Criteria for a CI candidate?

Our cochlea mature before we are born so that means we are listening while in the womb unless we get attacked by a gene or disease that make us deaf. Rubella for one.

Audition Promenade round Cochlea autour Cochlée oreille ear organ of Corti oreille ear CRIC Montpellier Remy Pujol U254

and
Audition Promenade round Cochlea autour Cochlée oreille ear organ of Corti oreille ear CRIC Montpellier Remy Pujol U254 (click "Development and plasticity" near the "Home" button at top center)

and this;
Audition Promenade round Cochlea autour Cochlée oreille ear organ of Corti oreille ear CRIC Montpellier Remy Pujol U254
 
I wouldn't implant a child with severe brain damage. I think that would be cruel. Particularly not an Autistic child as Autism generally makes you sound phobic. At least it does with me and I only suffer from mild asperger syndrome.

I have a nightmare sometimes when I turn into a cabbage and I get stuck with a CI. It scares me. If I had a stroke and lost all ability to communicate. How would anyone know how much I hate noise?
 
dreama said:
I wouldn't implant a child with severe brain damage. I think that would be cruel. Particularly not an Autistic child as Autism generally makes you sound phobic. At least it does with me and I only suffer from mild asperger syndrome.

I have a nightmare sometimes when I turn into a cabbage and I get stuck with a CI. It scares me. If I had a stroke and lost all ability to communicate. How would anyone know how much I hate noise?
Click to expand...

Well it is happening..and I have worked with children with autism and CIs. I wish I can say that they benefited from the CIs then again I only worked with two so far so I cant make a generalization..I really dont know what to say about this issue because my question is..are these children understanding what they are going thru when they get the surgery? Or maybe it is just like an infant, no traumatic memories? One girl that I know will get a CI surgery this summer and this girl was so excited but she didnt have an understanding of the concept of surgery. Finally, she was shown a video and pictures and she started freaking out and crying saying she doesnt want one. The mother has the final decision and that makes me very uncomfortable to see that. Will it benefit her or would she go thru all that for nothing? At this point, I am just closing my eyes to the whole thing cuz I dont want to get involved as it is between the parents and her.
 
Dreama, good point! A lot of kids with autism have sensory integration issues re: noise and sound. What would be the point of implanting them?
Cloggy, uber-early intervention just b/c "OH NO! They won't be able to hear for a year or so" is just basicly like "OH NO!!! They won't be able to get smarter with Baby Einstein!" ..................Early early intervention is relatively new. Until recently, even kids with severe and profound hearing losses, weren't identified til they were two or three! And many of them did OK, even without early exposure to sound.
I have to say........I am kind of ambigious about implanting someone who's so profoundly MR, that they are essentially in a PVS. Just profound MR, I'm OK with........It could help them a lot........and then there are cases where maybe a CI could let them have an outlet, so that they aren't as impaired as orgionally thought.
 
sr171soars said:
Er...it is more than one year as all hearing pre-born can hear in the womb. They already know their mother's and father's voices. That is an incredible thought that when an infant is born...they already know the two most important voices...
Click to expand...

When my daughter was born she was crying very loudly and when the nurses put her on the heat lamp table I said her name and she immediately became quiet, as my voice evidently was soothing to her.

When Drew was born he was not crying as much, but when the nurses put him on the heat lamp table I said his name and got no reaction. I thought it was a bit strange because my voice had such a clear effect on my daughter.

Of course, we later found out why Drew was not responding, he had never heard my voice in the womb, and was not hearing it then either.
 
deafdyke said:
Cloggy, uber-early intervention just b/c "OH NO! They won't be able to hear for a year or so" is just basicly like "OH NO!!! They won't be able to get smarter with Baby Einstein!" ..................Early early intervention is relatively new. Until recently, even kids with severe and profound hearing losses, weren't identified til they were two or three! And many of them did OK, even without early exposure to sound.
Click to expand...

If there is a evidence that many children "without early exposure to sound" did "OK", and there is even a suggestion that earlier exposure to sound may lead these children to do "great" or even "excellent", then I'm going to participate in early intervention activities and therapy.

If that means I buy the double-DVD, gold-plated, diamond-etched Baby Einstein collector's pack, then that's what I'll do. I'd rather have someone laugh in my face twenty years later that I wasted my money on Baby Einstein or an early intervention misinformation than try to explain that I didn't really know how much it would help, so I just didn't do it.
 
I don't mean to jump in here but even Autistic children can benefit. There is an Autistic child that has been implanted that goes to the same speech as Ashley and it has improved the child a lot. I was told that some of the characteristics are now not as bad as before being implanted. The child has opened up and is not as withdrawn. So the what's the point opinion I think is a little harsh. I know not all will benefit but if it helps just one or two I think that is great. This is just my opinion.
 
Drew's Dad said:
When my daughter was born she was crying very loudly and when the nurses put her on the heat lamp table I said her name and she immediately became quiet, as my voice evidently was soothing to her.

When Drew was born he was not crying as much, but when the nurses put him on the heat lamp table I said his name and got no reaction. I thought it was a bit strange because my voice had such a clear effect on my daughter.

Of course, we later found out why Drew was not responding, he had never heard my voice in the womb, and was not hearing it then either.
Click to expand...

Is that considered bad? My brother and I didn't hear anything either and we r both fine.
 
Autism covers a pretty wide spectrum, and many auties aren't overstimulated just by sound. And as far as judging whether an individual would benefit from sound based on whether or not they interact with you in a way that you expect (as opposed to seeming withdrawn, for instance), well, I think that judgment is being made from a very neurotypical perspective.

Anecdote: I have one autistic friend who finds loud noises somewhat distressing, and it irritates the heck out of him that this is the case. At the same time, though, he chooses to wear hearing aids, simply because they let him control how much sound he gets. (I think he has a mild hearing loss, so the aids give him a little bit of amplification, but most of it is filtering and compression.) He says communicating with speech is much harder for him without the aids, his audiogram notwithstanding, because there's just too much coming in without them.
 
I'm not saying that severely disabled/Autistic deaf people shouldn't have CI's because they won't benifit. That goes without saying. I think it's cruel to subject a child who has problems with sensory overload with more stimulus then they can cope with. In fact some hearing Autistic actually do well with earplugs.

How can people who are Neurotypical say that Autistics do ok with CI when I'm AS and even though I'm not severely affected by the problems some Autistic's face I think being a profoundly deaf and visually impaired Aspie means I have LESS problems because that's one and a half senses that I won't have to cope with. If I shut my eyes then that is 2 senses I don't have to cope with and it does help with concentration sometimes.
 
I didn't have any research to back me up just my opinion and knowledge of one child that showed benefit. I just thought it was a bit harsh to say why bother. I know it is a touchy subject. Not all who try ha or ci get benefit. My opinion is if it helps that is great. My daughters doctors decided to do one side at a time with her because of her many delays and health issues. They were going to do bilateral same day surgery until she did not progress as far as they would have liked her to. They wanted to make sure she would be a good candidate for bilateral by testing her with the one implant. I have been lucky she has blown us away with her progress so far. I just don't like the idea of giving up on any one child or adult based on medical or physical impairments. The sky is the limit for anyone if they have the love and support of family and friends. It is much harder to go it alone but it can be done too. My daughter will be who she wants and be able to accomplish anything she wants and I will be there cheering her on all the way. Sorry proud mom thing again.
 
dreama said:
I'm not saying that severely disabled/Autistic deaf people shouldn't have CI's because they won't benefit. That goes without saying. I think it's cruel to subject a child who has problems with sensory overload with more stimulus then they can cope with. In fact some hearing Autistic actually do well with earplugs.

How can people who are Neurotypical say that Autistics do ok with CI when I'm AS and even though I'm not severely affected by the problems some Autistic's face I think being a profoundly deaf and visually impaired Aspie means I have LESS problems because that's one and a half senses that I won't have to cope with. If I shut my eyes then that is 2 senses I don't have to cope with and it does help with concentration sometimes.
Click to expand...

I understand. I was just saying that that the comment "why bother" was a little harsh. I just wanted to throw my opinion into the conversation. I know what sensory overload does to a child. I have a preemie. She has LOTS of sensory issues. I am very sympathetic to anyone that has to endure multiple issues(for lack of a better word). I know how hard it is to try to make her life as trauma free as possible. Not calling anyone out at all. Sorry if it seemed that way.
 
dreama said:
I'm not saying that severely disabled/Autistic deaf people shouldn't have CI's because they won't benifit. That goes without saying. I think it's cruel to subject a child who has problems with sensory overload with more stimulus then they can cope with. In fact some hearing Autistic actually do well with earplugs.

How can people who are Neurotypical say that Autistics do ok with CI when I'm AS and even though I'm not severely affected by the problems some Autistic's face I think being a profoundly deaf and visually impaired Aspie means I have LESS problems because that's one and a half senses that I won't have to cope with. If I shut my eyes then that is 2 senses I don't have to cope with and it does help with concentration sometimes.
Click to expand...

I will take your word for it cuz u know what it is like as opposed to a specialist who has never experienced her/himself
 
dreama said:
How can people who are Neurotypical say that Autistics do ok with CI when I'm AS and even though I'm not severely affected by the problems some Autistic's face I think being a profoundly deaf and visually impaired Aspie means I have LESS problems because that's one and a half senses that I won't have to cope with. If I shut my eyes then that is 2 senses I don't have to cope with and it does help with concentration sometimes.
Click to expand...

Because although that's true for you, it's not true for everyone who is autistic.
 
Boult, no I meant VERY VERY early intervention. Like pre one year old. We did have EI, but it was more targeted towards toddlers. It wasn't til very recently that babies had EI.
Drewsdad, I'm not saying that REALLY early intervention isn't going to be helpful. I'm just saying that maybe it might be a little overrated or overkill. It does seem like a lot of very very early intervention is almost.........."Chicken Littleish" "Your child is a MONTH behind!..........THE SKY IS FALLING!!! Your kid needs as much early intervention as possible, otherwise they won't ever be able to acheive!"
 
deafdyke said:
Boult, no I meant VERY VERY early intervention. Like pre one year old. We did have EI, but it was more targeted towards toddlers. It wasn't til very recently that babies had EI.
Drewsdad, I'm not saying that REALLY early intervention isn't going to be helpful. I'm just saying that maybe it might be a little overrated or overkill. It does seem like a lot of very very early intervention is almost.........."Chicken Littleish" "Your child is a MONTH behind!..........THE SKY IS FALLING!!! Your kid needs as much early intervention as possible, otherwise they won't ever be able to acheive!"
Click to expand...
Hello!

Early Childhood Intervention - Wikipedia, the free encyclopedia

Early intervention begins from birth or first diagnosis, and continues until school age. It involves specialised education and therapy services for the child, as well as support for the whole family through information, advocacy, and emotional support.
Click to expand...
 
No, Boult! I was referring to your comment that we (older generation of "deaf kids") had early intervention. We did, but it was more "toddler EI" rather then VERY early intervention, from birth or as babies. I know that today EI starts almost instantaously........but infant EI for dhh kids was rare, problaly up til infant screening became common.........and infant screening hasn't been around all that long.
 
Back
Top