Does CI affect some nerves?

I've had the same sensation for years and years. It's gotten better, tho' and being an adult, I'm sure can deal with it better than children.
Never wore a HA and of course am rejecting the CI.....

So my guess it relates to the surgerys I've had...and perhaps to the CI surgery the children have....even perhaps the beginning of tennitis....

It's not only uncomfortable, the severity of it can escalate....I've gotten headaches from it, and could not concentrate...Even my friend told me once....you keep twitching ur eye...looks like you are "winking" at people....I sort of down-played it, saying my eye itches....but a lot of people actually "thought" I was winking at them.....
 
DeafCaroline said:
Squinting/twitching, looking very uncomfortable, all related to vision issues?
Click to expand...

I don't know -- are you saying you think all of those things are related to vision, not just squinting? I hadn't heard of that. I mentioned squinting - alone - as "perhaps" being an indicator of a vision issue: My daughter squinted a bit, just one eye, and was referred to a specialist to assess her vision. Elem. teachers are often told to watch for squinting in very young children, to flag those who might have as yet undiagnosed vision issues.
 
Yeah, I do have issues with my right eye but only when they get the computer to run through electrodes. It's to do with the current leaking so close to the nerve or something(if i remember correctly) so my sound levels cannot really be increased anymore due to this.
 
GrendelQ said:
I don't know -- are you saying you think all of those things are related to vision, not just squinting? I hadn't heard of that. I mentioned squinting - alone - as "perhaps" being an indicator of a vision issue: My daughter squinted a bit, just one eye, and was referred to a specialist to assess her vision. Elem. teachers are often told to watch for squinting in very young children, to flag those who might have as yet undiagnosed vision issues.
Click to expand...

You were responding to Shel90 who was responding to Frisky Feline talking about squinting and twitching and other odd behaviours so naturally, i extrapolated that you were talking about all of those things.
 
naisho said:
Perhaps it depends mainly on the surgeon, just thinking aloud. You have good surgeons and even ones who make mistakes.

One minor mistake and you get paralysis for life, it's a risk I think anyone has to sign the waiver when they agree to the surgery. It's probably controversial for operating on children because the size of their nerves are smaller than adults whom have it developed already, which may be why you see less complications in people who got it later in life. Don't know if this is the answer, just thinking aloud here. :dunno:
Click to expand...

Banjo said:
The surgery itself, there is always the risk of severing or damaging some nerves. There is one that I know of who suffered some nerve damages after receiving a cochlear implant. He lost the use of nearly his entire right arm.

A lot of different surgeries often list nerve damages as a potential complication.
Click to expand...

oh yes i had surgery and left me some numbs. if the doctor did one mistake and the whole thing is another story. :shock:

that is scary.
 
Lissa said:
Yeah, I do have issues with my right eye but only when they get the computer to run through electrodes. It's to do with the current leaking so close to the nerve or something(if i remember correctly) so my sound levels cannot really be increased anymore due to this.
Click to expand...

"Current leaking so close to the nerve".....:hmm:
 
Lissa said:
I can't remember exactly but along the lines. All patients and parents are told of the risks of being so close to the auditory nerve
Click to expand...

interesting. i will check with my hub to see if he remembers about it.
 
If I encountered twitching , I'd definitely think nerves were involved a d consider whether CI or ha settings could be an issue, esp. If I were someone who had surgery long ago before surgeons used monitors on facial nerves or had a new program. But if I were squinting or frowning or found a child making such expressions I wouldn't jump to that conclusion before checking vision.
 
Banjo said:
The surgery itself, there is always the risk of severing or damaging some nerves. There is one that I know of who suffered some nerve damages after receiving a cochlear implant. He lost the use of nearly his entire right arm.
.........
Click to expand...
It sounds as if they hit a nerve of the arm while implanting a CI..
What happened...?
 
If a child is experiencing twitching, etc. I would not rule out possible vision issues but would definitely have the map checked as soon as possible. There are some electrodes for my daughter that her audiologist carefully monitors her comfort and thresh hold levels.
Rick
 
or could it causes some nerves all over in head, and neck that twitching very slightly.
 
Frisky Feline said:
or could it causes some nerves all over in head, and neck that twitching very slightly.
Click to expand...


Never heard or read of that or know of anyone who had those symptoms. Usually it is an eye twitch but it is usually corrected through a map adjustment.
Rick
 
rick48 said:
Never heard or read of that or know of anyone who had those symptoms. Usually it is an eye twitch but it is usually corrected through a map adjustment.
Rick
Click to expand...

I was talking about the body language that shows some stange movement that my friends who are working with kids and notice how strange that they never saw before , not only one, about three or four of them that she wonders. So she asked me aboout it because she knows that my hub has a CI. I replied to her that my hub told me that there are full of numb all over his head and felt so strange like tickles in his head. That's how we start to discuss wondering what children behaves that reflects how or so. I can see that my hub is more careful than before when he got a CI which i am not comfortable with the idea but its his choice, not mine. She asked another two or three friends of ours who have CI since they were 10 yrs old. They tried to remember how did they feel when they were young and told her but one of them got screwed up with CI and was in really painful for the whole three years then she had another surgery and its better but cause more numb in her head and close to her neck.

but wonder about small kids once they get ci and then they become older i wonder how thier nerves are . Indeed, I am concerned about small kids head especially.
 
Cloggy said:
It sounds as if they hit a nerve of the arm while implanting a CI.. What happened...?
Click to expand...

Yes, a lawsuit was filed against the hospital. I don't have much details on what happened, from what I know, it was a result of the surgery itself. They severed a nerve that was linked to his right arm.

It happens.
 
I experience the face twitching and the eye twitching. It started immediately after surgery then after a month it went away and then started returning a year or so later. It doesn't happen often now, it seemed to be related to the volume. The funny thing is it has happened even at low volume but is resolved by reducing the volume. Usually I can crank it up and have no issues. Then suddenly I will have an issue with it again. Strange and not easily explained. I will have to bring this up with my CI dr next week.

Clearly if I am having migraines the volume needs to go down. I don't think my CI causes any of my migraines.
 
Banjo said:
Yes, a lawsuit was filed against the hospital. I don't have much details on what happened, from what I know, it was a result of the surgery itself. They severed a nerve that was linked to his right arm.

It happens.
Click to expand...
Any doctor that severs a nerve in an arm while performing a CI operation should be sued...
And please make his/her name public so that no-one goes near that man/woman.... for any surgery..

Very interesting case.

and.. "it happens"..??
there's a first for everything I guess.... Youngest grandmother is 23 years old I read somewhere....

it happens..
 
Cloggy said:
Any doctor that severs a nerve in an arm while performing a CI operation should be sued...
And please make his/her name public so that no-one goes near that man/woman.... for any surgery..

Very interesting case.
Click to expand...

Unfortunately, I don't have the name of the doctor. I think it may had been settled out of court.
 
Banjo is right....there is always a risk during surgery.

Twitching....well, from my own experience, during a routine tune-up, the audi had the volume on too high on my 3rd electrode, and it was so painful that my whole face cringed, but, that was a voluntary response, not an involuntary one. If there is a high-pitched sound present, and someone's eyes squint, then you know the map needs to be adjusted. I only know of one person that had abnormal optical activity...this person began having seizures and eyes rolling independently after having a CI...and all the problems went away after the CI was removed. The cause was never found.

My first CI surgery caused a nerve on my tongue to be associated with a nerve on my head. If I scratched my head, I also felt the scratching on my tongue. Weird. It finally went away after 3-4 years. I had no effects after the second CI surgery.

Bottom line is...everyone will have a different outcome with a CI.
 
Banjo said:
Unfortunately, I don't have the name of the doctor. I think it may had been settled out of court.
Click to expand...
That's a pitty.. That could mean this doctor is still in operation... (in both ways)


Well, there are plenty of nerves to hit in the arm...

Or on the way to the arm...
Nerves to the arm come out from the (Thoracic Spine/Mid Back/T1-T12) and go to the Arms, hands, heart, coronary arteries, esophagus, trachea, lungs, bronchial tubes, gallbladder, liver, stomach, pancreas, spleen, kidneys, ureters, adrenal glands, small intestines, and more.
Nerves to the middle ear etc come from (Upper Cervical Spine/Upper Neck/C1-C2) and go to Head, face, upper neck, inner & middle ear, sympathetic nerve system, sinuses, eyes, auditory nerves and more.

I guess... it happens..

He/she really didn't know what he/she was doing.. Most have been a good settlement...
 
Back
Top