Trauma and Discovery of Deafness

shel90

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Trauma and discovery
I grew up believing, deep down, I was not deaf because I had no context and no reference point for it. I could pass as a hearing person, I appeared to be 'fine'. With this, I came to believe there must be other reasons for my inability to express myself freely and for such social isolation. I internalized this in many ways. It is eye opening to read:

"many deaf children experience trauma due to communicative isolation. Evidence for this can be drawn from the clinical experience of Harvey (1996), who observes that his adult deaf clients report childhood-based post-trauma responses triggered by more recent communication situations. Following a particularly difficult communicative interaction, deaf clients may report a number of common trauma responses identified in the Diagnostic and Statistical Manual IV. During communication situations with hearing people in adulthood, deaf individuals will re-experience:

-the feelings of isolation and being misunderstood they had as children
-thoughts of being socially isolated or actually withdrawing from contact with hearing persons in order to avoid stimuli associated with the trauma of communicative isolation.
-hyperarousal and hypervigilance as they become aware of the inadequacy of their communication, resulting in reactions that may be overly assertive or resigned and passive." (p32)

Redefining this as trauma really helps me to understand the swift agony I experience and the rapid resignation and withdrawal that I go into when I perceive myself being left out. I will remind myself of how minor that particular situation was or maybe how I don't even especially WANT those particular individuals to include me, but regardless I am flooded, stricken, churning internally. I feel acutely aware of how long my silence lasts, how much other people are talking and relating while I watch helplessly.

This is my internal experience. Outwardly, I appear ok. I appear poised perhaps. I have a ready smile if we make eye contact.

Often, addressing the current situation would not be helpful because it is so out of proportion. I am re-experiencing old scenarios, the original hurt unchanged and compounded even more so hundreds upon hundreds of times as the situation happens again and again. The pattern and lesson of my life.

I once fully believed I would be permanently liberated from this, in the right place, the right time, with the right people. Now I realize that it goes hand in hand with having hearing loss in a hearing world. Some situations are very comfortable and I feel like myself, other situations are very isolating and I feel like an invisible outsider. This will never change.

I can only choose to change my response, somehow break the locked up, shut down, resigned, self-derisive place I go to whenever I feel left out. This has its roots in childhood, to attending school and daily exposure to impossible social situations outside of my control. My reactivity has become so automatic that along with feeling left out I have a host of associations that follow instantaneously. Convictions and beliefs about my self that swiftly punch holes into my confidence, self-esteem, and connection with others. Rigid self-protective defenses isolate me more so as I become quiet and my true self disappears.

Now I understand what is going on. I realize that I am having psychological and physiological response to what is, for me, a very vulnerable and traumatizing experience because it has happened so frequently at crucial, self-defining times in my life. I can continue to retreat to my mute, outsider status, or I can speak up. "This is not who I am right now. I am trapped. I need your help in order to be included, for my real self to come back."

National Child Traumatic Stress Network (2006). White paper on addressing the trauma treatment needs of children who are deaf or hard of hearing and the hearing children of deaf parents. Revised. Los Angeles, Calif., and Durham, NC: National Child Traumatic Stress Network, 2006, www.NCTSN.org.



The Eighth Nerve: Trauma and discovery


When I read this, it was like reading about myself and how I react when I am put in a non signing environment now. This is very interesting and this is something that hearing parents who decide to put their deaf children in an oral-only environment need to be aware of. This is not an attack on their decisions but a very important FYI to keep in mind.
 
This is exactly how I have been feeling this past week. Internal struggles with myself and wondering where the heck do I fit in, do I even fit in at all? This is especially hard since I have a hearing loss and living in a hearing environment at home, at work, and at church.

Just last week it was particularly one of those days I was being a bit over assertive. When I realize I have been 'too much' for some people, I shut down, quiet myself down, and go to that dark place of retreat telling myself I am a screw up and I have come across as a bitch yet again even though that was not my intent.

Other days I am quiet shy and reserved because I am afraid that I will make a fool of myself if I dare speak. People might perceive this as snobbiness but it is not.

The other day at work I was having a particularly hard day articulating my words clearly and I'll be damned if I sounded like a retard, so I just quietened down and went into my reserved mood for a while.

Maybe it is time I finally just come right out with people and say hey this is what is up and I apologize if I came off as rude, bitchy, and whatnot. I try to control it but some days I cannot.

There are times I think there is something wrong with me, but I do what I can to keep and even keel.

Thank you for sharing this Shel. :ty:
 
This is a great post, shel! I deal with these issues on a dialy basis in counseling. And so many parents do not realize that all of this is going on inside their child, even though they appear to be functioning fine. It takes its toll, however, and eventually has to be dealt with. Then these same parents say, "I had no idea it was that tough for you!"
 
I've experienced some of those feelings before - not so much with deafness but more with infertility and multiple miscarriages. You feel so hypervilligent and very alone, feeling that no one understands what it is like. And because of that you have to put on a front of coping (that smile).

Fortunately I went and got some counselling which helped. I think feelings like that are common to the human experience and the more and more people I meet, the more I realise that although we have different experiences, I'm not the only one with those feelings. Among my hearing friends for example experiences of child sex abuse has lead them to having nervous breakdowns and not feeling that they are like other people. They cannot form long lasting relationships. Another friend of mine has been struck down with MS, which she has found devastating.
 
I've experienced some of those feelings before - not so much with deafness but more with infertility and multiple miscarriages. You feel so hypervilligent and very alone, feeling that no one understands what it is like. And because of that you have to put on a front of coping (that smile).

Fortunately I went and got some counselling which helped. I think feelings like that are common to the human experience and the more and more people I meet, the more I realise that although we have different experiences, I'm not the only one with those feelings. Among my hearing friends for example experiences of child sex abuse has lead them to having nervous breakdowns and not feeling that they are like other people. They cannot form long lasting relationships. Another friend of mine has been struck down with MS, which she has found devastating.

**nodding agreement**
 
Interesting!

I remember the internal battles over the years. Quite frustrating to say the least. Truth be told, I nearly lost my sanity over what I wanted to achieve compared to what reality indicated otherwise. I do remember when I reached an equilibrium somewhere in my twenties where it didn't bother me anymore. I just accepted who and what I was in a hearing world that didn't quite understand. I would find my niche where I could just be myself and others who accepted that as well. Since I gotten my CI, it really went into hibernation which has been a real blessing. I'm not saying I'm hearing "per se" because of my CI but rather that I can live with minor issues and it has become a moot point for me.
 
Interesting!

I remember the internal battles over the years. Quite frustrating to say the least. Truth be told, I nearly lost my sanity over what I wanted to achieve compared to what reality indicated otherwise. I do remember when I reached an equilibrium somewhere in my twenties where it didn't bother me anymore. I just accepted who and what I was in a hearing world that didn't quite understand. I would find my niche where I could just be myself and others who accepted that as well. Since I gotten my CI, it really went into hibernation which has been a real blessing. I'm not saying I'm hearing "per se" because of my CI but rather that I can live with minor issues and it has become a moot point for me.

I'm glad that your internal struggles have quieted down, and obviously, you have been the type of person who could work through them with a bit of maturity and abjectiveness. Unfortunately, some carry the scars for a lifetime, and never overcome the frustration.
 
I'm glad that your internal struggles have quieted down, and obviously, you have been the type of person who could work through them with a bit of maturity and abjectiveness. Unfortunately, some carry the scars for a lifetime, and never overcome the frustration.

I am glad for u sr171soars that u were able to overcome the struggles within u.

I am with u Jillo on that there are still those who never were able to overcome this. My friend is one of them...she still brings up the cheerleaders obstrating her for 3 years due to her deafness and lets it affect her decision making now even though it has been 20 years. She is unable to make decisions without antagonizing over on how other people will think of her. She didnt need that..I wish she was more involved with the Deaf community but her hearing husband gives her a hard time about her socializing with other deaf people. The reason she lets him control her is cuz of her upbringing being margalized by hearing people big time.
 
I am glad for u sr171soars that u were able to overcome the struggles within u.

I am with u Jillo on that there are still those who never were able to overcome this. My friend is one of them...she still brings up the cheerleaders obstrating her for 3 years due to her deafness and lets it affect her decision making now even though it has been 20 years. She is unable to make decisions without antagonizing over on how other people will think of her. She didnt need that..I wish she was more involved with the Deaf community but her hearing husband gives her a hard time about her socializing with other deaf people. The reason she lets him control her is cuz of her upbringing being margalized by hearing people big time.

I agree with you. From what you say, I would think that she is so insecure based on past experience that she allows her husband to control her. And since she feels that hearing people will marginalize her anyway, she creates a self fulfilling prophecy for herself. A kind of "I'll do it to myself before they can do it to me" situation. Strangely enough, that provides some sense of control.
 
I agree with you. From what you say, I would think that she is so insecure based on past experience that she allows her husband to control her. And since she feels that hearing people will marginalize her anyway, she creates a self fulfilling prophecy for herself. A kind of "I'll do it to myself before they can do it to me" situation. Strangely enough, that provides some sense of control.

Providing some sense of control..hmmm ..that does make sense cuz she has no control over her life with her husband being so controlling. She doesnt work so he controls all the money and when she makes plans for them on the weekends, he would change them and when she gets upset or expresses her feelings, he rolls his eyes at her and tells her that she is being dramatic. I cant imagine living my life like that..someone would end up in jail!
 
Providing some sense of control..hmmm ..that does make sense cuz she has no control over her life with her husband being so controlling. She doesnt work so he controls all the money and when she makes plans for them on the weekends, he would change them and when she gets upset or expresses her feelings, he rolls his eyes at her and tells her that she is being dramatic. I cant imagine living my life like that..someone would end up in jail!



LOL! You and me both!
It's really sad that her self esteem has suffered to the point that she is willing to put up with that kind of treatment.
 
When I was growing up I had apsolutely NO selfworth whatsoever. I think the self harming I did was probably an effort to control pain rather then because I enjoyed pain although I did find the physical pain better then the mental pain I was feeling.

As an adult I've stayed in a situation where I was suffering from Domestic violence. When I DID eventually leave it wasn't because of what was happening to me. I just didn't like the effect their behavior was having on Jilli and my other animal friends. Like when I got hit Jilli was shaking like a leaf.

Of course I wouldn't put up with anything like that now.
 
Shel
That was some good stuff. All kids have these defining times and it just proves that we as parents have to always be their advocate because if we not there for them who is? This made me cry not because I felt sorry for her but because she was so alone and no one should have to be so alone.
 
Thanks Shel, Dixie, Jillio and others,
I'm a hearing grad student, and I'm sure you have noticed some of us "listening" in from Ohio. Several in the group are parents of HOH or deaf children...others like me, have been pretty ignorant of the Deaf culture/ community and the trauma expressed above. Hope you don't mind the intrusion, but you're making a difference in my life. We do tend to believe the media, because that's all we're familiar with. We assume everyone wants to hear, but Shell you said in another chat, "It seems like this belief is even more enforced due to the media's misinformation about CIs "curing' deafness, u think?" The answer to that question is YES. The CI "Wars" info is informative but these first-person descriptions of internal struggles have opened the door for me. I'm a little more "enlightened" and have a long way to go, I'm sure, but thanks again for sharing.
Respectfully,
Linmarie
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