Do you think she is autism?

Mommy, I would suggest an appointment at a good children's hospital for her to get evaluated. I do want to say, it might be worth it to ask for a lot of blood tests to see if she might have something treatable that the docs may have missed. Sometimes stuff they missed with infant screening can cause autism like symptoms. I thought that they found that a lot of autism is due to micochrondial dysfunction
 
By the way, there are forums like this for autism and parents of children with autism. I can't tell you where exactly you should go, except that I have yet to hear from anyone with an autism spectrum diagnosis, or any parent of anyone with an autism spectrum diagnosis, who feels like Autism Speaks has helped them. If you ever feel overwhelmed or confused, there are places to turn where you can ask for help from other parents in your situation, or from adults with the same condition your daughter has. I think that can be really helpful in dealing with any disability.
 
Well hearie you need to reread the OP. Her kid is deaf. That makes it different than hearing autism
 
deafbirk said:
Well hearie you need to reread the OP. Her kid is deaf. That makes it different than hearing autism
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Yes, it does, and that's why the OP should stay on AllDeaf and learn about deafness from people who experience it firsthand. I don't mean to imply the OP should leave here. But if the child is also autistic, then the parent might also find it useful to learn about autism. Just like the autism doesn't make the kid not deaf, deafness doesn't make the kid not autistic. If I were on an autism discussion forum (I'm not) and someone posted about an autistic kid who was also deaf, I'd suggest looking into a deaf forum as well as the autistic one.

(Unless I misunderstand, and you mean to say that the etiology of autism is different in dhh vs. hearing people. I have to admit that seems unlikely, but very interesting if true.)
 
The OP hasn't logged in for over a month.

According to her, they still don't have any official diagnosis other than her being deaf. Hopefully Monmy7x has been pursuing an evaluation for her daughter so she can get the support she needs to become a productive, happy, healthy person.
 
RandomHearie said:
Yes, it does, and that's why the OP should stay on AllDeaf and learn about deafness from people who experience it firsthand. I don't mean to imply the OP should leave here. But if the child is also autistic, then the parent might also find it useful to learn about autism. Just like the autism doesn't make the kid not deaf, deafness doesn't make the kid not autistic. If I were on an autism discussion forum (I'm not) and someone posted about an autistic kid who was also deaf, I'd suggest looking into a deaf forum as well as the autistic one.

(Unless I misunderstand, and you mean to say that the etiology of autism is different in dhh vs. hearing people. I have to admit that seems unlikely, but very interesting if true.)
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It is true and some deaf people have had the diagnosis when the symptoms were only due to deafness.
 
Hello, wow long time since I logged in, I just thought by share with anyone here, and yes, finally the autism specialist contacted me that she's done with evaluation with my daughter, she been visiting here and at school to see my daughter sometimes. She said yes she is, she's quality from education services with autism programs. They gonna to help me how to teach her different way, because she learn differently, and help me how to trick with her, help her a little better behavior and will provide her for help child to learn.

I posted on alldeaf, because I am deaf, and my kid are deaf. I think hearing and deaf autistic might be different. I don't know. because we use ASL, when I signs to her, she won't look at me. Don't want to learn anything much..But for hearing autistic kid, they might just able to hear from parents speak as teach them without make eyes contact? No idea, tho.

A teacher told me few weeks ago that my daughter got really UPSET when teacher's aide gave her coat to other girl by mistake. My daughter won't tell them why she was really upset. They couldn't figure out what's wrong, till finally found out that coat was hers. She's not express person.
 
mommy7x said:
Hello, wow long time since I logged in, I just thought by share with anyone here, and yes, finally the autism specialist contacted me that she's done with evaluation with my daughter, she been visiting here and at school to see my daughter sometimes. She said yes she is, she's quality from education services with autism programs. They gonna to help me how to teach her different way, because she learn differently, and help me how to trick with her, help her a little better behavior and will provide her for help child to learn.

I posted on alldeaf, because I am deaf, and my kid are deaf. I think hearing and deaf autistic might be different. I don't know. because we use ASL, when I signs to her, she won't look at me. Don't want to learn anything much..But for hearing autistic kid, they might just able to hear from parents speak as teach them without make eyes contact? No idea, tho.

A teacher told me few weeks ago that my daughter got really UPSET when teacher's aide gave her coat to other girl by mistake. My daughter won't tell them why she was really upset. They couldn't figure out what's wrong, till finally found out that coat was hers. She's not express person.
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It's good you got a firm diagnosis and can get services now . :)
 
Hi, I have years of experience of working with deaf children with autism. Everything Jolie has said or done is what I also do with the children I work with. It can be challenging for me teach them the content areas and the same time manage their behaviors/ short attention spans but I use strong behavior intervention programs designed by the behavior specialists to help me with them and yes, it takes time and consistency with a very structured schedule everyday. One time something unexpected came up during the workday and I had to change my routine for the day unexpectedly and that caused a major meltdown with some of the kids. I try to give them advance warnings for any changes in the daily routine but sometimes unexpected changes come up and I know it means having to work harder to ensure that the kids don't feel frustrated and have meltdowns.

All of Jolie`s suggestions will definitely help you. I have nothing to add at this time other than just be patience and have structured routines at home. Good luck with everything!

Kudos to you and the other parents out there who have autistic children.
 
Wow

Yes, it sounds like she is Autistic and also has behavior issues as well. All the things that you have described in your blog has a lot of red flags. I hope that you get the help that you need.
 
Once again I haven't been login in here for long time, and just saw someone posted on my blog. Now my daughter 3 half years old, she picked up more signs, finally and fully potty trained.. But still lacks a lot of danger, kept talking repeat all day everyday, it doesn't bother me, im glad I have a patience with her repeat stories..She have hard time to remember which colors and still kept forgot how to count 123, and mix up some animals signs sometimes..She changes who she is now, now she keep must touch people even strangers..punch, slap, pat, and poke at any people when she walk passing for no reason. Kept pinch me, slapped my back really hard for no reason when she walked by, and pinch/bites my son a lot for no reason too. I tried to stop her, it won't works but im not give up, tho. so they said she is a mild autism, hard for people to notice that she is autism till they gets to know her more, then they can tell that she is way different than most of normal kids. Now she have an aide with her all the times in class, I don't know how long she will have an aide. Still have eating problems, many meltdowns, hard to communication sometimes, she do understand what I am saying.

She is very funny girl, always doing silly things and very creative..People laughed a lot at her cuz she's doing stuff that they never thought of..Now bus driver told me she wouldn't stop unbelt, so they put a special lock that she can't unbelt it. ha! I still haven't go to parents class about autism kids yet, because it's conflict with my son's baseball games, when his season over, then my turn to have softball games with women team on same day as parents class. Dang, I guess I have to wait till August-Sept. It's hard to do myself and how to do with her..
 
As an adult on the Autism spectrum, I can relate to your daughter well. I am glad you got a diagnosis.
the "stimming" or repetitive movements of flapping her hands is common as well as several other traits you mentioned.

Hypersensitivity to stimuli is absolutely an autistic trait. the not wanting shoes, anything on her feet is one of them

mentioning she, like me loves to hug and be hugged. Its what we call deep body pressure. I love it and have to always have it.. I kicked Prozac after replacing it with my collars that I wear all the time ( also happen to the Siberian tiger Therian and a furry) hence how I discovered my collars. its very calming and comforting for me to have a constant pressure around my neck. I also have weighted blankets to sleep with, Tight fitting clothes help too... as a baby my parents had to strap me down in my crib or physically hold me down to get me to sleep. They actually make weighted tight fitting vests (for kids mostly) that have a similar effect. the tighter I am hugged, wrapped, strapped etc the more calm and relaxed I feel. ( there are also Autistics who are total opposite of this)
My suggestion is to try various things such as weighted blankets. when she has a meltdown (temper tantrum) try just wrapping or hugging her very tightly. see if you notice any improvement such as quicker calming, less severe meltdown or shorter time spans etc... You need to find what sensory method meets her need and then take advantage of that to help calm her.
Are you using Hearing Aids with your daughter? if so you might want to try skipping the HA for a while. I have Bilateral CI's and never use them because I figured out that I am hypersensitive to sound. especially sound that does not sound "normal" I had a progressive hearing loss so I know what sounds "natural or normal" and CI is not it.
self play as opposed to social play is also common, I never played with my sister who is 2 yrs older we would just fight. I spent countless days just playing Lego as a kid... We just don't have a need or want to be social esp as a child. we might develop one or two special friends but don't expect us to hang out with every kid in the class.
Language delay, late walking, potty training are also common to ASD. also realize the Autism is a spectrum and ranges from very low functioning to extremely intelligent but still socially awkward.

If she doesn't have any special interests she will develop them. (these are what interests us. We do these activities obsessively and can talk about them for ever and never get bored of the subject. though we will not notice or understand why others become bored when we are doing or discussing our special interests.:D on the flip side, Autistic kids will have zero patience for anything that is not of interest to them. (adults too but we have learned to fake it). so it will be in your best interest to find out what interests your daughter and support those interests.

MOST IMPORTANTLY, DON'T TRY AND FORCE YOUR DAUGHTER AND US IN GENERAL TO BE "NORMAL" OUR BRAINS ARE WIRED DIFFERENTLY AND WE FUNCTION AND INTERACT WITH OUR ENVIRONMENT A LITTLE DIFFERENTLY TOO. We are not second class citizens and we are NOT a fricken' puzzle we are People! Autism Speaks is like the AG Bell association of Autism. they want to cure something that is not ill and force us to be normal and hide our real selves to make NeuroTypical (NT or normal) people feel more comfortable. often using painful and oppressive methods.. You are Deaf, does this sound familiar? its should, Audists have been trying to do this to us Deaf for centuries!!! a much better group is Autistic Self Advocacy Network | Nothing About Us Without Us Autistic Self Advocacy Network: whose slogan should be a familiar concept to Deafies. " Nothing about us, without us!"
here is a great book that I recommend you order, its written to explain Autism and Asperger's to kids but really makes sense for any NT person who reads it. it will help your son understand his sister better. See how many of the pages match your experience with your daughter..
[ame="http://www.amazon.com/All-Cats-Have-Asperger-Syndrome/dp/1843104814/ref=sr_1_1?s=books&ie=UTF8&qid=1369145216&sr=1-1&keywords=all+cats+have+asperger+syndrome"]All Cats Have Asperger Syndrome: Kathy Hoopmann: 9781843104810: Amazon.com: Books[/ame]
Plus you will understand why I have a soul of a Tiger. So having Asperger's is totally normal for me. BTW I had got nickname "That'sCat" Around 10 yrs old from my scoutmaster. who knew how appropriate it was. But I also got it cuz of my behavior and personality.

Oh and you are thinking now.. Wow Southpaw, that is kind of personal and embarrassing to share on a public forum. the answer is No its not embarrassing if you are autistic. Yes it is personal, its about me and i know me very well, we don't really do embarrassed. we talk about facts, reason, science, our special interest because its who we are and what we know. Though I do embarrass my wife regularly by being so, well, by being ME! (the page in the book i mentioned above that talks about us embarrassing friends and family made my wife laugh more than any other in the book)

We learn to adapt and function in the NT world the same way Deaf learn to adapt and function in a Hearing world. Honestly it does not matter if, when you get a diagnosis formally. and often a formal diagnosis will not be given until after the child starts school and extensive social interaction with peers can be observed.

You are free to PM me and I would be happy to VP with you if you want to talk more...

Mew!
Soutthpaw:wave:
 
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My daughter is Downs but in autisic spectrum ,(Downs and autism not connected)If i turn my back for one moment she put pillow case on pillows,she no go to bed without at least ten pillows and i have found up to 30 pillow case on pillows...i have to lock and hide bedding when she home..
drives me nuts she sneak around when we asleep and puts every and any kind of coveing on pillows,she kick up real fuss if i no allow her to do it.
 
caz12 said:
My daughter is Downs but in autisic spectrum ,(Downs and autism not connected)If i turn my back for one moment she put pillow case on pillows,she no go to bed without at least ten pillows and i have found up to 30 pillow case on pillows...i have to lock and hide bedding when she home..
drives me nuts she sneak around when we asleep and puts every and any kind of coveing on pillows,she kick up real fuss if i no allow her to do it.
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:laugh2::laugh2: that's Autism for ya. is she happier and calmer when she has her 30 pillowcases?
 
CSign said:
Is she not in an educational placement and receiving services based on the fact that she is deaf? It seems like there are some very visible concerns going on
With her, and I'm surprised your local educational agency hasn't assessed her further.

I'd be very cautious using physical responses to her actions. I understand it's difficult, and some situations may seem impossible. With that said though, you should really consult a professional about positive behavioral intervention- or ways that you can respond without (inadvertently) encouraging more physical behavior. While flicking her in the nose may seem to help in the short term, I question it's effectiveness in the long term.

Does she have a current appointment and is on a wait list? I'd contact them
Every week until you can get her in. I would also contact your LEA, and let them know of your concerns. They can conduct other assessments as well.
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Behavioral interventions designed by NT's for NT children often do not work for Autisitc spectrum folks. I was a long term sub in a 1,2 grade elementary school for a semester. had a 6 year old Deaf Autistic kid. always physically violent, lots of meltdowns etc. after being my student for a semester he was a changed kid. his previous teacher who came with her class to the end of year party could not believe it was the same kid... but my interventions were 100% against what the NT's would do, I did not even know I had Asperger's at the time yet I could totally relate to this kid.
 
RandomHearie said:
By the way, there are forums like this for autism and parents of children with autism. I can't tell you where exactly you should go, except that I have yet to hear from anyone with an autism spectrum diagnosis, or any parent of anyone with an autism spectrum diagnosis, who feels like Autism Speaks has helped them. If you ever feel overwhelmed or confused, there are places to turn where you can ask for help from other parents in your situation, or from adults with the same condition your daughter has. I think that can be really helpful in dealing with any disability.
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Owned:naughty:.. Wrong Planet Forums this is probably the biggest and best ASD forum on the web and its made up largely of folks with Autism Spectrum Disorder like mew! Wrong Planet pretty much how many of us will describe how we feel.
 
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