A deaf girl aged 7 dies by cochlear implant.

rockdrummer said:
My bad.. I thought you knew my story. It's around here somewhere in a thread.
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I probably did read that quite awhile back, and it just slipped my mind. I'm getting older, you know! Short term memory is the first to go!:giggle:
 
I don't think anyone gets what I said.

There is NO proof that a vaccine would have prevented her death as some deaf kids have died even with the vaccines. It may work better for people who have normal ears. They haven't done studies on deaf kids with malformed cochleas.

So, you cannot get upset at the doctor for not providing the vaccine. She may have died even with the vaccine. There is no "what ifs" - she died unexpectedly. That's the end. There's nothing we can do. We cannot determine if the vaccine would have saved her.
 
netrox said:
I don't think anyone gets what I said.

There is NO proof that a vaccine would have prevented her death as some deaf kids have died even with the vaccines. It may work better for people who have normal ears. They haven't done studies on deaf kids with malformed cochleas.

So, you cannot get upset at the doctor for not providing the vaccine. She may have died even with the vaccine. There is no "what ifs" - she died unexpectedly. That's the end. There's nothing we can do. We cannot determine if the vaccine would have saved her.
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We get what you said. But the fact of the matter is, that the doctor was negligent in not insuring that this child was vaccinated prior to surgery, just as he would have been negligent in allowingthe surgical field to become contaminated.
 
jillio said:
How about a general physician? All people in the medical community are not biased. However, all those who are on an implant team are naturally biased.
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I've found that I know more about CIs than most doctors. If a doctor isn't a specialist in a field, he may know some basics about most things, but that's about it. I always have to explain the CI and how it works when we see a new doctor...
 
MomToDeafChild said:
I've found that I know more about CIs than most doctors. If a doctor isn't a specialist in a field, he may know some basics about most things, but that's about it. I always have to explain the CI and how it works when we see a new doctor...
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There are unbiased physicians out there who are able to give an informed and qualified opinion.
 
Too bad they're hard to find, Jillo. Some doctors don't like to admit they don't know something so they'll buff their way through. Others will not listen to others.

One of my doctors was like that. I have thyroid disease and one doctor refused to believe me when i told her my thyroid didn't cause my deafness and that I was born deaf due to Rubella. I was dx'd with thyroid disease when I was 19. I didn't see her again. :P She said no no no, my thyroid caused my deafness. I should have asked her why I'm not MR if that were true?
 
deafskeptic said:
Too bad they're hard to find, Jillo. Some doctors don't like to admit they don't know something so they'll buff their way through. Others will not listen to others.

One of my doctors was like that. I have thyroid disease and one doctor refused to believe me when i told her my thyroid didn't cause my deafness and that I was born deaf due to Rubella. I was dx'd with thyroid disease when I was 19. I didn't see her again. :P She said no no no, my thyroid caused my deafness. I should have asked her why I'm not MR if that were true?
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You are too right on this one: they are hard to find. And she made her dx without any blood tests checking for congenital exposure to Rubella I assuming? And yes, you should have asked her that just to see how she wouldhave backed herself out of that corner! I have no patience for physicians such as this. It has been my experience that neurologists have a much better understanding of deafness than most other sub fields.
 
Nope, no tests were done. Doctor just flat out thought my thyroid caused my deafness. I didn't know about those tests at the time.
 
deafskeptic said:
Nope, no tests were done. Doctor just flat out thought my thyroid caused my deafness. I didn't know about those tests at the time.
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I finds it frustrating, at the least, that the public is subjected to such incompetency. And that is an excellent illustration that one should not put too much faith in any one "expert".
 
jillio said:
I finds it frustrating, at the least, that the public is subjected to such incompetency. And that is an excellent illustration that one should not put too much faith in any one "expert".
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Indeed! There are imbeciles in any field. I've seen too many myself in IT. The question I ask more frequently these days...is how do these people get past the censors? The same way they make it in my field <shudders>.
 
There is a fairly common genetic disorder called Pendred's Syndrome which features a combination thyroid issues and sensorineural hearing loss. Boystown lists it in the top five sources of profound SNHL. Have you been checked for that? I don't think it is the thyroid that *causes* the HL, just that the two are associated. Course I'm not the doctor at our clinic . . .

Sheri
deafskeptic said:
Nope, no tests were done. Doctor just flat out thought my thyroid caused my deafness. I didn't know about those tests at the time.
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jillio said:
I finds it frustrating, at the least, that the public is subjected to such incompetency. And that is an excellent illustration that one should not put too much faith in any one "expert".
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AMEN AMEN AMEN Jillo!!

I've always thought my father put too much faith in the experts. I love my audiologist but she's no expert on what it's like to live as a deaf person. I remember my father thinking you should be able to the find the high power batteries in drug stores because my audiologist said so. I was a bit more skeptical since the batteries were mainly used by cochlear implantees and given that there are only about 100,000 world wide and about 50k (I think) implantees in the USA vs 28 million hearing aid users, I thought it highly unlikely that I'd find those batteries in a drug store in Amherst. We had to order them From Microbatteries.

Another good example is my problems with my DVD. It was poorly designed and I never could properly install the battery pack in as it kept falling out. My father was like I didn't understand the instructions and that either my brother who is a computer programmer or my nephew (a computer science major) should be able to help me with it. I find this agurment as absurd as the idea you need to be an expert on car mechanics to in order to drive a car. I returned my old DVD and I have a new one now and I think its much better than my old DVD. I'm not shopping with my parents again. :P
 
LTHFAdvocate said:
There is a fairly common genetic disorder called Pendred's Syndrome which features a combination thyroid issues and sensorineural hearing loss. Boystown lists it in the top five sources of profound SNHL. Have you been checked for that? I don't think it is the thyroid that *causes* the HL, just that the two are associated. Course I'm not the doctor at our clinic . . .

Sheri
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I have. I don't have Pendred's Syndrome. There is a history of thyroid disease in my family and it seems to affect mostly the females in my family.
 
I believe there is law that infant/toodler/kid must have vaccine otherwise they will be taken by Social Service away from thier parnets. To be honset with you, I had this bad headaches and my head was like pounding, aderline rush, brain swell up, and hardly to sleep in my own bed for all day. I told my wife if this keep going like that for next day Im goin to hospital but I feel fine and dandy thank god for that. I think it is just came from my ear infection not cochlear implant. I feel sorry for this little innocent soul what killed her. I believe children shouldn't be getting implanted until children have grew up and make decision by themself not by parnets.
 
zer0 said:
I believe there is law that infant/toodler/kid must have vaccine otherwise they will be taken by Social Service away from thier parnets. To be honset with you, I had this bad headaches and my head was like pounding, aderline rush, brain swell up, and hardly to sleep in my own bed for all day. I told my wife if this keep going like that for next day Im goin to hospital but I feel fine and dandy thank god for that. I think it is just came from my ear infection not cochlear implant. I feel sorry for this little innocent soul what killed her. I believe children shouldn't be getting implanted until children have grew up and make decision by themself not by parnets.
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Unfortunately, the meningitis vaccine is not madatory like the DPT and Rubella vaccines. I am glad your illness didn't turn out to be anything serious!
 
MomToDeafChild said:
I've found that I know more about CIs than most doctors. If a doctor isn't a specialist in a field, he may know some basics about most things, but that's about it. I always have to explain the CI and how it works when we see a new doctor...
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That is very true. I just went for my physical at my primary doctors office for the surgery. I end up getting this doctor who is just a member of the practice. He said, "Cochlear implant, is that some sort of experiment?"

Perfect example.
 
I'm sorry to hear that young girl who has mengntis. I have cochlear implant. I'm 31 years old. I had my first cochlear implant at aged 24 years.
 
ask

disease had any shot German measles , Chicken pox , cough , allergy , rubber , any body widespread disease history or your family history ? your first born or ahead your age 5 years old start school record that risk Child attend doctor office I don't know ?
:dunno2:
 
This absolutely has nothing to do with the CI. It is pretty much the mother's fault for forgetting her own daughter treated...totally careless.
 
You can't even get your dog groomed without up-dated shot records. The groomer won't touch them until all shots are up to date. They check on it all the time. I think if a patient does not do their prep work done doctor should refuse surgery.
 
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