RyLeigh's mom
New Member
- Joined
- Dec 28, 2011
- Messages
- 3
- Reaction score
- 0
Thanks so much for all the responses. It makes me feel better to know that there are others out there willing to share their advise and experiences. In way I think I just really needed someone to vent (aka panic) to. lol.
I really can't say enough how much better it felt just to write about my worries and have someone respond.
I though a lot about what some of you mentioned about learning ASL and you made some good points.
Before she was born I had decided to do baby signs with her I though that it would be interesting and would be good for her. She has been exposed to them some since she was only a few months old, I will admit after she was diagnosed things got kinda crazy and I haven't used them nearly as much as I had planned.
This is something I am going to starting working on with her more again. I think I will also look into if there is a class that I can take. I do have a book and a DVD but I am not sure if I could learn ASL on my own.
Yes I am only too aware of the fact that her hearing can get worse I have read that as much as 50% of children with her type of loss will loose more hearing. I have also read about other bad things that can come along with hearing loss among them, eventually becoming blind and kidney failure to name the worst , although I know these things are rare they still scare me.
I appreciate that someone mentioned that progressive hearing loss also includes the hearing that is lost as one ages. I had not though about it that way.
We are supposed to have some genetic testing done in March, I know that there is a good chance that we will never know what caused her hearing loss, but I hope that maybe they can at least rule out a few of the bad things the ones that cause other problems.
I am going to ask her audi about if an aid with more frequencies would be better for her though. I did ask this question last time we were there but the audi was out of the room and the student she had with her answered it. She said that having more than 8 channels really didn't make much difference and that the ones with more channels cost lot more.
I think her aids would be good for most kids, it is the fact the RyLeigh has a cookie bite that makes me worry if they are really the best choice.
I can understand why some prople with hearing aids may not hear the whistleing sounds (feedback). But I do think that RyLeigh may be able to hear them since the high frequencies are some of her better hearing ( 40000 - 35db and 6000 and 8000 - 20db) I am hoping that new ear molds will help the ones she has are over 3 months old she almost grew out of them before she actaully got the aids.
In closing I just want to say thanks again. I look forward to being a member of the forum. I know I will have more questions in the future. Thanks, and happy new year to everyone.
I really can't say enough how much better it felt just to write about my worries and have someone respond.
I though a lot about what some of you mentioned about learning ASL and you made some good points.
Before she was born I had decided to do baby signs with her I though that it would be interesting and would be good for her. She has been exposed to them some since she was only a few months old, I will admit after she was diagnosed things got kinda crazy and I haven't used them nearly as much as I had planned.
This is something I am going to starting working on with her more again. I think I will also look into if there is a class that I can take. I do have a book and a DVD but I am not sure if I could learn ASL on my own.
Yes I am only too aware of the fact that her hearing can get worse I have read that as much as 50% of children with her type of loss will loose more hearing. I have also read about other bad things that can come along with hearing loss among them, eventually becoming blind and kidney failure to name the worst , although I know these things are rare they still scare me.
I appreciate that someone mentioned that progressive hearing loss also includes the hearing that is lost as one ages. I had not though about it that way.
We are supposed to have some genetic testing done in March, I know that there is a good chance that we will never know what caused her hearing loss, but I hope that maybe they can at least rule out a few of the bad things the ones that cause other problems.
I am going to ask her audi about if an aid with more frequencies would be better for her though. I did ask this question last time we were there but the audi was out of the room and the student she had with her answered it. She said that having more than 8 channels really didn't make much difference and that the ones with more channels cost lot more.
I think her aids would be good for most kids, it is the fact the RyLeigh has a cookie bite that makes me worry if they are really the best choice.
I can understand why some prople with hearing aids may not hear the whistleing sounds (feedback). But I do think that RyLeigh may be able to hear them since the high frequencies are some of her better hearing ( 40000 - 35db and 6000 and 8000 - 20db) I am hoping that new ear molds will help the ones she has are over 3 months old she almost grew out of them before she actaully got the aids.
In closing I just want to say thanks again. I look forward to being a member of the forum. I know I will have more questions in the future. Thanks, and happy new year to everyone.
