If you have time, id love to chat to you on instant messenger. Ill check your blog, check mine. Last time you said you were choosing to get a CI in the dead ear and saving your good ear for stem cells. Im not a fan of CI at this point, but for those who want CI, it's their choice. Stem cells is my choice and im saving both ears. What did your new insurance say about CI by the way? Did they approve and if not, what is their reason?
Have you been in touch with Nepsis? I might get my stem cells done at that lab soon. Where you live, it would be a short trip! Ill have to fly to San Diego, but that's much cheaper than flying half way around the world. Ive been in touch with Nepsis and they can treat me with cord blood stem cells by IV in my arm. When do you plan to get stem cells in your good ear? What are your plans for your dead ear if insurance approves CI? Ive been told you won't be able to benefit from stem cells after getting CI, not for 20+ years anyhow. They would have to regrow the cochlea.
You have no evidence for this. Even I don't know how long the improvement will last. I have a stable, non-progressive HL so this greatly improves my chances of a long term improvement.
I will ask around as to the db improvement, but we know Chloe is able to hear without HAs, even in her worse ear that is at 50% of normal. So we know that stem cells has far more potental than any CI. No CI can make you hearing after all! Stem cells could make me partially or even fully hearing! It would not take much of an improvement for my hearing to be too good for CI. A 50th percentile improvement with stem cells could be comparable to someone in the 99th percentile with CI.
I was aided to 35db from 100db HL in 1998(compare to 30db with CI) and I understood alot of speech and heard almost every environmental sound, including high pitches. A 10db improvement with stem cells will give me the hearing I had years ago, a 30db improvement will give me better hearing than CI across the board. I have threads showing CI being comparable to HAs with a severe hearing loss. Ive seen the speech discrimination scores of people with different degrees of hearing loss and compared that to CI. Ill post about this. The stem cell labs say I can repeat the stem cell treatment for additional improvements, it will just add up.
It's plain silly to get CI(unless you are against stem cells and never want stem cells ever) when so much better is available now. CI's obsolence has begun and I don't see CI being around or supported within a decade. CI was the best thing for many years. Chloe could have gotten CI but chose stem cells instead and now she can hear without HAs! Why would anyone not want that? Youll understand more about this in my blog Q and A, feel free to ask more ?s here or in my blog.
Stem cells *is* a cure for Chloe. I am just expecting stem cells to get my hearing loss improved to moderate-severe levels and hear way better than CI. I don't know if ill get to 0db with HAs. I asked about this in another forum and the concensus was that 0db was impossible. One reason could be the internal circuit noise. Oh well, the gains will be maxed out and ill accept 5db or 10db or whatever. Beats 30db as the 50th percentile with CI anyday.
The same reason CI has worked for those group of people.
Those 3rd world countries are way ahead of America in stem cell technology. This tells me alot. The stem cell centers are located in the "rich" part of that country. Ive seen pictures of that part, it looks first world, not all of the country is 3rd world. I understand there will be some degree of risk, this is why I am researching around, asking questions and emailing stem cell centers. I am going into this with my eyes wide open and my brain filled with knowlege on what to expect.
http://www.alldeaf.com/hearing-aids-cochlear-implants/69092-degrees-hearing-loss-speech-scores-3.html#post1468364
This post will give us a good idea of what to expect regarding speech performance. beethovensears' with no residual hearing above 1000Hz is already doing better than average CI. Ill post more examples in the speech thread. I have also shown evidence it takes a 75-80db HL with proper HAs to match the average CI. This means a 30db improvement to my hearing would give me better hearing than the average CI. We have seen how much Chloe has improved, but it does not guarantee ill improve as much. Ive read around that average improvement is 20db per stem cell treatment season using cord blood SC. Two seasons of treatments would give me far better odds than any CI out there. Ill find out more on the extent of improvement from the stem cell labs and post it here.
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