Cochlear & ASL for SSD in previously hearing 6 year old with no speech impairment?

kaybe2424

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First of all, I want to appologize if I phrase anything incorrectly (and if I do, please correct me)... We are relatively new to the deaf community, and I certainly don't want to insult anyone because I do not yet know proper terminology.

Moreover, here is my situation.... I have 6 year old twins. Nither of them showed signs of hearing impariment as babies or even young toddlers. As the learned to speak, they both had moderate speech impediments, but they seemed more cute at the time than anything. The older twin had already grown out of her speech problems, and now speaks extrememly well. The younger twin still speaks with an impediment, but had een tested for hearing impairment and can her perfectly in both ears.

The old twin however, had chronic ear infections as a baby in both ears, but had no hearing impairment until at least age 3. We had her tested at the age of 4, and the audiologist told us she was 80% deaf in her left ear. (this was roughly the same time she began to finally speak clearly (she still speaks clearly even with her hearing impairment). She was fitted for and received a hearing aid last summer, just as she turned 5 years old and started kindergarten. A few months later we went back to the audiologist to have her checked, just to make sure everything was going well, and they told us she is now 100% deaf in her left ear. She still has perfect hearing in her right ear. She no longer wears her hearing aid as it won't do her any good. The doctors think that a growth delay of the bone sin her ear is what caused the hearing loss. Basically the hammer wasn't growing as the correct pace, it was growing slower, and as she continued to grow, the hammer had less and less contact with the eardrum, until there was no contact at all, hence the hearing loss. Her ENT specialist that we see for her chronic ear infections and strept throat, and sinus colds discovered she had an enlarged left adenoid. It was removed this past May. Her chronic illnesses have gone from always-here to practically non-existent since she had the adenoid removed. And eventhough she hasn't been back for a hearing test, it seems she is VERY SLIGHTLY now able to hear out of her left ear again. But her Audiologist had suggested a BAHA implant (before the adenoid surgery). Our daughter is not currently in any special education classes, as she functions quite well, even with the single-sided deafness. I guess our questions are these.....

Since she speaks fine now, and still hears well in one ear, should we try to teach her ASL-- in case her hearing in her right ear deteriorates as well? We tried explaining it to her but she thought it was "weird" that people talk with their hands, and didn't have much interest in learning. Unfotunately, she has never even met another deaf person, so the concept is foreign to her. My other question is if she can hear out of one ear, does the BAHA seem a little extreme to put her through? And what are the long term effects... or are those even known?

Most of our close friends can't even tell she had a hearing problem. The only time we really notice it is when there is lots of background noise.... like a noisy restaurant, or when the music is on in the car... She'll yell for you to repeat yourself. Also, she is unable to directionalize where the sound is coming from. I can see this becoming an issue when she is crossing streets, etc....

I just want to get some feedback from those of you with first-hand experience. This is still really new to us, and we've never really been around anyone that is deaf for us to know what to expect. Thanks all and God Bless.
 
My daughter is unilaterally deaf. Even though she has normal speech, she still misses out on some information. ASL is a good way to support that gap.
 
Also her kindergarten teacher is noticing that she benefits from the.soundfield system, so you may want to consider having the school use one for yours.
 
My daughter is unilaterally deaf. Even though she has normal speech, she still misses out on some information. ASL is a good way to support that gap.

The BAHA was suggested to you before the adenoid removal when she had 100% loss. If she seems to slightly hear out of her left ear - then go back to the audiologist and get her levels determined again. It could be a hearing aid would do the job well enough considering she can hear fully well in her other ear. An implant is very costly and it involves surgery so explore all other options first.
 
Just curious, why does your ENT want to implant a BAHA instead of doing an ossiculoplasty?

Also, I'm not sure that his or her explanation of your daughter's reason for hearing loss sounds accurate.

Per this book , Essentials of Otolaryngology by Frank E. Lucente and Gady Har-El, and available for viewing at Google Books:

The ossicles are of adult size and position at birth. The ear drum or tympanic membrane is also of adult size at birth, but does not go into its final position until 2 years of age. (I couldn't do a cut and paste, so I summarized.)

If this is correct, than your ENT's explanation of why your daughter has a hearing loss probably isn't correct.

FWIW, ear infections can damage the middle ear and may be the cause of your daughter's hearing loss. Push comes to shove whether your daughter's hearing loss is a result of ossicles malformation or ear infections doesn't really matter. But FWIW, I would want to go with an ENT that gave me very accurate information.

This was the only source without a pay wall that I could find online that mentioned when the middle ear ossicles and ear drum reach adult size, but you may have better luck with the search engines than me. Also a librarian or medical librarian would probably be happy to help you research this or answer your questions also.
 
Hi Kaybe, I know they are pushing the BAHA a lot for unilateral deafness. I think it's very dependent on the kid. Try the BAHA on a softband and see how she likes it. Kids with unilateral loss can respond VERY well to the accomondations offered in your typical public school. You just gotta take advantage of them, like use of a soundfield, front row seating etc.
I think the key is....try the different things, and if she doesn't like them...drop it.Just like you would for a kid born hoh ..Oh, and as for meeting other hoh kids, that is important. Unfortunatly the trend has been towards "assimulating" kids with mild disabilties in the mainstream. The thought is that they don't "need" "special" things, and all they need is to be in the mainstream. :roll: Mild hoh kids may not need ASL or deaf ed....but it's always awesome meeting other kids like them. It might be hard to find other unilateral hoh kids in your area.
 
Our daughter's hearing loss was identified at birth, and she has since been bilaterally implanted, but we did choose to utilize manual communication. We were kind of in the same boat as you in that we expected our daughter to eventually function primarily in the spoken English world, but recognized that a secondary manual communication (ASL, SEE, or cued) would serve her equally well. We chose Signed Exact English (SEE) over ASL to try and preserve the syntax and structure of the spoken language we would be providing to her in therapy. The signs are similar, or the same in many instances, and you can add the linking words and varied suffix endings that you'll be emphasizing with spoken language.

We got the big yellow SEE dictionary, and just started signing the nouns and verbs that were important in her life. Now that she has hearing and is using spoken language, she continues to use the signs with us at home along with voice. I don't know that I would worry much about explaining the theory of why you're doing what you're doing- just do it. Kids get it.
 
It would be great for your twins to meet deaf children and learn ASL. SEE isn't a language so it is not recommended to use it for language development. It can be good as a teaching tool only. It wouldn't hurt if your twins meet other deaf children and meet Deaf adults. Many of us grew up not knowing about the Deaf community until later when we are adults. Most of us wish we had the opportunity as children to learn ASL and be invoved with the Deaf community. Good luck
 
I think it would be great for you to begin using sign language. If you guys begin to utilize it, it won't seem so "weird" and foreign to her. It would definitely be to her benefit, and you guys could come up with creative ways if learning how to sign that would make it fun.
 
I also agree that exposure to other children and adults who are DHH would be a healthy experience for her.
 
Our daughter's hearing loss was identified at birth, and she has since been bilaterally implanted, but we did choose to utilize manual communication. We were kind of in the same boat as you in that we expected our daughter to eventually function primarily in the spoken English world, but recognized that a secondary manual communication (ASL, SEE, or cued) would serve her equally well. We chose Signed Exact English (SEE) over ASL to try and preserve the syntax and structure of the spoken language we would be providing to her in therapy. The signs are similar, or the same in many instances, and you can add the linking words and varied suffix endings that you'll be emphasizing with spoken language.

We got the big yellow SEE dictionary, and just started signing the nouns and verbs that were important in her life. Now that she has hearing and is using spoken language, she continues to use the signs with us at home along with voice. I don't know that I would worry much about explaining the theory of
why you're doing what you're doing- just do it. Kids get it.

Just to clarify, SEE is Signing Exact English which is different from Signed English. SEE makes the English language visible in it's entirety, whereas Signed English only has about 12 of the markers of the English language.
 
On the other hand......we have to remember that this girl is postlingal. It does seem that postlingal kids are hit and miss with ASL and Deaf culture. Some of them love it, others aren't huge fans. But I do agree that an awesome idea would be finding other dhh kids....maybe looking into deaf ed as a possible supplement, especially for when she gets older.
 
Just to clarify, SEE is Signing Exact English which is different from Signed English. SEE makes the English language visible in it's entirety, whereas Signed English only has about 12 of the markers of the English language.

And completely ignores the natural manner of processing a signed language. Let's not forget that. It distorts both English and the signed language on which it is based, therefore, creating less than ideal models of either language.
 
Perhaps you could start off exposing her to ASL through Signing Time? Maybe she won't think it's so weird if she sees a bunch of other kids on TV using their hands to talk. It's not ASL grammar/syntax, but the signs are ASL. You should also expose her to sign other than that, though (like in your daily lives and stuff).

But I definitely think ASL would be good for her (and not just because I think it's good for everyone:D).
 
Haven't been on here in a while. Update, she has had 2 BAHA trials and has done amazing at both. We are questioning whether to put her through the surgery yet, as she is making amazing grades at school, and really enjoys a lot of extreme sport type activities (well, for an 8 year old).... skiing, white water rafting, gymnastics, and rock climbing. We don't want to limit her future (which is a possibility either route we go), but are considering letting her wait until she is old enough to decide for herself if she wants the surgery. Thoughts?
 
Haven't been on here in a while. Update, she has had 2 BAHA trials and has done amazing at both. We are questioning whether to put her through the surgery yet, as she is making amazing grades at school, and really enjoys a lot of extreme sport type activities (well, for an 8 year old).... skiing, white water rafting, gymnastics, and rock climbing. We don't want to limit her future (which is a possibility either route we go), but are considering letting her wait until she is old enough to decide for herself if she wants the surgery. Thoughts?

what kind of surgery are you speaking of?
 
Haven't been on here in a while. Update, she has had 2 BAHA trials and has done amazing at both. We are questioning whether to put her through the surgery yet, as she is making amazing grades at school, and really enjoys a lot of extreme sport type activities (well, for an 8 year old).... skiing, white water rafting, gymnastics, and rock climbing. We don't want to limit her future (which is a possibility either route we go), but are considering letting her wait until she is old enough to decide for herself if she wants the surgery. Thoughts?
Let her decide...She's old enough to have a say in the matter!
 
Does she use her softband or is it a hassle? Does she prefer it. I wish I had them as a child. My daughter trialed one and since asks how soon she can get it done. If she didn't ask I wouldn't consider it, however it is a personal decision based on preferences. Just my opinion and only my opinion
 
gymnastics, extreme sports, white water rafting....with CI really?
 
gymnastics, extreme sports, white water rafting....with CI really?

I am under the impression she is mainstreamed.... if this is the case.... being singled or, not communicating well in noisy school, frustrated during teacher lectures without aides, really???? ( and I base this on my daughters complaints)

Just my opinion and only my opinion....
 
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