Oh do I know where you are coming from! *m*
I also had Meningitis at the age of 2. What is worse is it took everyone a couple of years to realized that I was HOH. My parents thought I was just disobedient!!!
I was fully mainstreamed, never had anyone to talk to about my difficulties (certainly never the culture) I look back now and it feels like everyone just ignored it. Now, at age 36 I feel myself lost because I do not know ASL, no deaf friends. My heart goes out to you!!: