Baby at center of life support case dies

robier said:
I had a sister with Thanatophoric Dwarfism/Dysplasia. It is cruel to keep these children alive. They are in constant pain and they have no hope of ever having a life that does not include insurmountable pain. There are a few cases where children have lived more than about 2 hours after birth, but as I said with great amounts of pain and they can never have a normal or even comfortable life. It is impossible for a child's lungs to develop as their rib cage is fused. When we breathe, the cartilage between our lungs allows our rib cage to expand. These children have no cartilage and their rib cage cannot expand as a result. Because of this, even if the lungs did develop some, it would be impossible for the child to be off of life support. They also are missing 4 main bones in their bodies. The Femur and Humorus are not existant in most children with Thanatophoric Dwarfism/Dysplasia.

The comment by someone about knowing a child with Thanatophoric Dwarfism/Dysplasia was obviously made my someone who is confused. It is impossible for a child with this condition to walk, live apart from life support, play football, run, or even appear normal as the person stated.

I am all for protecting the parent's rights to choose for their children, but when a parent prolongs terrible pain for a child who has no hope of ever living without life support, will be brain dead, and will die within a few weeks even on life support I have to agree with the doctors and the hospital and do the huminitarian thing and end the child's suffering. Terry Shivo was not aware of her suffering because she was brain dead. These children can feel until their brain eventually does die and it is torture to put them through that.

Feel free to keep posting about politics, but that is so far from the issue in this article. When this disease is involved there really are not a lot of options.
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I am sorry you lost your sister to this terrible disease. I agree with u she should not have suffer longer. Thank you for educate us about this condition. I never heard of this before.
 
I couldn't help noticing even the very name of this disease means that it's lethal. "Thanatos" is the classical Greek word for "death" and the rest of the word looks like a modification into an adjective. The very name is "lethal dwarfism".
 
I agree with you. Parents should learn to accept the facts.

If my kid suffered like that, I would pull the plug on him instead of keeping him hooked up to the machine while suffering.
 
I have to say I am surprize that the child was no allready brain dead putting a baby on life support is not a samll task the child was most likly on bypass and in an infent in has more then a 50% chance of causeing a brain bleed, resperators also casue problems for small children. I have seen this form of Dwarfism and now child desrves to be put thro the suffering of that for even a few minuets If i was pregnet and found out that this wouldbe the fate for my child i would have an abortion to save him/her that pain becaue the child would not be able to live and should be allowed to continue peacefully on to it's next life. this woman obviously nead to seek some pyhcologicl help she does not belive in sickness or death?? what about mercy killings? save the child some pain meny froms Dwarfism are un treetable I know not all but if a child can never be off a resperator and never be out of constant pain you have to let them go. the hospitle did not give up on this child thay did the damedest to let him have a better death.
 
I see that some people are missing the point, since when does the government has the right to control our lives? Who is the one that gave birth? the mother, that is the only person that has a choice on her own child's fate when the child is on life support not the government not the state of Texas not the judge or anyone all that matter.

When we have children on our own, we should make that choice and we should have that right. It makes me ill to my stomach that other parties get in your personal life and take something from you, a human being and put that human being to death! It doesn't matter how you look at it, Since when we are allowing to kill people?
 
Just watching a DVD about JohnQ, it is heartwretching decision, because his only child - a son with a bad heart and need heart transplant, but he is jobless, and the professor surgeon Doctor recommend him to take his son home to die peacefully, He asked Dr what would he do if he has same illness as his son, he said "open-heart transplant surgeon no question". He want to operation his son but the cunning surgeon trying to talk him out of it because he is poor and not well-covered with full health insurance etc.

Money $$$$ is the issue!!
 
robier said:
I had a sister with Thanatophoric Dwarfism/Dysplasia.
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First of all I'm very sorry to hear about your sister. :(

It is cruel to keep these children alive. They are in constant pain and they have no hope of ever having a life that does not include insurmountable pain. There are a few cases where children have lived more than about 2 hours after birth, but as I said with great amounts of pain and they can never have a normal or even comfortable life. It is impossible for a child's lungs to develop as their rib cage is fused. When we breathe, the cartilage between our lungs allows our rib cage to expand. These children have no cartilage and their rib cage cannot expand as a result. Because of this, even if the lungs did develop some, it would be impossible for the child to be off of life support. They also are missing 4 main bones in their bodies. The Femur and Humorus are not existant in most children with Thanatophoric Dwarfism/Dysplasia.
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:confused: we have 13 years old Dwarfism boy named Roman who live 3 minutes away from my house like what I said in my previous post. Of course I saw him EVERYDAY because my boys are befriend with him. He's very happy child and popular with everyone. He has a good talent. He goes same classroom as Danny.

The comment by someone about knowing a child with Thanatophoric Dwarfism/Dysplasia was obviously made my someone who is confused. It is impossible for a child with this condition to walk, live apart from life support, play football, run, or even appear normal as the person stated.

I am all for protecting the parent's rights to choose for their children, but when a parent prolongs terrible pain for a child who has no hope of ever living without life support, will be brain dead, and will die within a few weeks even on life support I have to agree with the doctors and the hospital and do the huminitarian thing and end the child's suffering. Terry Shivo was not aware of her suffering because she was brain dead. These children can feel until their brain eventually does die and it is torture to put them through that.

Feel free to keep posting about politics, but that is so far from the issue in this article. When this disease is involved there really are not a lot of options.
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Not true, Dwarfisms CAN do with sports... they run real fast... they can ride the bikes... they can talk, laugh and play... good with computer games... They can do everything like normal people but... but... but... I was total surprised after learned from Danny during meal conversation that Roman have to quit to play scooer this year due small body organ (heart) after many years play scooer since he was 6 years old... small field for children scooer is okay but large field is not okay for young dwarfisms (young adult). Roman doing well but big scooer is too much for his small heart... I only tell you what I know in REAL LIFE... Roman and his family live in same village where we live - we saw him EVERYDAY... My children went same school as Roman...
 
Liebling, there are different forms of dwarfism that don't cause the same problems as this particular form we're discussing, which is lethal.
 
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