confused or the children confused thinking CI users are hearing and dont need sign? Another issue to think about, heh?

I forgot all about it until now. It was just interesting to see how kids react to each others' differences.
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I find that very sad, don't you? This is a bit off topic, but my son was very upset when I told him I wasn't deaf when he was 5. He thought I was deaf because I signed--it wasn't really an issue of hearing. Kids want to feel that connection though, and it can be very hard on them f they don't understand that a procedure will not make them hearing.
 
jillio said:
I find that very sad, don't you? This is a bit off topic, but my son was very upset when I told him I wasn't deaf when he was 5. He thought I was deaf because I signed--it wasn't really an issue of hearing. Kids want to feel that connection though, and it can be very hard on them f they don't understand that a procedure will not make them hearing.
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Well..apparently it seems like the myth has spread to the youngsters that CI makes people hearing like hearing born children. Some of the older kids ask the other kids why they go to a deaf school. Wonder how they got that idea. NOT FROM ME!!! :giggle:
 
Barbaro said:
Cochlear Implants is not for everyone. Some people with numerous of ear infections history cannot get cochlear implants. If they decide to go ahead and put cochlear implants in their ears, sooner or later, they are going to have another ear infections that can lead to major risks.
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I'm someone who had the opposite experience. As a person who has had progressive hearing loss since age 3, I've had ear infections from infancy into adulthood. After I received my CIs, my ear infections went away completely. I've had my first CI since December, 2004 and my second since February, 2006 and haven't had an ear infection since.

As for ear infections post CI surgery causing risks, can you cite an article which indicates this? I know many CI users who have had ear infections without any consequence to their CI or CI hearing.
 
Barbaro said:
I have my old ear and mouth Doctors' stories and several childhood friends from the past who had cochlear implants before. One of them suffered major infection from the implant itself because his ear rejected the implant. He was forced to have his implant removed and the infection finally disappeared. Another was allergic to antibiotics, so she cannot have her implants installed.

I merely mentioned again that cochlear implants is not for everyone. Do you understand what it means? It means some cannot have cochlear implants for medical reasons. Others whose ears are healthy that are qualified to have implants installed. Read carefully. It is not about you and others having no problem hearing. There is nothing wrong with cochlear implants. I only discussed it for medical reasons.

It is not just only about ear infection. The implant can lead to the all kinds of infections and medical problems. For instance, if you have knee replacement and your doctor places metals in your knee to alleviate pain, it will improve a lot, but it will never be 100%. Sooner or later, if it is bound to give away and causes problems such as not walking normal. I have a friend who broke her thigh bone from knee replacement due to her fall two years ago. People with cochlear implants can experience minor ear infections, but they will go away on its own as long as they take antibiotics and ear drops.
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A reasonable point! I can imagine that some people it is very problematical while for most it is not. I have heard that some people do react to metals on or in their bodies. Heck, I have even heard of people getting messed up by copper bracelets.

Edit update: Double take! It that you Hear Again?!? Welcome back!
 
oh I realize that CI's are not for everyone - that's something I've tried to get across on this board multiple times. I was just surprised because I HAVE had an ear infection in my implanted ear and it was cured with antibiotic ear drops.

And you are right - NOTHING is ever 100%, but sometimes the benefits you gain, even if its not 100% are worth it.

I'm so sorry to hear about your experiences with ear infections - I know from experience how painful they can be, and I hope that you don't have any more in the future.

Barbaro said:
I have my old ear and mouth Doctors' stories and several childhood friends from the past who had cochlear implants before. One of them suffered major infection from the implant itself because his ear rejected the implant. He was forced to have his implant removed and the infection finally disappeared. Another was allergic to antibiotics, so she cannot have her implants installed.

I merely mentioned again that cochlear implants is not for everyone. Do you understand what it means? It means some cannot have cochlear implants for medical reasons. Others whose ears are healthy that are qualified to have implants installed. Read carefully. It is not about you and others having no problem hearing. There is nothing wrong with cochlear implants. I only discussed it for medical reasons.

It is not just only about ear infection. The implant can lead to the all kinds of infections and medical problems. For instance, if you have knee replacement and your doctor places metals in your knee to alleviate pain, it will improve a lot, but it will never be 100%. Sooner or later, if it is bound to give away and causes problems such as not walking normal. I have a friend who broke her thigh bone from knee replacement due to her fall two years ago. People with cochlear implants can experience minor ear infections, but they will go away on its own as long as they take antibiotics and ear drops.

I have had severe/major ear infections that caused hearing loss during my childhood. Antibiotics didn't alleviate it. I had ear tubes for nearly two years and they were bleeding out a lot. In fact, I even have scars from the infections itself. Just bring your otoscope and take a peek at mine. I still get comments from audiologists and doctors for routine check-ups and they panicked out that I was gonna have infections again. Four years ago, I had severe infection and I couldn't walk straight. I kept losing balance all the time and kept hearing horrible rings from my ear. I was forced to lay on the bed for the whole week and it was one of my boredom moments.
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Thank you, neecy.

I recently have been diagnosed with severe TMJ (the jaw disorder) due to the old injury. I found out that it also causes temporary hearing loss due to the fluids that are inside the muscles of my jaw, neck and ear. I have to allievate the fluids first before I take hearing test again. I started having earache, headache, jaw pain and neck pain! I thought I was having another ear infection again. I had to make an appointment for my ear and throat doctor, so I was expecting another routine of antibiotics. But my doctor told me that my ear was completely healthy and It caught me by surprise. I've had gone to see three different doctors and a Oral/ Maxillofacial doctor. I had to take the MRI and x-ray to find out what caused the pain. My Oral/ Maxillofacial doctor told me that the left disk of my jaw is completely out of position and the right disk is compressing. She mentioned that I received an old injury when I was about 2-3 years old. I've been discussing it with my mother trying to find out how I got mysterious old injury. It can be anything like falling down and hit my head that causes the both disks to pop out of the positions. We'll never know how it did end up in the first place. TMJ is extremely common. According to one of my doctor, 60% of the U.S. population have TMJ.

sr171soars,

It is far more common than you'd think it is. It takes one day to years to develop the infections and diseases inside their bodies without their knowledge due to the hospital surgeries, heart artificials, knee replacements, implants, etc. Unfortunately, antibiotics are highly resistant to the infections. Hospitals use bacterial statid/cid cleaning agents all the time, also necessary, but this allow the bugs to mutate. In fact, the bacteria don't need to be inside the bodies to gain resistance to antibiotics and drugs. They're everywhere in our environment.

A friend of mine told me her brother-in-law had a heart artificial 10 years ago. Suddenly, he ended up in the ER and went seizure. Why? He had staph infection. The infection have had been developing inside his body since his last surgery. He wounded up in coma and three weeks later, he passed away. And my aunt have had kidney surgery, but staph infection got in. A year later, she went seizure and ended up in coma for two weeks fighting against the infection. Unfortunately, it affected her physically. She cannot drive again. Ever. She requires the care 24 hours a day everyday.

Hear Again,

Read my #20 post. Firstly, I was surprised your doctor who installed your implants didn't explain the risks of cochlear implants to you, didn't he? Doctors are required to explain the risks to their patients before the patients take the surgeries. I also thought people with cochlear implants already did research and the risks before they installed their cochlear implants. I'll post several medical sources for you.


Benefits / Risks (FDA is an official website)

FDA Public Health Notification: Continued Risk of Bacterial Meningitis in Children with Cochlear Implants with a Positioner Beyond Twenty-Four Months Post-Implantation (Official Public Health Notifications)

Cochlear Implants and the Risk of Meningitis - The Children's Hospital, Colorado (The Children's Hospital)

Bacterial Biofilm Formation on a Human Cochlear Implant (Southwestern Medical Center)

Threshold shift: effects of cochlear implantation on the risk of pneumococcal meningitis (NIH Public Access)

Infectious Diseases in Children (Infectious Diseases in Children) WARNING: Medical photos are too graphic.

Facts about MRSA (Association of Medical Microbiologists) this site is from UK.


I suggest you should do research and check out for medical sources. There are thousands of medical sources on this cochlear implants out there. Remember, cochlear implants are not for everyone.
 
Barbaro - the risks for infection with CIs are no more than for surgery in general. Studies on Pubmed indicate that the risk of infection with CI surgeries is around 2 - 4% - which isn't bad. But still, we are all informed about this risk by our surgeons and it's a risk we choose to take in return for the benefits.

I'm glad that you benefit from your aids. Many of us had our CI surgeries precisely because we could not benefit from them. In my case, I experienced a sudden increase in my hearing loss, which made wearing hearing aids a struggle and actually painful. CIs work differently to hearing aids so I could bypass the problem.

No one is saying that they are for everyone. Relax! We're not going to come by your house while you are asleep and do a CI surgery on you :)
 
shel90 said:
Well..apparently it seems like the myth has spread to the youngsters that CI makes people hearing like hearing born children. Some of the older kids ask the other kids why they go to a deaf school. Wonder how they got that idea. NOT FROM ME!!! :giggle:
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Gee, I wonder where that information comes from? Would that be considered a misrepresentation?:giggle:
 
LOL

Acutally, I am relaxed. I was only posting the sources for Hear Again because I was not sure if he was informed about the risks. Even though he was asking for a source.

Pubmed is one of the credible sources. I will add it to my bookmark. Thanks.
 
Barbaro said:
Hear Again,

Read my #20 post. Firstly, I was surprised your doctor who installed your implants didn't explain the risks of cochlear implants to you, didn't he? Doctors are required to explain the risks to their patients before the patients take the surgeries. I also thought people with cochlear implants already did research and the risks before they installed their cochlear implants. I'll post several medical sources for you.


Benefits / Risks (FDA is an official website)

FDA Public Health Notification: Continued Risk of Bacterial Meningitis in Children with Cochlear Implants with a Positioner Beyond Twenty-Four Months Post-Implantation (Official Public Health Notifications)

Cochlear Implants and the Risk of Meningitis - The Children's Hospital, Colorado (The Children's Hospital)

Bacterial Biofilm Formation on a Human Cochlear Implant (Southwestern Medical Center)

Threshold shift: effects of cochlear implantation on the risk of pneumococcal meningitis (NIH Public Access)

Infectious Diseases in Children (Infectious Diseases in Children) WARNING: Medical photos are too graphic.

Facts about MRSA (Association of Medical Microbiologists) this site is from UK.


I suggest you should do research and check out for medical sources. There are thousands of medical sources on this cochlear implants out there. Remember, cochlear implants are not for everyone.
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Thank you for providing those links.

Prior to receiving my CIs, I did 6 months worth of research to make sure getting a CI was the right decision for me. My surgeon and audi also warned me of the possible risks of surgery as well as the potential benefits. I can assure you that I went into the process fully aware of the pros and cons.

I respect the fact that CIs aren't for everyone. In fact, when a hearing aid user asks me whether or not they should consider a CI, I tell them I can't answer that question for them. They are the ones who have to make that decision for themselves. Having said that, I do encourage people with severe-profound or profound hearing loss to be evaluated for a CI if they are considering one since they are under no obligation to have surgery if they are deemed a CI candidate.

Thanks again for the links. :)
 
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